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Cod Liver Oil
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All I can say is that my muscle and joint pain is much better since starting on a good magnesium (ionic). Infact magnesium does a lot for Celiac patients. Too much calcium can be toxic and magnesium is needed to assimilate calcium and doesn't have toxic levels...I have put links to a few good articles on other post about magnesium if you do a search you will see a lot of good discussion on it. It really makes a huge difference.

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Thank you Lisa,

I picked up some Now Foods Calcium, Magnesium, and Vitamin D powder, and added it to my diet. I like that it says

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Thomas,

Now you got me looking into Cod Liver Oil and Vit D and it is really good that you got the Cal/Mag/Vit D combo (I love NOW, they are a great company). Vit D helps with S.A.D., which I suffer from in a big way and it helps with Calcium retention in the bones and many other things. Only caution is that we probably need more Magnesium than Calcium in our supplements to get caught up, many symptoms people talk about having can be a toxic Calcium build since there is so much Calcium "fortification" going on around us. But of course that depends on how long you have been eating more whole foods and staying away from processed. One article said "symptoms of magnesium deficiency such as sleep difficulties, body tension, fatigue, muscle spasms or stiffness, heart conditions, PMS, depression, dispersal, diabetes, osteoporosis, asthma, nervousness, constipation" would mean you may have to look at correcting low Magnesium levels. Long story short, sometimes what looks like a Calcium deficency is actually Calcium overload. Anywho...Cod Liver Oil is a source high in D and I always like the whole food sources so I think I am going to get some as soon as possible, thanks!

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Hey, I just read something on one of the articles on D that I found and thought I would share it, it said

Individuals who have reduced ability to absorb dietary fat (fat malabsorption) may need extra vitamin D because it is a fat soluble vitamin. Some causes of fat malabsorption are pancreatic enzyme deficiency, Crohn
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And now that summer is getting started, don't forget to get out in the sunshine (sans sunblock) for a few minutes a day for additional vit D production.

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Yes, good point, one article I read mentioned the medical field noticing an increase in lack of Vit D due to extensive use of sunblock. Saying giving your skin at least 15 minutes of sun a day is needed for the skin to produce D.

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I was always told to expose the bare skin of the face, hands, and forearms for 15 minutes four times a week to avoud vitamin D deficiency. It is not long enough to get sun damage. It does help the mood to improve, too! Sunlight, sunlight, in my soul today!

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I also have to mention that I noticed that I get muscle cramping after staying inside because of rain. My cramps cleared up with additional sunshine and supplements. :D

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I found this study on cod liver oil on line:

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I am definitely going to have to try it. The last two years have been agony on my joints!

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Hi Dessa,

I was wondering if you knew anything about the joint pain associated with celiac disease. When I did research on fibromialgia, I read where the joint pain was

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Yes, Thomas, I had heard of that. Sadly, my joints are damaged by arthritis. The doctor ran blood tests, and found way more of the osteoarthritis proteins than a woman my age should have (according to her, anyway!). I had been told by a different doctor that I have rheumatoid arthritis, but the proteins are not in my bloodwork. Since I do not feel like I am getting aggressive treatment from my doctor, I am looking for whatever I can do to help myself. I tried glucosamine, but my joints really swelled bad and I was in extreme pain. I do not understand the reaction, but the pharmacist said it could have been an allergic reaction to shell fish. I don't have the bottle, and I can't remember the brand, so I don't even know if it was made of shellfish! I just want to feel better all over!

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Hi Dessa,

I've been using Now Foods glucosamine with some good results. Their glucosamine does come from shell fish, and the odds are that the glucosamine you took was from shell fish. There are some other products out there now that are not from shell fish. Maybe one of these might work for you. One problem with glucosamine is that it is a sugar, so if you have diabetes it could present a problem.

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    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
    • Hey guys, the last year and a month of transitioning to totally gluten free was hard, but I now seem to be healthy. The first six months I got horrible cramps that would suddenly come and hit hard, but I really havent seen any of those since about February-March. One thing that I wouldnt say has gotten better is my psyche. I was always sort of an anxious person (hard not to be when you dont feel well yet you have "IBS" and you're just "nervous", which all of you probably know), but I am borderline hermit now. I finally went to the doctor today and was prescribed prozac, so hopefully that helps, but I was just wondering about you guys? Thanks  
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