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Newbie With Questions
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hello, I just joined the board and am hoping to find some answers..I've had terrible stomach pain,bloating,gas,heartburn [no ulcer] for close to a year. my stomach hurts 24/7...somedays worse than others,My Gastro has given me every test he can think of,keeps telling me I have a very bad case of IBS...I don't agree,the pain is awful.

I came across this site looking for help...could someone please tell me the symptoms and If there is anywhere I can get a list of food I can eat and not eat..from what I'm reading here on the board it looks like most foods are a no-no :angry: I had a english muffin with a egg and cheese this morning and now I'm dying with stomach pain and can't stop burping

HELP PLEASE!!

thank you very much

Betty

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Welcome to this forum. I'm sorry you are having such difficulties. You are not alone though, and we are always here to help. I hope you find the answers you need.

From your description, it does sound like it could be gluten giving you those problems. This site has tons of info which can more than answer the questions you have, and the members of the forum are also a wealth of information.

Here's a link for safe/forbidden foods:

http://www.celiac.com/st_main.html?p_catid...-02105529657.e2

Here's a link to some FAQ's about Celiac:

http://www.celiac.com/st_main.html?p_catid...-18105508857.9d

The best test for being gluten intolerant is the change of diet. If it works, that's really the best indicator, as many here have found. It may appear like most foods are a no-no, but it's really because the typical American diet is centered around wheat. Take a look at your current diet, and you will likely see meal after meal of wheat based foods. That's not unusual, but don't be discouraged. Once you discover all the foods you have been missing out on all your life, you will not miss the wheat so much if at all. Especially when you find out how much better your health can be.

My personal view is not to wait for a doctor to recommend the gluten-free diet. Try it right away, and if it works, you'll be that much better off for it. Many do decide to get an official diagnosis, though I haven't and don't plan to.

Many will tell you how the recovery time can vary widely from person to person. Some see an almost immediate response, while for others it takes months. For me it was about 6 months before I started seeing any improvement. It depends on many factors, not the least of which is the extent of the damage to your insides.

Edited by RiceGuy
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Thank you very much for your help. I feel overwelmed at this point...I just looked through my cabinets,not much I can eat :angry: I will try a plain chicken breast with potato tonight..my dr. has given up on helping me....we've tried all the tests and meds he can think of, no help...keeps telling me to eat light and stay away from butter and high fat

any help is very much appreciated..ready to give up before I start!

Betty

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Hello and Welcome! I'm pretty new here myself, but have learned *tons* from this website - read everything you can get your hands on!! Has your dr. run any Celiac tests? If not, and you want to be tested (both blood and stool) then you need to be consuming gluten - at least for the blood tests. OTOH, my blood panel came back perfectly "normal", as lots of other people's have. I don't need the paper to tell me I'm having wheat and/or gluten sensitivities. Truly the best test is to cut out all gluten and see how you feel. I've been blessed to have a good doctor, a friend who's a nutritionist who has helped me a lot, and access to the internet so I can check this website daily!! Good luck and don't be afraid to ask questions.

Hope you're feeling better soon...

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thank you for the encouragement...there is just so much info,my head is spinning :blink: still trying to find a good list of foods I can eat and not eat.

If gluten is the problem,then wouldn't my pain be severe everyday? I have been eating it everyday but somedays my pain,bloating hearburn is not as bad as other days

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    • I_would_widen_the_search_to_your_whole_environment.....Carefully_consider_what_else_was_different_when_you_felt_better.
    • Thanks a lot for your advice and the link. I will surely check upon GCED. But, doesn't a negative HTTG (can't do IgA ttg as IgA deficiency) result mean that I am not exposed to gluten ? 
    • Thank you for going through my long post and responding. I have been both dairy and gluten-free free for 10 months now. Yes, even I was worried about other food allergies. I mentioned it to my GI doc and asked if I need food allergy test to eliminate other allergens. He said, food allergy tests give a lot of false positives and are not accurate. He said: not everything is because of food allergy and it's refractory celiac which is causing issues as the jejunum biopsy, done recently, is showing villous flattening.

      My doubt: 1. If I have so much damage in my small intestine (villous flattening) then how was I keeping fine for 6-7 months ( eating eggs, soy, rice and meat) - was constantly losing weight though - but was able to work out regularly - not much fatigue. 2. If it is other food allergens ( out of mentioned allergens, I take eggs, soy chunks, almonds only) why does it happen only few times and not always - I keep well for 7-8 days and then fall sick again - this without any change in diet.  
    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
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