Time Between Eating And Symptoms
Posted 09 January 2004 - 12:28 PM
When my stomach's hurting and I fell spacey and lightheaded, is it because of the chili I just ate, from sauce at dinner last night, from the half beer I had two nights ago? I'm trying to keep track of what bothers me but it's hard to tell. It seems like I immediately start having stomach cramps (well within 30 min) after eating something with wheat. Is this possible? Am I crazy?
I haven't been diagnosed with anything and I have a doctor appointment on monday, my second in two months. I'm really nervous that it's going to be a huge battle to find out what's wrong so I'm trying to pay close attention to what I eat and how I feel.
I feel so much better on a bascially gluten-free diet that it's unbelievable, so I really think I might have celiac. But I don't want to totally eliminate it in case that will screw up any testing I can manage to convince the doctor to do.
Last time I went to the doctor after my hands, feet, face and tongue swelled up for several days, she acted like I was crazy for suggesting gluten intolerance and told me to start eating normally again.
Anyway, thanks in advance for any observations or advice.
Posted 09 January 2004 - 12:45 PM
Posted 09 January 2004 - 12:54 PM
Time between gluten ingestion and symptoms seems to vary a bit. If I have an accident at dinner, I usually discover it late in the evening (gas and bloating) or first thing the next morning (diarrhea), but just last week I had a contaminated lunch and developed an intense stomachache and headache even before I had finished eating! Sometimes I suspect contamination while I am still eating (like last night) because I lose my appetite.
It is good that you have not completely eliminated gluten from your diet yet, since being gluten-free can interfere with testing. I hope your doctor doesn't give you the runaround! Have you investigated Enterolab yet? Enterolab performs a whole panel of testing related to celiac disease, and although these tests are not (yet) accepted by most conventional doctors, they DO seem to be reliable--and MORE accurate than blood tests! If you can't convince your doctor to test you, these tests would give you a definite answer while you search for a better doctor.
gluten-free since November 1, 2003
Posted 09 January 2004 - 01:25 PM
Only you know your body and how you feel. If your doctors will not listen to you I highly reccomend Enterolab. I visited numerous doctors and went through a number of procedures all for NOTHING. My endoscopy biopsy showed patchy inflammation and my doctor STILL dismissed Celiac Disease, all because my blood-work came back negative. I ordered the stool panel test from enterolab and found out within 2 weeks that I do have Celiac Disease and malabsorption due to intestinal damage. I immediately started a gluten-free diet and feel better than I have in a LONG time.
I hope this helps!
Posted 09 January 2004 - 05:29 PM
Three cheers for Enterolab. They diagnosed my newest little grandson with gluten sensitivity and allergies to milk and dairy at less than a month old, and my sister, brother, husband, and three grown children are all now in the processing of having the test to see if they are gluten sensitive. There are a total of 22 other family members (children and grandchildren) connected to us, who may also have celiac, and, amazingly, many of the spouses exhibit celiac symptoms. Do you suppose that celiacs have small little magnets within which attract other celiacs, or is celiac just more widespread than anyone suspects? My grandson's other grandma even has signs similar to celiac, so hopefully, as time goes by we will all get tested.
Posted 09 January 2004 - 05:56 PM
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Posted 09 January 2004 - 07:49 PM
Welda, I have just been wondering the same thing! I am pretty sure my husband has celiac disease, but I could chalk that up to random luck of the draw. The thing that gets me is that out of my relatively small circle of friends and acquaintances, I can think of 5 people (and 4 of their kids) who I think should DEFINITELY be checked for celiac disease! I don't know 500 people (probably not even 50!), which is about how many I would have to know for that number to make sense statistically. Gee, if I could only convince them all to get tested, I could have a ready-made support group!
Do you suppose that celiacs have small little magnets within which attract other celiacs, or is celiac just more widespread than anyone suspects?
gluten-free since November 1, 2003
Posted 10 January 2004 - 04:56 AM
Hope this helps.
Posted 10 January 2004 - 01:20 PM
My symptoms seem to surface within 2 or 3 days. My bowel movements become loose and mouth ulcers begin to erupt. My bowel remains irritated for about a week. The mouth ulcers last a bit longer. The severity depends on how much gluten I've ingested. These are my main symptoms. There are several others that seem to take turns.
Happy gluten-free Day, all - Toni
Posted 10 January 2004 - 04:22 PM
I'm on the stubborn side, so I guess I have to learn these lessons the hard way.
Thanks for all the help. You are all a bunch of life-savers, even if ya don't know it.
Posted 10 January 2004 - 06:44 PM
I hope this helps
Posted 20 January 2004 - 03:05 PM
One last thing, I do not have a dx of celiac disease for myself (my blood tests were neg), but I have always had a tempermental stomach and I process foods in record time so when I get something that doesn't agree with me, gluten or other, I get sick within 20 - 30 minutes. My husband is sure I am also a celiac, and my mother is also wondering, but since my blood tests were neg, my doc isn't interested in continuing with any further testing.
Son has been gluten-free since December 2001
Posted 22 January 2004 - 09:33 AM
For some reason, I haven't been quite as hungry the last few days. I think because I have been experimenting with some foods. My husband made me lasagna over the weekend and used Portobello mushrooms in place of the pasta. My daughter and I thought it was incredible.
I guess it is just a matter of acepting ( the diagnosis), adjusting (to the new diet), and averting (gluten food disasters).
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