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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Recovering From A Gluten Accident
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13 posts in this topic

OK, I've been (theoretically) gluten-free for 3 months but on Easter I went to a buffet with some friends and something zapped me but good (I suspect the very delicious ham). I'm sure I've had gluten exposures before but they were mild compared to this! I've learned firsthand that after being gluten-free for a while, an accidental ingestion can be a nightmare. I had cramps and diarrhea like never before for about a day and a half.

Anyone have any suggestions on how to cope with this other than rest and strict gluten-free eating?

I did find that taking Advil helped with the cramping quite a bit.

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Lots of water and tuning out the world. I always get a sore throat with mine, so I use throat lozenges. Waiting it out takes up to a week for me, but it is all I can do. Just lots of rest!

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yes, lots of water (or specially made beverages to help replace electrolytes if you've been throwing up or going to the bathroom all day!) and rest up. things like gluten-free crackers (glutano makes some good ones) or pretzels (glutino, Ener-G) kind of help my nausea if I have them around to nibble - that, or gluten-free cereals like corn flakes, things that aren't sweet.

good luck!

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Yes, I got zapped by a burger that was cooked on a grill where buns were cooked. Never again will I be so gullible as to assume that this was not possible. This was yesterday. This afternoon I am feeling much better. For me it takes about 24 hours and I feel much better, but it takes a couple of days to feel good. Such is the life of a Celiac. My husband took me out to lunch and regretted it after I became sick that evening. Ye Gads we need all need an intermediary to watch out for us, even after several years of gluten free.

Shirley

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I had the misfortune of being served the wrong meal at my nephew's bar mitzvah even after going over my dietary restrictions with them! I fortunately ate only four bites before they realized their mistake, but I was ill for two days. When I asked my celiac group what I should do if confronted with a similiar situation, they suggested eating bananas because the potassium helps if you've accidentally ingested gluten. Our leader also recommended papaya seed tablets for the same reason.

Shirlane

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Hi,

I hope your feeling better. I recently had a series of gluten accidents, and have been sick for several weeks as a result. I am 59 years old and I think it takes a little longer to heal. I found the thing that helped the most was to eat a very mild diet. I had broth, bananas, sweet potatoes, and applesauce I also drank lots of water. My doctor also put me on L-Glutamine, which I think really helped. I couldn

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Thank you all for your input!

I had another setback last Friday night. INCREDIBLE lower back pain, cramps, and diarrhea. I tried to eat to alleviate the weak feeling but that was a mistake--I ended up vomiting as my body simply did not want to deal with food, no way, no how! The worst of it is, I don't know what caused it. I'm going to get back to keeping a strict food diary--I had been slacking off, tired of the discipline of writing everything down.

It seems each time this happens, it's worse than the last time. I mentioned this to my doctor but I don't think he believed me. I wonder if there's any research that supports the notion that after being gluten-free for a while, exposure results in a severe and painful reaction.

I'm tired today, but at least not in pain any more.

I wonder again if fasting would be of benefit....

I've been using L-glutamine for a while--can't tell if it helps or not.

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When I get sick from an accidental dose of gluten I am down for a few days. My doctor recommended that I get this stuff called VERATRUM ALBUM 30. I found it in my health food store. It's a vial of little tiny pills, it helps with the diarrhea, vomiting, and sweating (i get severe fevers). When I get sick I take a dose of these pills and it helps the symptoms go away quicker. Granted they are still there, this is not a cure all drug, but a I will live through this drug. My doctor made sure that I understood that just because this eases my pain some I still have the physical damage done.

I don't know if this will help, but it might be worth asking your doctors about. :rolleyes:

Besides that I try to sleep and I usually eat some chicken soup that I keep frozen for occassions such as those.

MURDA

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Hi, I'm new to the boards ;) I am 14 years old and in the last 3 weeks I have discovered that I am gluten-intolerant. My mom and I have been learning more each day(sometimes learning the hard way :blink: ) But anyways, The other day we bought Soy cookies that were labeled WHEAT-FREE and I had 4 cookies within 2 days! :o My stomach has been slightly messed up! Yesterday I read the ingredients througoughly and it had Barley AND oats!! :unsure:

I think when I eat prunes( which make you go to the bathroom) helps get gluten out of your system! Maybe you should try that sometime!

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Ashley462

Make sure that when you pick up food it says "gluten-free". I learned the hard way at first that wheat-free does not mean gluten-free.

Good luck with your learning. This site is the best for finding out answers to any questions you might have. I learn more and more everyday on this site, and after almost two years you would think I had it all figured out.

Everyday gets easier, and with time you have less accidents. :)

MURDA

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I am so glad to find this thread today. I am 57 and was a silent ( non symptomatic) celiac until last fall. A very wise nutritionist had me test for it and Lo and Behold, Celiac and caseine positive. Anyway, I have worked to get and stay on the diet and having been feeling pretty well, certainly better. The biggest difficulty for me is that now when I unintentionally get some gluten, I get really violently ill, and each oops is worse than the one before. It's like the more pure my system becomes, the more violently it reacts if exposed. I have great difficulty eating in any restaurant, and yesterday ate a half steak from Longhorn ( that was verified gluten free after long discussions with mangement and cooks, etc.). When I woke up this morning I knew I was in very big trouble. I have been in agony all day, can only lay down and rest, reminds me of a migraine, just want the world to go away. It began to ease up about an hour ago, good thing because I needed to get up and go to the bathroom and so did my dogs. I have found it very frightening to have such strong episodes when I had none when I was not diagnosed. However, where I take this lesson to is, Thank God someone recognized it and helped me to know it, Thank God I can eat wholly healthy foods and feel pretty great, Thank God I can learn from my lessons and become ever more vigilant in protecting myself. I am so grateful for all of your voices. I have been reading for several months and it is so supportive to listen to others walking the same road. Each of you/us sends out many gifts to others in our posts. Stay well and care for yourself.

Starlight

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Starlight, I am nearly 70 years old and discovered I had Celiac 3 years ago after a lifetime of problems. At first my gluten accidents were terrible. Now, they last about 2-3 days, at least with the intestinal part. Unfortunatley, I also have dermatitis herpetiformis and it takes about 3-4 days to develop. Then that part takes about 5-6 days to subside. The good news is, the accidents are now beginning to subside faster. Even the dermatitis subsides faster than before and now it subsides with only an over the counter 1% coritizone ointment instead of a steroid shot or internal steroids (which I can no longer tolerate). I think this will all get better for you, just be patient. I agree, eating out really presents a problem. Right now I only eat at El Pollo Loco, Outback and In and out and not that often. I really hate it when I have a gluten accident. I hope you can learn to adjust. It really seems to take a long time and a lot of patience. Good Luck, Shirley

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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