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Could More Be Going On?


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#1 danikali

 
danikali

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Posted 06 December 2005 - 09:11 AM

Hi everyone,

Well, I've been gluten free for about two weeks now.....

The first week, I noticed a lot of improvement, but the second week (since my final testing-colonoscopy/endoscopy), I am not feeling right.

Okay, so the stomach problems are mostly gone, (except yesterday I had some black coffee even though I knew I shouldn't because it causes me stomach problems somteimes) and I do have more energy, but I have noticed that since the testing, my black and blue marks have come back on my legs. This morning I couted and I had 5, mostly on my right leg close to my knee. Also, my knees (especially the right one) are achy most of the day, especially when I sit down and bend them, or when I'm walking and I put too much pressure on my right leg. Alsooo, this weird headache has not gone away for even a day, as it would usually come and go. When I brush my hair, or touch the top of my scalp in any way, sometimes, even a piece of hair, I get this nausiating, sharp pain on the left side of my head, sometimes going into my teeth.

On a positive note, I'm starting to go the bathroom, with pretty normal stools, every other day. Instead of runny diarreah or constipation. But this might also be due to I'm taking calicium, magnesium pills regularly (gluten free)

I'm eating 100% natural foods, except on Sunday I had one of those big gluten free/dairy free cookies and knew I got "glutened" or something somehow by it because I had to run to the bathroom after it and had the foul gas again. It went away the next day. I also have been eating Amy's soup most days, but I trusted it because it said gluten/dairy free.

Anyway, my question is, how serious is gluten intolerance? I tested negative for celiac disease, though I'm waiting to see the results myself so I know what tests exactly were taken. I mean, maybe it just causes me gas and bloating, but what if it isn't causing the rest of my problems? I mean, is gluten always the underlying problem when you are sensitive to it? Or could I have some other disease that no doctors have found yet? I mean, can't gluten intolerance just give me indisgestion like spicy food does for some people but not be causing everything else? I just kind of feel like this gluten thing might not be my real problem....just because it causes me gas and bloating and some weird poo doesn't necessarily mean that it is causing serious damage to the rest of my body, right? I mean, isn't it possible that it's just causing short-term discomfort but not a real health problem. The only test that even came back positive from enterolab was the IgA stool test and it wasn't high. The other tests came back normal. I'm confused! ;)
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Danielle (Dani)

Diagnosed with Celiac Disease by Dr. Green (gene HLA DQ8) 1/05/06
Diagnosed: Gluten Sensitive through enterolab 11/17/05
Diagnosed: Casein Sensitive through enterolab 3/7/06

Diagnosed: Interstitial Cystitis (IC) 07/26/06



I finally put my picture on because it doesn't look like I'll be eating ANY cake on my Wedding day..........I'm the one in the middle.

Intolerant to: (besides gluten)

Casein
Peanuts (can handle very small amounts)
Any kind of additives or preservatives

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