Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hip Pain?
0

11 posts in this topic

I have managed to get glutened a few times, and most recently I have been having really bad awful pains in my hips. It hurts to move them out the side, like if I wanted to cross my legs, and when I'm driving or walking, they are cracking and popping like a box of rice=krispies that fell into a puddle of water. I'm a bit concerned because I have a very thin bone structure and I have not had anything done to check it out aside from the heel scan I had done about 5 years ago. However, I'm thinking that since my heel didn't hurt, it might not be a good test of my overall bone density, as it was just one part of my body. The pain usually subsides, but this last time I got sick, the pain is now sticking around, and I'm having a hard time walking. I went to my doctor yesterday and expressed my concern, however she said that at my age, I'd set a world record for osteoperosis, or even osteopenia. She sent me for x-rays to see if I had any stress fractures, or anything else, and poked and prodded me to make sure that I was not infected, or just stiff. My concern is this-

if the x-rays don't show anything bad, what else could it be?

I don't know where to go after this, and I'm afraid of what will happen if I can't find out what is wrong.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I can't relate to the rice crispy type "FizzyHips", but the pain - oh yes.

For me it wasn't side to side as much as forward and back. It lasted quite awhile, though not at a constant level. It gradually got worse until I couldn't actually walk, which lasted nearly a month. I do attribute it to Celiac.

I also have had severe pain in various other places, and most seemed bone related in nature. Most lasted two to four weeks. Shoulders, back, ribs, legs, etc. All I suspect were brought on by the gluten intolerance and/or subsequent damage. The pain seemed to be slowly traveling from one area to the next, sometimes subsiding while it was "on the move".

I'm still not pain free, though I believe nearly there now, as there are only a few small places left. It is getting easier day by day to get around without discomfort.

However, I have also experienced what yeast can do to a person's gut. The damaged gut seems to be all the more susceptible to infection. I wouldn't overlook this possibility, not after what happened to me with yeast. I don't know if you are familiar with this subject, but you might want to search the board for "candida", "Caprylic acid", and "Acidophilus". Google those too, and you may find more than you ever imagined.

0

Share this post


Link to post
Share on other sites

I'm just wondering why I'm in so much pain... do you think that there is an attack going on in my hips, (like som gluten mysteriously got there or something..)or is it just something I'm not going to get an explination to?

0

Share this post


Link to post
Share on other sites
I'm just wondering why I'm in so much pain... do you think that there is an attack going on in my hips, (like som gluten mysteriously got there or something..)or is it just something I'm not going to get an explination to?

I don't have a scientific or medical explanation, but I do know that for me it was really painful, and all I could do is find the least irritating movements and stick to those. For my hip, leg and knee pains, I found it GREATLY beneficial to use a leg pillow (or fold up an extra blanket) to lessen the stress while sleeping. It made a huge difference for me.

I suppose it could be the body trying to repair parts which it couldn't deal with while the glutening was going on. Just make sure you give yourself plenty of proper nutrients so the body can do what needs to be done. The freshest veggies - all kinds, dark leafy ones too. Fresh fruits are full of all sorts of good stuff. And, or course, plenty of water.

0

Share this post


Link to post
Share on other sites

Hello Princess:

If I were you I would have the x-ray on your hips and then have the docotr do a bone density test. It is so important that you listen to your body and push your doctor to keep testing until they figure out what is wrong.

I think many of us have learned the hard way that the medical profession is far to willing to say it's all in your head, it's stress or your depressed. We really must take charge of our own health. If you don't get satisifaction from this doctor then change doc's.....

Sally

0

Share this post


Link to post
Share on other sites




Hello Princess:

If I were you I would have the x-ray on your hips and then have the docotr do a bone density test. It is so important that you listen to your body and push your doctor to keep testing until they figure out what is wrong.

I think many of us have learned the hard way that the medical profession is far to willing to say it's all in your head, it's stress or your depressed. We really must take charge of our own health. If you don't get satisifaction from this doctor then change doc's.....

Sally

Have you been tested for RA or sent to a rhumatois specialist? All summer I was having very bad hip pain constantly. I couldn't lay on my side, hurt if I sat too long, ETC. Finally I was sent to a Rhumatoidoligist and they did a lot of indepth tests. Came back that my celiac (and having not been put on a gluten-free diet so long) caused borderline RA...being made worse everytime I was glutened. Still have some pain (hardly any) but it only acts up after I accidently am glutened.

0

Share this post


Link to post
Share on other sites

Thanks for your replies. I'm going to find out the results of the x-rays on monday and see where I go from there... I'll keep all this advice in mind the next time I go to the doctor.

0

Share this post


Link to post
Share on other sites

I get the same pain when I get glutened. My pain feels like it is in the ball joints of the hips and also in the area on my very lower back (almost at the tailbone) where the hips join to the spine. It will ache terribly, and I will feel very stiff and have great difficulty walking and climbing stairs. A heating pad helps a lot, and for me I take extra-strength Advil. It usually lasts 3-7 days and then goes away.

Nobody has been able to figure out what is causing it (I also had the X-rays, etc). The only person who even heard of this was my chiropractor who said he has read that people who have celiac disease often have a problem with pain in these hip joints. But that was all he knew.

If you get any information on what might be going on...please post the findings here...I'd be very interested in anything you learn.

Best of luck

Gabby

0

Share this post


Link to post
Share on other sites

I have terrible pain in my hips and outside of my legs, connecting to my glutes and lower back. My doctor says gluten will "attack" here, or other words that it does make those muscles sore. Mine will pop when I'm biking, probably because of muscle instability. They do not pop when I'm walking.

This past weekend I was in NYC, walking a lot with some running to catch trains. I felt like my body was going to collapse under me because it hurt so bad in my hips and legs. IT band troubles may also be slightly linked to autoimmune disease. This is a band that runs down your outside leg from your hig bone to your knee. I started having trouble with it when I was training for a hlf marathon. It's been almost a year since I've run and it sitll bothers me. IT band troubles often go hand in hand with piriformis syndrome, which can then lead to sciatica. You can look all of this up online to see if it sounds like you. Medical massage, pysical therapy and stretching help, but for me the pain always returns after being active more than 30min to an hour, depending on the intensity. And by being active I don't mean running - I mean just standing and walking. Pain while sitting for a long time is tell tale piriformis/sciatica.

0

Share this post


Link to post
Share on other sites

Do any of you have arthritis in your family? As arthritis is a big thing in my family I can't tell if the pain is worse when a glutening happens or not as my arthritis is so bad.

0

Share this post


Link to post
Share on other sites
I have managed to get glutened a few times, and most recently I have been having really bad awful pains in my hips. It hurts to move them out the side, like if I wanted to cross my legs, and when I'm driving or walking, they are cracking and popping like a box of rice=krispies that fell into a puddle of water. I'm a bit concerned because I have a very thin bone structure and I have not had anything done to check it out aside from the heel scan I had done about 5 years ago. However, I'm thinking that since my heel didn't hurt, it might not be a good test of my overall bone density, as it was just one part of my body. The pain usually subsides, but this last time I got sick, the pain is now sticking around, and I'm having a hard time walking. I went to my doctor yesterday and expressed my concern, however she said that at my age, I'd set a world record for osteoperosis, or even osteopenia. She sent me for x-rays to see if I had any stress fractures, or anything else, and poked and prodded me to make sure that I was not infected, or just stiff. My concern is this-

if the x-rays don't show anything bad, what else could it be?

I don't know where to go after this, and I'm afraid of what will happen if I can't find out what is wrong.

Hello, may I offer you some thoughts? I had horrendous pain and did some reading on arthritis. The deadly nightshade family of plants, that is potatos, tomatos, peppers, eggplant, and related plants cause pain in the joints and up and down the spine. I was having such pains along with my glutein intolerance and remembered other family members complaining of such pain in years past. I eliminated these items from my diet and voila! the pain is ceasing. Please try this. See if it works for you. I hope it will help you.

My best to you in the holiday season, Beadlady

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,592
    • Total Posts
      918,285
  • Topics

  • Posts

    • celiac disease is psychosomatic
      I called this doctor's office again to inquire if my medical records have been corrected. When I called to amend my records because there was inaccurate information, the staff member told me that I need to write my complaint in email to doctor. So, that's  what I did. The doctor wrote things I said that I didn't say, which changed the meaning of what I said so I wanted to correct that. I talked to a different staff member today. Her tone of voice is irritaing because it's condescending and argumentative like she refuses to help you. Todays she said the doctor wasn't going to commit fraud by writing something I tell her to write. I don't feel irate when I talk to the other staff member who answers the phone. Anyway, this staff member said she printed my email for the doctor to read  and she'll reply when she wants to reply (never). I said that it's not the doctor's choice to choose whether or not to correct inaccurate information in medical records. I said I think by law, it must be done so if the doctor continues to ignore my request to correct inaccurate information, then I should probably file a medical complaint somewhere. Finally, the doctor called me back. She asked what was inaccurate when I said I wanted to correct the incorrect information. Then, I asked if she read my email. She said she did not have time to read patient STORIES. I said a good doctor would make the time to read a request to correct inaccurate information in a patient's medical record. Then, she said I'm sick to keep writing letters to her. I said I only wrote one emailto her and it was because a staff member said that is how to amend the inaccurate information. She added that if I really had physical symptoms, I would not have been able to get a college degree or write letters to her. Although I explained to her during my consult that I took online classes and did homework in bed with lots of breaks, she thinks I must be pretending to have symptoms. I also explained during my consult that half of my dizziness and migraines are gone since being on a gluten-free diet. Yes, this makes sense why her office makes me feel so irate! I ended the call by asking if she was going to correct the inaccurate in my medical redords. She kept rambling on how only sick people keep writing letters to doctor's letters. Again, I told her I only wrtote one email to her and thaty's because her staff member told me to correct inaccurate information in record. The staff member recommended this instead of filling out a record amendment form, which I don't think they have.  Since my neurologist referred me to her when I inquired about help for my memory problems, I'm afraid she will tell him negative things about me. Her office is just across the hall from his. Doctors are more likely to take the word of another doctor over a patient. In contrast to this doctro, my neurologist is a real competent doctor. Do you ever think that sometimes doctors are crazy, but they get away with making others think it's the patient who is crazy because they feel more powerful? This doctor is a neuropsychiatrist. I will never see a neuropsychiatrist again due to this bad experience.  My appointment with the neurologist is in another week. I don't know if I should briefly mention my bad experience with this doctor to him so he won't believe her if she tells him that I am faking my symptoms. It would be like I was faking my whole life if I was faking my symptoms. Maybe I could say something like the brain testing wasn't very helpful with that doctor since she assumed my symptoms were all in my head since I would have never been able to graduate from high school or get a college degree if I was sick. I also told her during my consult that I received average grades in high school because I often went straight to bed after school not having chance to do homework.     It
    • Nature's Bounty Protein & Vitamin Shake Mix
      Hello to all -this is my first entry! I am checking with everyone to see if they have been having a reaction to the Nature's Bounty Protein & Vitamin (chocolate) shake mix after drinking it.  When you read the label on the container, it states that it has Oat Fiber in it -but then reading online through their website it shows the ingredients contain "wheat products".  I don't have severe Celiacs but now that I have been gluten-free for 7 years, I notice when things aren't right.  I started (my wife starting giving to me) the Nature's Bounty mix around 4 months ago -but have only recently (within the last month) been experiencing stomach pains after drinking (pretty much immediately -before I am even done with it). Does anyone else have this issue?  Does anyone know specifically if it is NOT gluten-free?  It does not state so on the container or on their website. Thank you for any input you can provide. Pete
    • Gluten-Free Safety Starts Here
      How many of us have suffered from cross contamination? Most celiacs have felt the side effects of getting gluten in their food. If it is not your own kitchen, utensils, pots or pans it can be a bit nerve racking. It is not only extremely unpleasant, but unhealthy to our intestines as well. It can cause damage that can be very detrimental in the long run. View the full article
    • Help!! Testing 3 1/2 year old
      Your son is very young and it is extremely difficult most times to diagnose a young child.  Many do not develop enough damage to trip a blood test for conclusive results until more time has gone by and more damage occurs....which you want to try and avoid.  I would definitely get a second opinion and maybe even schedule an endo.
      If those come back inconclusive, then I would do a strict dietary trial to see if his symptoms get better or go away.  Include the gene testing also for purposes of ruling the genetics for it out. What caught my attention were his symptoms.  Those are very specific to Celiac, or can be.  Mouth sores, abdominal complaints and skin rashes.  I had canker sores as a kid and stomach issues but no one was looking for Celiac back then and there were no blood tests. So....I ended up going to the age of 46 before I was diagnosed with Celiac, not to mention the 3 other AI diseases I acquired along the way. That should not happen to anyone. If his symptoms go away or improve greatly, then document this and take it back to a doctor for his record. The diet is not hard to do but it is not convenient. I would say a dietary trial as a last resort is important because undiagnosed Celiac can really take it's toll on people and diagnosing or ruling it out in kids can be especially challenging.
    • Refractory Celiac Patient Successfully Treated With Mesenchymal Stem Cell Infusions
      For the first time, doctors have successfully treated refractory celiac disease using stem cell infusions. View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,690
    • Most Online
      1,763

    Newest Member
    jilord
    Joined