Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Time Between Eating And Symptoms
0

13 posts in this topic

I'm wondering how long it takes people to notice symptoms after eating something with gluten?

When my stomach's hurting and I fell spacey and lightheaded, is it because of the chili I just ate, from sauce at dinner last night, from the half beer I had two nights ago? I'm trying to keep track of what bothers me but it's hard to tell. It seems like I immediately start having stomach cramps (well within 30 min) after eating something with wheat. Is this possible? Am I crazy?

I haven't been diagnosed with anything and I have a doctor appointment on monday, my second in two months. I'm really nervous that it's going to be a huge battle to find out what's wrong so I'm trying to pay close attention to what I eat and how I feel.

I feel so much better on a bascially gluten-free diet that it's unbelievable, so I really think I might have celiac. But I don't want to totally eliminate it in case that will screw up any testing I can manage to convince the doctor to do.

Last time I went to the doctor after my hands, feet, face and tongue swelled up for several days, she acted like I was crazy for suggesting gluten intolerance and told me to start eating normally again.

Anyway, thanks in advance for any observations or advice.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes, symptoms can occur almost instantly. They certainly do for me. You may want to try another doctor. I am planning a visit to a homeopathic MD not to far away from my home.

Roz

0

Share this post


Link to post
Share on other sites

cornygirl,

Time between gluten ingestion and symptoms seems to vary a bit. If I have an accident at dinner, I usually discover it late in the evening (gas and bloating) or first thing the next morning (diarrhea), but just last week I had a contaminated lunch and developed an intense stomachache and headache even before I had finished eating! Sometimes I suspect contamination while I am still eating (like last night) because I lose my appetite.

It is good that you have not completely eliminated gluten from your diet yet, since being gluten-free can interfere with testing. I hope your doctor doesn't give you the runaround! Have you investigated Enterolab yet? Enterolab performs a whole panel of testing related to celiac disease, and although these tests are not (yet) accepted by most conventional doctors, they DO seem to be reliable--and MORE accurate than blood tests! If you can't convince your doctor to test you, these tests would give you a definite answer while you search for a better doctor.

Good luck!

0

Share this post


Link to post
Share on other sites

Yes, sometimes I get a reaction within 1/2 hour or by the next morning. But like Sarah I have also had a reaction in the middle of a meal, of course that was before going gluten-free.

Only you know your body and how you feel. If your doctors will not listen to you I highly reccomend Enterolab. I visited numerous doctors and went through a number of procedures all for NOTHING. My endoscopy biopsy showed patchy inflammation and my doctor STILL dismissed Celiac Disease, all because my blood-work came back negative. I ordered the stool panel test from enterolab and found out within 2 weeks that I do have Celiac Disease and malabsorption due to intestinal damage. I immediately started a gluten-free diet and feel better than I have in a LONG time.

I hope this helps! :)

0

Share this post


Link to post
Share on other sites

Sometimes I have reactions of wheezing and being unable to breathe within 15 minutes of a meal, but recently, I had a bad reaction the next morning, and I am still trying to figure out what could have been in the meal that was poisonous for me. I had a strong feeling of irritability, and slight depression, and those are sure signs for me that the restaurant meal the previous night must have included lettuce washed in some chemical, or the fish contained some hidden spice or something. That is why I like to eat at home--I KNOW what I am putting in my food.

Three cheers for Enterolab. They diagnosed my newest little grandson with gluten sensitivity and allergies to milk and dairy at less than a month old, and my sister, brother, husband, and three grown children are all now in the processing of having the test to see if they are gluten sensitive. There are a total of 22 other family members (children and grandchildren) connected to us, who may also have celiac, and, amazingly, many of the spouses exhibit celiac symptoms. Do you suppose that celiacs have small little magnets within which attract other celiacs, or is celiac just more widespread than anyone suspects? My grandson's other grandma even has signs similar to celiac, so hopefully, as time goes by we will all get tested.

Welda

Welda

0

Share this post


Link to post
Share on other sites




My reactions are subtle, but very quick. Dizziness within about 15 minutes, followed by two days of looser stools, three or four days of abdominal cramping, and up to a week of tiredness, fogginess, and irritability.

0

Share this post


Link to post
Share on other sites
Do you suppose that celiacs have small little magnets within which attract other celiacs, or is celiac just more widespread than anyone suspects?

Welda, I have just been wondering the same thing! I am pretty sure my husband has celiac disease, but I could chalk that up to random luck of the draw. The thing that gets me is that out of my relatively small circle of friends and acquaintances, I can think of 5 people (and 4 of their kids) who I think should DEFINITELY be checked for celiac disease! I don't know 500 people (probably not even 50!), which is about how many I would have to know for that number to make sense statistically. Gee, if I could only convince them all to get tested, I could have a ready-made support group!

0

Share this post


Link to post
Share on other sites

I think it definitely varies depending on the amount of contamination and your body on how sensitive you are. Sometimes my stomach will cramp up before I finish eating, or I can bloat within 30 mins after my meal. Other times, I don't notice anything until later suddenly my heart is racing and I feel like I could hysterically cry! Some mornings I'll think I had a day with no contamination until I get out of bed and suddenly feel nauseous and then the best way I can describe it is it feels like I have a hangover and my eyeballs ache, like they are going to bulge out of the sockets. I can't wait to feel better :)

Hope this helps.

Lily

0

Share this post


Link to post
Share on other sites

Hi,

My symptoms seem to surface within 2 or 3 days. My bowel movements become loose and mouth ulcers begin to erupt. My bowel remains irritated for about a week. The mouth ulcers last a bit longer. The severity depends on how much gluten I've ingested. These are my main symptoms. There are several others that seem to take turns. <_<

Happy gluten-free Day, all - Toni

0

Share this post


Link to post
Share on other sites

The main thing that I have noticed since going gluten-free on Halloween, is the mouth sores, and that is within a few hours of eating something. THe last couple of days, I have been depressed and missing "normal" foods so I haven't been as vigilant as I should be and now I have the mouth sores.

I'm on the stubborn side, so I guess I have to learn these lessons the hard way. :(

Thanks for all the help. You are all a bunch of life-savers, even if ya don't know it.

Sharon :)

0

Share this post


Link to post
Share on other sites

Sharon: OH BOY do I ever know what you mean about the mouth sores, we had some very good suggestions on another thread under "related disorders". I had a terrible one up until yesterday. The pain was intense and the swelling was bad. It finally went away 10+ days later..... Take a look at the thread there are a lot of thing mentioned that I would have never thought about, it may help you out.

I hope this helps :)

0

Share this post


Link to post
Share on other sites

Hi all, just dropped by to add my two cents on reaction times. My son (celiac disease/gluten-free for 2 years) takes a while to have a reaction when he gets contamination, sometimes as much as three days. But he stays sick for a very long time, a couple of weeks usually. He gets the typical diarhea, and he gets moody, and towards the end he tends to suffer from flu like symptoms. He never had a lot of skin issues before but the last two times he has had any contamination, he has developed a very light rash on his tummy. When he was still in diapers, his diaper rash was so bad it made me cry, open sores would erupt almost instantly after a bowel movement. Now that he is potty trained, thankfully, that doesn't seem to be a problem anymore.

One last thing, I do not have a dx of celiac disease for myself (my blood tests were neg), but I have always had a tempermental stomach and I process foods in record time so when I get something that doesn't agree with me, gluten or other, I get sick within 20 - 30 minutes. My husband is sure I am also a celiac, and my mother is also wondering, but since my blood tests were neg, my doc isn't interested in continuing with any further testing.

0

Share this post


Link to post
Share on other sites

Stacie, Thanks for the input. I have been much more vigilant and things have gotten better.

For some reason, I haven't been quite as hungry the last few days. I think because I have been experimenting with some foods. My husband made me lasagna over the weekend and used Portobello mushrooms in place of the pasta. My daughter and I thought it was incredible.

I guess it is just a matter of acepting ( the diagnosis), adjusting (to the new diet), and averting (gluten food disasters).

thanks

sharon :rolleyes:

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,367
    • Total Posts
      920,556
  • Topics

  • Posts

    • This easy to make bean dip makes a great addisiton to any good munching session. Goes gret with salsa and gluten-free beer. View the full article
    • Good grief!  :o. I'm so sorry, I wish there was something I could do or say to help you.  I agree with the NP, your primary needs to be requesting copies of your records from the other doctors, as well as the records and lab reports from your hospital stay.  They are supposed to work together as a team, not just individually out in left field.
    • Just a quick one to say I got a diagnosis of celiac disease today. I know in the past it's been helpful for me to know the outcome for other folk, so thought I would update. The moral of this story is even with a VERY borderline blood test it's worth persisting. thanks for all the help Sue 
    • Our own resident gluten-free expert is Suzie Davies. Suzie has been dedicated to gluten-free products since she was diagnosed with celiac disease ... View the full article
    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,443
    • Most Online
      1,763

    Newest Member
    Richard Green
    Joined