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Just Diagnosed


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8 replies to this topic

#1 melsy

 
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Posted 08 December 2005 - 10:02 PM

Hi,
This is my first time here. I hope this is the correct place to post this. Sorry if it's not.
I have recently been diagnosed with Celiac disease. I am 25 and live in Australia. For most of my life I have been sick. I catch everything going under the sun. Someone could sneeze at one end of the office building and the next day I'd have caught the cold. I've also had stomach pains since I was a child. I was sent to doctor after doctor and poked and proded and no one could tell me what was wrong until recently. For the last few years I've been on antibiotics every month or so and a few months ago I was on my third lot of antibotics in a month when I was finally tested for celiac disease (which I had never heard of). It's now been 6 months and I haven't been sick or had to take any medication. It's unbelievable. I even have my energy back which has been missing. I had days where I could barely lift my arms above my head. Now youcan't stop me. It's made an amazing difference.
Here in Australia I don't think there is enough awareness made about celiac.

I'm still trialling different foods which has been difficult with gluten-free labeling not great over here.

For any other Australian members I have discovered the cadbury website has a list of their gluten free chocolate. thank goodness, I can't live without my chocolate fix. Also if you email Masterfoods they will send you a very detailed list of their gluten free products.
I hope this helps others.

If anyone has any information about foods, diet etc... I'd really appreciate it.

Thanks for the great forum :)
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#2 elonwy

 
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Posted 09 December 2005 - 07:46 AM

Welcome to the forum. I'm in the US, but I lived in Queensland when I was a kid, so HI.
I myself just got diagnosed in July. Welcome to a whole new world huh?
I accidently found the kraft list for australia one time.
http://www.kraft.com...Page=glutenfree

Foudn this too, thought its for aussies living outside australia
http://www.ausfood.c...ex.php/cPath/32

Is vegemite gluten-free? I suppose not, as its made by Kraft, and I didn't see it on the list. I'm on of those wierd people who likes it with kippers on toast. Its weird here at least.
Hope you fiind good stuff. I have to go feed the cat now before she kills me.
Elonwy
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Positive Bloodwork 7/8/05
Inconclusive Biopsy 7/20/05
gluten-free since 7/23/05
Never felt better.


"So here's us, on the raggedy edge, come a day when there won't be room for naughty men like us to slip about at all. - Malcolm Reynolds"

#3 Rusla

 
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Posted 09 December 2005 - 09:53 AM

I am also a recent diagnosy from Canada. There isn't a lot about in my neck of the woods either. Wish I lived in BC where they have tons more stuff for Celiac's.
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Rusla

Asthma-1969
wheat/ dairy allergies, lactose/casein intolerance-1980
Multiple food, environmental allergies
allergic to all antibiotics except sulpha
Rheumitoid arthritis,Migraine headaches,TMJ- 1975
fibromyalgia-1995
egg allergy-1997
msg allergy,gall bladder surgery-1972
Skin Biopsy positive DH-Dec.1 2005, confirmed celiac disease
gluten-free totally since Nov. 28, 2005
Hashimoto's Hypothyroidism- 2005
Pernicious Anemia 1999 (still anemic on and off.)
Osteoporosis Aug. 2006


Creative people need maids.

#4 Canadian Karen

 
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Posted 09 December 2005 - 12:18 PM

Rusla,

Where is Canada are you?

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
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#5 Rusla

 
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Posted 09 December 2005 - 12:41 PM

Rusla,

Where is Canada are you?

Karen



I am in Calgary, AB., Karen.
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Rusla

Asthma-1969
wheat/ dairy allergies, lactose/casein intolerance-1980
Multiple food, environmental allergies
allergic to all antibiotics except sulpha
Rheumitoid arthritis,Migraine headaches,TMJ- 1975
fibromyalgia-1995
egg allergy-1997
msg allergy,gall bladder surgery-1972
Skin Biopsy positive DH-Dec.1 2005, confirmed celiac disease
gluten-free totally since Nov. 28, 2005
Hashimoto's Hypothyroidism- 2005
Pernicious Anemia 1999 (still anemic on and off.)
Osteoporosis Aug. 2006


Creative people need maids.

#6 fisharefriendsnotfood

 
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Posted 09 December 2005 - 01:23 PM

Karen, I'm also in Toronto.

-Jackie
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14 years old
Diagnosed with celiac disease in 1993
Totally gluten-free since 1993

"All there is in life is wheat...Oh, wheat! Lots of wheat! Fields of wheat! A tremendous amount of wheat! Yellow wheat. Red wheat. Wheat with feathers. Cream of wheat!" - Woody Allen, Love and Death

#7 elye

 
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Posted 09 December 2005 - 02:37 PM

Karen, I'm also in Toronto.

-Jackie


And to round it all off nationally, I'm in Ottawa. I've also found that, at least in this part of Canada, there's very little variety in gluten-free foodstuffs. And the prices! Don't get me started! Anyone know where I can get a loaf of gluten-free bread for under five bucks?
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Emily

diagnosed type one diabetic 1973
diagnosed celiac winter 2005
diagnosed hypothyroid spring 2006

But healthy and happy! Posted Image


11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!

The great are great only because we are on our knees.
--Pierre Joseph Proudhon (1809-1865)

#8 creid

 
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Posted 09 December 2005 - 06:11 PM

HI!

I am Australian too, but living in the US. I had been to doctors in Oz and here, 26 years and two countries later I finally have an answer....I'm not a wierdo! Just wanted to say HI.

Elonwy- Thanks for the link to the Australian food website, I will be using it :)
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#9 melsy

 
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Posted 10 December 2005 - 07:36 PM

Thanks for all the advice, I really appreciate it.

I went to a Christmas Party last night which is hard because trying to work out what I can eat and not does take some of the fun out of it. Anyway we each had to bring a plate of something to share with everyone and I found out there was another girl who also suffers from celias and she brought a gluten free cheesecake. Wow it was fantastic, exaclty like I remember normal cheesecake! I didn't realise how much I missed it until I tried it again. She's sending me the recipe which I'll post on here when I get it.

Thanks again for all the advice and for the links elonwy. :)
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