Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Who's From Michigan?


StrongerToday

Recommended Posts

StrongerToday Enthusiast

Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 82
  • Created
  • Last Reply
mommida Enthusiast

I'm in Michigan, lower pennisula. Freezing my behind off today, even though I'm wearing long johns.

Laura

Link to comment
Share on other sites
hkeener Newbie

I am in Michigan and newly diagnosed... I live in Ypsilanti.

Link to comment
Share on other sites
StrongerToday Enthusiast
I am in Michigan and newly diagnosed... I live in Ypsilanti.

I'm in Ann Arbor! Have you checked out the yahoo/ann arbor group? It's at Open Original Shared Link

I just joined over the weekend. I hope you're feeling better! :D

Link to comment
Share on other sites
Dangerkitten Newbie

Hi,

Another Michigander here :) just north of Lansing. The snow is just so pretty that I don't care about the cold. Makes me want to bake a nice fresh hot loaf of Bob's Red Mill bread.

Janet

Link to comment
Share on other sites
pixiegirl Enthusiast

I live on Cape Cod now but I was born and raised in Bloomfield Hills, Michigan!!

Susan :)

Link to comment
Share on other sites
redheadheather Explorer

Another Michigander (Michiganian?) here! NW Michigan to be exact.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
linz boowie Newbie
Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?

Hi, Chesterfiled ( I94 and 23mile). Celiac since birth 45 years ago.

Link to comment
Share on other sites
darlindeb25 Collaborator

I am a Lawn Guylander now (Long Island, New York) but grew up in Ashley, Michigan. Dangerkitten, Janet, I worked in St. Johns for years. My sister is celiac and a dietician in St. Johns. There is a very nice store in Lansing on the east side that is called "Food For Life". It has a wide variety of gluten free foods and I miss that store here. The owner has only the one store. Deb

Link to comment
Share on other sites
Nancy W Newbie
I live on Cape Cod now but I was born and raised in Bloomfield Hills, Michigan!!

Susan :)

I was born in Detroit but my aunt lives in Bloomfield Hills! I wonder if you know her? She lives on echo lane. I live in Miami now but I really miss Michigan

Link to comment
Share on other sites
ianm Apprentice

I grew up in the Mt Pleasant area and now live in Ann Arbor.

Link to comment
Share on other sites
BabySnooks Rookie
Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?

Hi,

I am from Madison Heights, Michigan. Was gluten-free for 3 1/2 months, now am doing a gluten challenge. I don't know why, since blood work and endoscopy were positive. Who am I to argue with the doctor, I am really enjoying my vacation from being gluten free. LOL

Sharon

Link to comment
Share on other sites
Guest Rad

Hi . . .

I grew up 30 miles northwest of Port Huron in the countryside. The nearest town is Jeddo. Am living in New Mexico now. But visit Michigan every other year; only during the beautiful summers.

Dianna

Link to comment
Share on other sites
pixiegirl Enthusiast

Nancy! I lived very close to Echo Lane! I had a horse and road him down Echo to a kids camp that was there, they had tons of riding trails there. Small world, no?

Susan

Link to comment
Share on other sites
alicegray27 Newbie

Westland MI.

Link to comment
Share on other sites
gointribal Enthusiast

I'm from MI, in the Jackson area and I was hoping I could get some help about Celiac. I know if I have it for sure or not but the doctors are checking. I had some blood work done and the only thing that was "bad" was a persecntage in the gluten blood work that they did. I had a colonoscopy done and that was fine. I am have a EDG done next month and I don't know if I should go back on gluten? I have been gluten-free for about 4 months and I can totally tell when I get it in my diet. I am at a loss as to what steps to take, I think my doctor thinks its all in my head but she hasn't said no its not Celiac. Can someone offer some help?

Link to comment
Share on other sites
StrongerToday Enthusiast

There are lots of places you can get some help, including this board. Read a lot of messages; post a lot of questions. There is no question too personal or gross (see some of the "poop" threads if you don't believe me!). Locally, I know there's a Lansing area group and a Tri-County group - I don't have the addresses off the top of my head but I"m sure you could google them. If you have trouble let me know.

IMO the diet challenge is proof enough for me. If I eat something and feel sick from it, then I shouldn't eat it. I don't need a piece of paper telling me what I can and can not eat; in my circumstances the paper is wrong. All my blood tests came back negative; but the one time I ate wheat again I was sick as a dog. I also can't process any dairy. I'm giving my GI tract some time to heal, then will try dairy again.

You may want to read Wheat Free/Worry Free and Dangerous Grains. Also, there's lots of good cookbooks out there too - those have been very helpful to me.

You'll find lots of good info and helpful people here, so welcome and good luck!

Link to comment
Share on other sites
samrenee Newbie

Hello, I am from Big Rapids Michigan. Diagnosed 2 years ago this Feb 19. I am 40 years old and work for a title insurance company. I recently seperated from my husband of 7 years. I am looking for freinds. I have been alone since I was diagnosed, there are no close support groups for me, or anyone around me with celiac disease. I was also diagnosed with Microscopic Colitis. You can email me or I have yahoo messenger. My messenger Id is: lilith_of_malroy@yahoo.com

Link to comment
Share on other sites
SofiEmiMom Enthusiast

Macomb Township, Michigan. Myself and my two young daughters have Celiac.

Link to comment
Share on other sites
  • 2 weeks later...
Danielle Newbie

I am in Kalamazoo, MI here. Diagnosed a year ago this month. Life has changed drastically but, I am surviving. :D

Link to comment
Share on other sites
printmaker81 Rookie

I'm originally from Georgia, but I am going to grad school at Cranbrook Academy of Art in Bloomfield Hills. Diagnosed about nine months ago and starting to feel like a real person again.

Link to comment
Share on other sites
mommida Enthusiast

Cranbrook!!? You are really close to me. I'm about 6 minutes north from DTE/Pine Knob. Let me know if you need help.

Laura

Link to comment
Share on other sites
  • 3 weeks later...
Guest lindzay
Hi, Chesterfiled ( I94 and 23mile). Celiac since birth 45 years ago.

hello me i changed my userID. I am now Lindzay.

Link to comment
Share on other sites
  • 2 weeks later...
Shagalynn Newbie

Hi there. From Highland. Diagnosed 2-1/2 years ago. Can't wait for the warmer weather to break.

Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?
Link to comment
Share on other sites
  • 3 weeks later...
annab Newbie

Giulio's Cucina Italiana, Gluten Free Dining in Michigan (Livonia)

Hello fellow Michiganders

I just found a great Italian restaurant in Livonia called Giulio's Cucina Italiana. They offer Gluten free entrees including different pastas with a great choice of sauces. Their website is www.giulios.us

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...