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Glutenyzme Plus
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I found this website through a link off of ebay.

http://www.ventris.org.uk/health_supplemen...zyme_b14730.htm

Has anyone tried this and does it work??? I know I'm grasping at straws, but it made me cry when I read it and I was hoping maybe someone had some success with it...

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It says that people with Celiac Disease should not eat these grains anyways. Its not going to stop the autoimmune response from occurring so I don't see how it would be helpful. Sorry. :(

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I read this...

"In individuals with coeliac disease other factors must be considered and avoidance of cereals containing gluten may be advisable."

I was more interested in possibly being able to enjoy stuffing at Christmas or Thanksgiving than going back to a gluten diet. I was hoping maybe someone had tried it for cheats. I got really sick after Thanksgiving and ended up sleeping 3 days away all for 1 serving of stuffing. I just couldn't help myself.

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Yea, I think that's what everybody is hoping for someday. Something that would allow the occasional yummy cheat without the antibodies attacking the intestines. I'm a big proponent of alternative medicine, supplements, etc. But since this is just something that helps DIGEST the gluten, it wouldn't do anything to block the body's autoimmune reaction, and the antibodies would still go on the attack. I guess it might keep you from having as bad of a reaction bathroom-wise, but you would still be damaging your intestines. You'd probably still get the brain-fog, tiredness, etc. too.

Personally I'm anti-cheat, but I wonder if there's anything out there for post-glutened symptoms for the times you get contaminated...

Nancy

Edited by Nantzie
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This is what it states further down the page:

Glutenzyme Plus is a digestive enzyme complex specifically designed to break down the gluten proteins in cereals and grains. However, people with coeliac disease should still avoid eating the grains.

Personally, I would skip the gluten foods and enjoy the holidays (w/out being sick). :)

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Make your stuffing w/ gluten-free bread or rice and enjoy it without risking damage.

The problem with enzymes like that is 1) the gluten peptide is VERY hard to break down, 2) they need to break the peptide in the right place, as it's only a small portion of the protein that we react to, 3) you don't know which glutens it's talking about - which plant's protein, and 4) you can't be sure that all of the gluten protein molecules you consume are broken down.

Definitely not worth the risk.

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I believe you or anyone else, cheat at your own peril. No, you will not die on the spot. Maybe you won't even feel any discomfort - but somewhere inside your body gluten is doing a number on you - your intestines. your joints, your brain. Can it possibly be worth it? Claire

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I am making the stuffing out of gluten-free bread this year and the gravy out of cornstarch. Why suffer when you don't have to suffer.

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    • Hi Beachgrl, It won't hurt anything to go gluten-free now, except the possibility of getting a diagnosis of celiac disease.  When i went gluten-free, it seemed like the initial changes were spread over about 6 weeks.  I had gut spasms for that time.  And other changes, all for the better.  Initial recovery from celiac damage can take up to 18 months, so it can be a slow thing.  Some people get better much faster of course, because we are all individuals and not identical. Going gluten-free for celiac disease is a lifetime commitment though, and some people have a hard time doing that without a diagnosis.  Even minor amounts of gluten can cause us to react, so it is best to eat a very simple diet of whole foods at first.  Avoid dairy and processed foods.  I hope it works out for you.  I know some people with Crohns disease eat gluten-free and find it helps them.  Gluten is a tough thing to digest for all people, but most don't have an immune reaction to it like celiacs do.  
    • Honestly, I would not trust the school to provide a gluten-free meal except for fruit, salads, veggies, etc. I sub in a school cafeteria and I swear everything is breaded or on bread. Utensils are shared. They're very clean but unless you have a very knowledgeable person in there, I just wouldn't chance it. I found a slim Jim type snack that says gluten-free on it. If you want to give me your email or FB account, I can send you some very valuable info on 504's though. They carry the student right through college. I kept a copy of what a friend wrote about her daughter being in a sorority and just how the 504 helped immensely. But, I would definitely get one and still be prepared to pack a lunch. All our meals are delivered frozen and we just hear them up. If your school actually fixes food, that's different. 
    • Oh, I would suggest providing gluten-free goodies (e.g. Candy) or even a frozen cupcake (kept in the teacher's freezer) in the event of a party.  My daughter's classmate is severely allergic to peanuts.  Her mom did that and Abby was never left out!  😊
    • Hi Nobody, Welcome to the forum!  I noticed you said you have been avoiding wheat products.  That's good, but are you avoiding rye and barley also?  Wheat, rye, and barley are the 3 grains that cause reactions in celiac patients.  About 10% also react to oats. If you haven't had the full celiac antibodies test panel, it might be worthwhile getting that done now.  The ttg is just a basic test and is generally followed up by an endoscopy or the full celiac panel. I wouldn't worry a lot about getting cancer.  That doesn't happen often. It is possible some of the other grains you might be eating are contaminated.  A group did a test on several off the shelf products a few years ago that would not normally be thought of as having gluten and found some actually did have low levels of gluten.  Things like corn meal for example.    
    • I can not help you with the the 504 plan, but I do know that I would do it.  My daughter is 15 and so far has tested negative for celiac disease, but in the event she does test positive, she will need a 504 plan to help keep her safe.  I am sure other parents will chime in.  This topic has come up repeatedly.  Until then, try a search with the forum.  Lots of people have posted with their comments and experiences.   As far as lunch is concerned, my kid has not purchased a school lunch since the 1st grade.  She says they are gross.  (Poor me!).  But, I would not trust the school to provide a gluten-free lunch.  Sure, they are required by law, but let's face it, who is working in the kitchens, ordering, etc?  I am on a University campus and have called out food service for not following gluten-free safe practices!    I would pack a lunch, at least until her health has stabilized.  The 504 plan is great for extra trips to the bathroom and hand washing.  It provides some protection in the classroom.   Keep advocating for her Mom!  You are doing a great job!  
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