Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

How Soon After Becoming gluten-free Should I Get Blood Re-tested?


jkmunchkin

Recommended Posts

jkmunchkin Rising Star

I have been gluten-free for close to 6 months now. I know once you are established on a gluten-free diet you usually only need to visit your GI once a year but I vaguely remember hearing something about getting your blood test done at 6 months when you initially start on a gluten-free diet to see how your numbers are. Does anyone know? If this is the case I'd like to think about making an appointment in the next couple of weeks.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aljf Apprentice

I heard that--

I saw Dr. Susie Lee at the Columbia U Celiac center, and she suggested doing follow-up blood work after 6 months and then a re-biopsy after a year.

(She also had me get a bone density scan.)

She's really good-- I recommend her!

Link to comment
Share on other sites
par18 Apprentice

I had a blood test after about 6 months but not for levels of anti-bodies. Because I responded so well to diet and feel so good I was only checking things like blood sugar. I had a bone density test done about a month after Dx. I would probably get annual bone scan before blood tests if I still feel good with none of the previous celiac disease symptoms.

Link to comment
Share on other sites
julie5914 Contributor

I was still having a lot of trouble, so I was retested at 3 months and will be tested again (I hope) next week at 6 months. I really hope the numbers are down this time since I feel better after nixing dairy. Then I will go to doing a yearly check-in on it. I never had endoscopy - I wouldn't do that at 6 months after because of cost and trouble - the blood test should be enough to show progress. If my blood numbers are still super high I may do endoscopy, but if yours are down from last time and you're feeling better, I'd skip it and stick with the blood numbers.

Link to comment
Share on other sites
skoki-mom Explorer

I think it depends what "numbers" you are testing for. My GI told me that it was pointless to do antibody testing as the antibody titre is not a good predictor of disease. For instance, if my antibody level was half of what it was before, it does not mean I am 50% better than I was before. However, if you are testing for anemia and nutrient levels and stuff, I'm really not sure because I'm not getting tested for those either any time soon as they were all normal at the time of Dx. There is no reason they would decline with me on the diet. I will probably have another scope sometime in the next year, though, to find out what is going on in there.

Link to comment
Share on other sites
jerseyangel Proficient

I had the CBC and metabolic panel done at 6 months because I was anemic and my white cell count was low and a few other things were out of range pre DX. I will be seeing my GI the first week of Jan. -- don't know if he will do any more testing.

Link to comment
Share on other sites
julie5914 Contributor

My doc will be doing antibody testing because she says there will be no antibodies produced if there is no gluten to react to. And the tTG will show if damage is still being done. That's why we have to be on gluten for several weeks before a diagnosis blood test, right?

It's true that it won't show if you are healing, but it will show that you're not having reactions anymore and that the diet is working.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,465
    • Most Online (within 30 mins)
      7,748

    Tra9
    Newest Member
    Tra9
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @LimpToeTheTimeless Bone growth plates close in the late teens to early twenties, so it's doubtful you'll grow much taller, but you may start to bulk up in muscle.  Remember to boost your absorption of vitamins and minerals needed to build muscle by eating a nutritionally dense diet and supplementing with essential vitamins and minerals, especially Thiamine B1, to counteract the malabsorption caused by Celiac Disease. Keep us posted on your progress! References: The effects of endurance training and thiamine supplementation on anti-fatigue during exercise https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4241913/ A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10542023/
    • B1rdL0ver
    • shadycharacter
      Fermentation breaks down some of the gluten in wheat. Nowhere enough for a wheat dough to become gluten free, but the gluten may be significantly reduced. I think some pizzerias make the dough the day before and leave it overnight. The longer the microbes are acting on the flour, the better.
    • LimpToeTheTimeless
      I am M 21 and I diagnosed myself after a week of fasting and slowly reintroducing stuff in my diet except gluten, I had terrible eczema scars ,dandruff and brain fog, now I am free after 6 years of just pain, I am 6'2, will I grow taller? And since I am a gymnast will my muscles grow like quicker, cause before no matter how effort I put in I just couldn't. 
    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
×
×
  • Create New...