Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Anyone Have Any Vacation Recommendations?


buluga

Recommended Posts

buluga Rookie

I've read and searched this message board, but I didn't find anyone's recommendations about where they would/could go for gluten-free travel. I was diagnosed in March, and really haven't traveled since. I want to go somewhere warm this winter - Florida, Caribbean, someplace to escape the Boston winter. But in addition to the complications of finding the time and a place that my wife and two young daughters want to go to, now I have to find a place that can accomodate the gluten-free diet.

Has anyone taken a vacation to someplace warm where you know that gluten-free food was no problem? If you were me, where would you go (both with and without the children)?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Disneyworld.

richard

Link to comment
Share on other sites
hez Enthusiast

Our family has recently strugled with this (I am the one with celiac disease, not the kids). We ended up booking a disneyland vacation for spring break. The kids will have a blast and I should be able to eat!

Hez

Link to comment
Share on other sites
buluga Rookie

Anything other than the Disney experience? I was thinking someplace quieter. Someplace I could sit on the beach and go out for a nice meal and not worry about being sick. Anyone been anywhere like that?

Link to comment
Share on other sites
tarnalberry Community Regular

If you go someplace tropical, and rent a condo, you can cook your own food and avoid the risk of contamination. On the other hand, Europe could be a good place as well.

Link to comment
Share on other sites
Jnkmnky Collaborator

San Diego, California is nice. There's LegoLand, The S.D. Zoo, SeaWorld, the beaches, Tijuana, Mountains, the Missions, Hollywood... so much to do. And WholeFoods, Trader Joe's, Boney's, Henry's, Outback Steakhouse, PF Changs. It's nice! B) Oh, and a Disney World, too... I think.

Link to comment
Share on other sites
traveljunkie Rookie

Buluga,

I can relate to your post. My son and I became gluten intolerant in Febuary after taking strong antibiotics. It took months before we found out what was wrong with us. We are healing but had to cancel a trip to Italy in May. We are going to rebook our trip in a year or so after we feel comfortable travelling so far away. In the meantime we have booked a march trip to Oahu. We have booked a vacation house and will cook most meals just for peace of mind. I have researched restaurants that offer gluten-free menus. It was pretty easy. If I were you, I would figure out the destination, then research gluten-free restaurants and stores that sell gluten-free foods. Good luck and have fun.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluelotus Contributor

I took a Carnival cruise in August to the Carribean (sp?). They did a pretty good job. I spoke with the head chef the first day and told him about my situation. They seemed used to dealing with allergies/intolerances. They asked that I not eat at the buffets b/c of cross contamination, but they were more than happy to serve me food either in the restaurant or through room service. I ordered everything plain (plain meat, potatoes, veggies, hamburger patties - specifying that they could not touch a bun, etc). You can bring dry goods on board too, so I brought chips, cookies, and cereal. They tell you not to bring items that need refrigeration, but I did b/c I knew that they had a little room fridge in there - took out their snickers bars and stuffed it with my soy milk!

Search under the travel discussion - I think others have posted about their cruise line experiences too.

Link to comment
Share on other sites
pixiegirl Enthusiast

I'm cruising in 3 weeks on the Windsurf, operated by Windstar Cruises (owned by Holland America) and we cruised with them before. When you notify them of your gluten-free status they tell you they will do their best and that they only have one kitchen, however everyone on the ship went out of their way for us. The Maitre de, the Chef and our waiter. I wasn't glutened once. At every meal the Maitre de came to me and told me what I could eat (I got to the buffets first before cross contamination happened) and they had a barbeque on deck for lunch every day where they would cook my food separately. Also at every meal you had the option of going in the dining room and whenever I did the chef would offer to make almost anything on the menu gluten-free for me, also he made me a lot of things that were NOT on the menu. (special desserts).

Windstar is a small cruise line with big sailing ships so they do not stock gluten-free foods for me, however I understand that on Holland America's larger ships they do supply gluten-free food as long as you tell them a month in advance of your food issues.

Because of the smaller ship its a very relaxing cruise and you go to lots of smaller ports and islands that the big ships can't stop at.

Susan

Link to comment
Share on other sites
debbiewil Rookie

There's a couple in Maryland (Baltimore area) that does a gluten free dining and travel club thing. They arrange a couple of trips a year - cruises and the like - that are all gluten free. The site is Open Original Shared Link

FYI, they've got a ClubMed adults only planned in Feb., a ClubMed family getaway in July, an Alaskan cruise in May, a tour of Ireland and Scotland, also in May, a Kenyan safari and a tour of the Orient (China, Thailand, Cambodia) coming up later in the year. Maybe more stuff. There's a membership fee to join the club, and of course the cost of the getaway or cruise or whatever, but it's not that expensive, and if you want to do some travelling, might be a good idea.

Debbie

Link to comment
Share on other sites
hsd1203 Newbie

How about Kauai? Long flight from Boston but worth it if you can stay at least a week. I really recommend renting a condo or cottage and not risking cross contamination or gluten at every meal... plus, celiac or not, who wants to eat restaurant food 3 meals a day for a week anyway, ick. So my advice it to check out vrbo.com (vacation rental by owner)... it can save you a lot of $ and I've had 2 good experiences, one on Maui and one on Kauai, with them. The last one we stayed at had a bbq grill, which was great b/c my hubby did a lot of the "cooking" and you just can't beat fresh fish on the grill. yummy.

Happy vacation planning,

Heather

Link to comment
Share on other sites
buluga Rookie

Thanks for the responses everyone! Gluten-free travel isn't thoughtlessly easy, but then what is these days?

I looked at the Bob & Ruth's but I was hoping to get more flexibility by booking something like Club Med myself. I e-mailed Club Med, and they sent me a form letter about food they offer like spaghetti and meatballs! Thanks a lot.

I wonder if there are any resort-type places like that (that offer organized kid activities!) which at least know about and offer choice for gluten-free vacationers!?

Link to comment
Share on other sites
debbiewil Rookie

Hmm, I saw a summer camp program someplace that offered a week or two during the summer for gluten-free kids.Everything that week was gluten free. I'll have to see if I can find the place again - it was last summer when I saw the info on it, and I don't remember where or what the name was.

Debbie

Ok, check this website:

Open Original Shared Link

I believe this is last year's list, but many of them will be having programs this year too. Contact anyone that sounds interesting and see.

Debbie

Link to comment
Share on other sites
bluelotus Contributor

I only skimmed the article, but it seems there may be a gluten free bed and breakfast, sorry if I am wrong, don't have time right now to read it all the way through

Open Original Shared Link

Link to comment
Share on other sites
debbiewil Rookie

Open Original Shared Link will let you search for inns and B&B's that will prepare gluten free meals. It's one of the search options you can put in. I looked for my state (MD) and only found 2, but there are some out there.

Debbie

Link to comment
Share on other sites
eeyor-fan Contributor
I've read and searched this message board, but I didn't find anyone's recommendations about where they would/could go for gluten-free travel. I was diagnosed in March, and really haven't traveled since. I want to go somewhere warm this winter - Florida, Caribbean, someplace to escape the Boston winter. But in addition to the complications of finding the time and a place that my wife and two young daughters want to go to, now I have to find a place that can accomodate the gluten-free diet.

Has anyone taken a vacation to someplace warm where you know that gluten-free food was no problem? If you were me, where would you go (both with and without the children)?

I'd reccoment England. Much more available for Gluten Free Products (at least Yorkshire) and the general population is much more educated on gluten-free. It is more open there, I guess because diagnoses is higher in Europe. Also a once in a life time place to see!

Hugs

Bridget

Link to comment
Share on other sites
  • 4 weeks later...
CeliacMother Newbie
Thanks for the responses everyone! Gluten-free travel isn't thoughtlessly easy, but then what is these days?

I looked at the Bob & Ruth's but I was hoping to get more flexibility by booking something like Club Med myself. I e-mailed Club Med, and they sent me a form letter about food they offer like spaghetti and meatballs! Thanks a lot.

I wonder if there are any resort-type places like that (that offer organized kid activities!) which at least know about and offer choice for gluten-free vacationers!?

I definitely understand! My 14 year-old son and I were both diagnosed with celiac disease last year. We went to Florida last summer for 2 weeks and ended up sick a few times after eating out and "being careful". Gluten seems to be hidden everywhere and many chefs just don't get it.

We're heading to Beaches Resort in Turks and Caicos next month. It's an "all inclusive" resort with 10 restaurants. I've been reassured that the chefs are very accomodating. I'll let you know!!

Link to comment
Share on other sites
Rusla Enthusiast

I would recommend Cuba but being in the US you are prohibited from visting this beautiful place.

Link to comment
Share on other sites
Guest BERNESES

I would have to agree- Kauai is GORGEOUS! I would also recommend San Francisco. It won't be terribly warm but the food is incredible. So many gluten free options. I was out there in June and didn't get sick once. Also, maybe Scottsdale AZ area. They have a great restaurant called Thai Foon that has a gluten-free menu, some gorgeous resorts and spas, good shopping, lots to do. It's warm, you can travel to Tuscon, Sedona and the Grand Canyon from there.

I'm going to Turks and Caicos in a month. A little nervous but we have a kitchenette so that should help. Also, before I was "really" sick (but clearly symptomatic), we went to Costa Rica for our honeymoon and that was great- lots of fish, meat, rice, beans. The only time I got sick there was after going out for pizza at a restaurant owned by Americans. If you want any recommendations about San Francisco, Arizona, or Costa Rica, let me know. I'd be happy to give you details.

Link to comment
Share on other sites
fisharefriendsnotfood Apprentice

I went on a cruise with Royal Carribean to the Western Carribean. It was great! They were really good about the food and everything. You just have to tell them beforehand. All we had to bring was cereal, really. They even made a few gluten-free desserts for me. They give you bread (it's actually really good). It was so much fun!

-Jackie

Link to comment
Share on other sites
Carriefaith Enthusiast

I've heard that a lot of the cruises are quite accommodating. I'm going to try going on a Mediterranean cruise.

Link to comment
Share on other sites
Rusla Enthusiast

I am off to Jamaica in a couple of months will let you know about the resorts etc., down there.

Link to comment
Share on other sites
chelbel Newbie

Norweigan Cruise Lines was wonderful when it came to my diet restrictions. Not only were they very aware of what was needed, but they had Gluten-Free bread available the first night I was on the cruise ship (I didn't give them any advanced notice). There wasn't even one mess-up, so I would definitely recommend them.

Link to comment
Share on other sites
killernj13 Enthusiast
I took a Carnival cruise in August to the Carribean (sp?). They did a pretty good job. I spoke with the head chef the first day and told him about my situation. They seemed used to dealing with allergies/intolerances. They asked that I not eat at the buffets b/c of cross contamination, but they were more than happy to serve me food either in the restaurant or through room service. I ordered everything plain (plain meat, potatoes, veggies, hamburger patties - specifying that they could not touch a bun, etc). You can bring dry goods on board too, so I brought chips, cookies, and cereal. They tell you not to bring items that need refrigeration, but I did b/c I knew that they had a little room fridge in there - took out their snickers bars and stuffed it with my soy milk!

Search under the travel discussion - I think others have posted about their cruise line experiences too.

I took a Carnival Cruise in August and thought they did a great job in the dining room to accomadate my celiac disease as well. What ship were you on? I basically handled it the same way you did. I even ate at the outside grill. The meat was cooked on the grill with the buns on a plate and all they cooked where burgers, dogs chicken and steak. No breaded chicken fingers or stuff like that so I felt it was safe.

Also, I have read some of the more expensive cruise lines will even bake you gluten-free bread etc. Carnival did not offer this much accomadation.

Link to comment
Share on other sites
  • 3 weeks later...
sick&tired Newbie

I am going to Costa Rica in a month. I'm havina Spanish speaking friend write up some info cards for me for restuarants. (I know you can get it here.) I plan on eating lots of plain fruits, veggies, meats, and beans and rice. It sounds like a lot of their traditional cooking would be gluten free except for wheat tortillas.

-Bobbi

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748

    Aventine
    Newest Member
    Aventine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
×
×
  • Create New...