Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Reassurance Needed
0

8 posts in this topic

I am newly diagnosed and have been gluten-free for 2 weeks today.

My symptoms were gastro-intestinal, starting off easily ignorable, and into 'I can't leave the house often bad'. I've suffered for 15 months before finally finding out what was wrong. (I went to a lousy GI at first who wasted time and money) I was diagnosed by biopsy and blood tests.

I was wondering if any of you with the same gastro symptoms as me could share how long it took for the bathroom problems to slow down or stop after you went gluten-free. It's been 2 weeks and while a lot of the cramping and pain has lessened the frequency hasn't yet. I am fairly certain I have not had any gluten sneak in as well.

I know it won't be an instant thing, but I can't wait until it does finally happen and I can get back to normal again.

Thanks.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Laura - Welcome to the board.

Everyone here is so friendly and helpful. They will try to answer any questions you have. I know they have been very supportive to me :) . I have been gluten-free since Aprill, and have learned so much here.

From reading some of the posts, I have noticed that everyone is different in how long it takes for being gluten-free to help with all of the symptoms.

Have you checked into things like soaps, shampoos, lotions, etc. to make sure that they are gluten free? I know that I thought I was gluten-free until I read the label on the vitamins I was taking.

I also learned here that after I feed the dog (dog food is made with wheat), or giving her a treat, I need to wash my hands.

When I prepare my food, I wash down the counter first, or prepare it directly on a plate or paper towel to prevent cross contamination. This is a huge problem :o .

I don't want to overwhelm you with suggestions. Please write back with questions, and read the postings on the board. They can be very helpful.

Good luck!

Cindy

0

Share this post


Link to post
Share on other sites

Hi Laura--Welcome! and congrats. on getting through the first 2 weeks! I would add that 2 weeks is still a relatively short time to expect to feel great changes. The cramping and pain are improving, that is a positive sign :) . At this point, I agree with Kevsmom. Make sure that all the gluten is out. Toaster, collander, wooden utensils, countertops, personal care products, meds., etc. If you eat out, ask about all foods and remember cross contamination is a big problem with eating out. (I personally avoid it as much as possible). It is a gradual process, the healing, and is different for all of us. I didn't start to feel better until the 4th. month. You will feel a lot better--you're off to a good start. Come here and ask questions anytime.

0

Share this post


Link to post
Share on other sites

Hello Laura and welcome to this great forum! :)

First, everyone heals at different rates, but it sounds like you're on the right track! For myself, my toilet troubles stopped within days of going gluten free. But, I did notice other foods would cause tummy problems. I became sensitive to cheese and yogurt,(the only dairy I ate) corn, and a few others. I notice that now that I've been gluten-free for 6 months, I can have a little of the mentioned foods with no reactions. But, if I eat to much or too often, I'll have diarrhea for a day or two. It takes a while to figure it all out, but you will, and you'll start to feel great.

Like some of the others posted, make sure you are completely gluten-free, this includes products that could get in your mouth, such as lotions, lipsticks, etc. It sounds complicated, but once you find gluten-free products you like, just stick with them. I find the best gluten-free body products at health stores.

Good luck!!

Charlene

0

Share this post


Link to post
Share on other sites

Hi Everyone....I am newly diagnosed as well...(December 8th). The question of 'when is it going to better' is the only one I have right now. The depression is killing me but I had my first cookie today....from a gluten-free bakery and I think I can see some rays of light shining through. I truly thank you guys for this resource and for all of you that I have read over and over again these past couple of days. Only today did I gather enough courage to join. Thank you again for your words of wisdom....I look forward to many conversations.....

0

Share this post


Link to post
Share on other sites




Hi Gina, I'm glad you got the courage to join! This a great place to share experiences...good and bad.To get advice or discuss whatever. Have you tried the Kinnikinnick brand of cookies? I love the double chocolate almond. Even friends and family pig out on them. YUMMY :) There's alot of great gluten-free alternatives for treats. You'll eventually find more and more things that you're able to eat.

Feel free to post any questions, or ask for ideas. I still consider myself a newbie at the whole gluten free thing and often rely on the advice of this forum.

Welcome and Happy holidays to you.

Charlene

0

Share this post


Link to post
Share on other sites

Hi Gina and Laura!!! And welcome to the board. Healing rates vary with individuals and amount of damage done before going gluten-free. Other foods might be hard to digest for awhile due to damage. As you get better, you may be able to add some more foods back in. But right now, think baby - easy on the tummy types of foods. I've learned more from this forum in the past 4 months than I had in nearly a decade after being dx'd. I urge you to just browse the posts or use the search for specific subjects. It's probably all been discussed. But if you have something you need to ask, don't hesitate! No subject is off limits, we've all been there, read it, asked it. We're here for each other.

0

Share this post


Link to post
Share on other sites

Hello and welcome,

Symptoms as well as healing time will vary. I was lucky in that the symptoms that came with my positive biopsy went away after two days and never came back. This was 7 months ago. The single biggest hurdle I got over was realizing I was not going to die from malabsorption. The bloating, gas, diarrhea, and heartburn are gone. Once the body starts working the healing begins. I haven't been tempted once to cheat on the diet. I did not know I could feel this good. Stick to the diet and you will too. One more thing, before I got diagnosed with this disease I had no idea how the digestive system worked. I got on the internet and studied the process to understand where those pains and noises were coming from. Now looking back when I had symptoms I know what they were and why. Good luck to both of you.

Tom

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,891
    • Total Posts
      919,518
  • Topics

  • Posts

    • I'm actually scared to go to the doctor and could use some advice
      I finally found out my gluten issues right after I left a very stressful job and could no longer function I was so ill. Symptoms had gone on for decades before, but it took a moment of stress to bring it to a head. I had anxiety gerd and the irregular heartbeat and I had a nasty bout of shingles when I was 20 which I've subsequently realised was due to my compromised immune system.  Shingles follows a particular nerve  around the body which is probably why Cristiana's dr suspected it. I had it from the front right of torso moving around to my back. The pain you describe is similar to how shingles felt before the blisters arrived, it starts with the skin feeling very tender as if it's been burnt. Maybe you're getting the forerunner to it and your body is successfully stopping it progressing? Ah, enough amateur doctoring from me! I hope you get the answers you need and are soon on the way to recovery. Sending you best wishes.
    • Amaranth and Quinoa: Pseudo-cereal Super Foods
      My latest obsession is creating new quinoa recipes, since my eight year old daughter absolutely loves it! Her favorite is warm quinoa with crumbled turkey sausage, broccoli, and lots of cumin. She also loves it with oil and balsamic vinegar. I like it cold with chopped veggies, garlic, and fresh squeezed lemon juice. View the full article
    • Easy Soy-Mirin Glazed Salmon (Gluten-Free)
      If you're looking for and easy yet exotic way to serve fish, look no further than this soy and mirin glazed salmon. It's easy to make and offers a delicious departure from standard fare. View the full article
    • Mexican?
      Chipotle is one of my favorite places to eat, but it is a 50/50 chance of having a reaction due to cross-contamination.  Yes, they graciously make an effort to be gluten-free and will change gloves.  BUT, before that they used gloves and handled flour tortillas and then used same gloves to reach into the lettuce and cheese--voila--cross-contaminated food.  Changing gloves for you does not avoid this cross-contamination problem.  I started having reactions and my daughter advised me to avoid all the corn products there because of what she read on their website about allergens--so no more chips, or crispy taco shells, or corn.  I also avoid the green salsa and the pico de gallo--not that I am aware of cross contamination but she never eats that there and she has been successful at not having reactions, so that is what I do now and have had much success. Here is what I get:   burrito bowl with either white or brown cilantro lime rice, grilled veggies, black beans, barbacoa, red salsa, cheese, sour cream, guacamole, and lettuce on top.  So GOOD! and so far, safe for me.
    • I'm actually scared to go to the doctor and could use some advice
      Hi Elle.   To be honest, to this day I am not sure if I actually had zoster sine herpete.  It was one of several suggestions by bewildered doctors.  What I can tell you is that I had to have MRIs  because one doctor thought I might have trapped nerve in my spine and I thought it would reveal something dreadful being the sort of person who gets weird nerve sensations - and it didn't reveal a thing.   It was unsettling to have symptoms like that for so long but what made me think my brother in law might have been right was because the worst of the symptoms lasted a year which I gather is pretty typical (but don't panic, because they can go a lot faster!)   My nutritionalist told me that if we get run down we are more prone to shingles so that is something to watch. Easy to say (and I'm speaking to myself here!) try not to spend too much time by yourself worrying about these things because anxiety never helps with nerve pain. I found that rest was very beneficial so I would recommend you try to get as much of that as you can.  Also, someone suggested a warm bath for 20 minutes with some Epsom salts.  That helped too. As I say, just one reason you might be getting this pain but I would continue with the investigations and perhaps mention the pain to your doctor and ask if it could be shingles.      
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,937
    • Most Online
      1,763

    Newest Member
    ckrlink1
    Joined