Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Newly Diagnosed
0

7 posts in this topic

I have just been diagnosed with celiac disease. I had no idea this disease could cause so many problems and symptoms. I have previousely been diagnosed with fibromyalgia, IBS and Hoshimotos hypothyroidism, and had recently changed doctors because I was disatisfied with the level of care I was getting from my PCP.

I was told when I made the appointment with my new doctor to fast because she always likes to do a seriies of blood panels on all her new patients. After meeting her and giving a brief medical history, she told me she thought I could be gluten intollerant and the blood tests she was running would find out.

Sure enough they came back possitive for gluten intolerance, pre-diabetes, high colesterol and my Hoshimoto's was in flare.

After I spoke with her in her office, believe it or not, I actually felt very possitve, because now I had something that I could actively do to feel better and I wasn't just given a handful of perscriptions and shoved out the door.

I also remember that my mother (she passed away 10 years ago) had Celiac disease. She was in her sixties before whe was ever diagnosed, and very very sick. I remember she had all sorts of symptoms her whole life, like anemia as a child, hairloss when she got older, lots of dental problems, infact she lost all of her teeth in her early twenties. Two years before she died she had to have emergency surgery for severe abdominal pain, and they removed several feet of her small intestines whch had gangrenous.

I am just 40 now and very greatful that I am able to do something to get well. Back in January I had started a low carb diet, on which I imediatly noticed how much better I felt, and now realize it was because I was not eating any bread products.

I am greatful that I am already in the habit of avoiding bread, but now need to refine it to a much greater degree.

Any help or encouragement would be appreciated.

thanks,

Betsy

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome Betsy! :D

Sorry to hear of your health problems and your mothers passing. It is good that you were on the low carb diet and could recognize you had a problem with bread and that you know that a gluten-free diet goes much deeper than just bread. It may seem overwhleming at first but it does get easier, especially when you see a difference in your health! I know for me after being gluten-free for a few days my abdomainal pain was gone!

Here are some links listing other ingredients we have to look for that go above and beyond, wheat, rye, etc.....

Mainstream gluten-free products

Safe and forbidden food and ingredient list

This site is an awesome place for support, encouragement and lots of helpful information. Take care & God Bless

0

Share this post


Link to post
Share on other sites

Hi elf! Welcome. I've been gluten-free for 3.5 months and can say that the first 3 months are the "period of adjustment" and it gets easier! I'm glad you found a good doctor to work with you. There's so much to learn and I suggest looking for and joining a local support group as well as checking in here regularly. Best wishes to you!

0

Share this post


Link to post
Share on other sites

Hi, my name is Sonja and I have just been diagnosed with having a gluten allergy. Initially I tried to deny it because I was not the typical patient. Eveything I have read indicates that most peolple with Celiac or Gluten Allergies are very small and have problems gaining weight due to malabsorption of nutrients. Well, I have just the opposite problem. I am overweight. But after reading some of the messages from the board, I am 100% positive I have gluten allergies. I have only been on a gluten free diet for a week( not sure if I have been 100% gluten free). Its very difficult since I considered myself a carb addict. I find myself graving more and more for things I can't have. I am also very depressed. I want to know how long does it take to really feel better and adjust to this change of life? I am :( really trying, but it is very difficult. Any suggestions would be appreciated.

Sonja :(

0

Share this post


Link to post
Share on other sites

Stick to the diet, read ALL labels! It takes anywhere from 3 weeks to 3 years, depending on the level of damage your body sustained. Keep reading the board, and asking questions. Be patient with your body, and smile, things will get better from here!

BTW: we are doing a campaign to get Oprah to do a segment on Celiac Disease, so please e-mail her! I think the website is www.oprah.com.

0

Share this post


Link to post
Share on other sites




I looked back and the site is www.oprah.com/

0

Share this post


Link to post
Share on other sites

I have recently (2 weeks ago) been diagnosed w/ celiac disease. Am reading all I can on this site to help me understand the symptoms - which I believe my siblings and my mother are suffering from - for YEARS!

Am I understanding this correctly - that there is a correlation between Hoshimoto's Disease and celiac disease? My sister has Hoshimoto's Disease and I forced her to get her first colonoscopy last week - she has also been suffering from constipation for about 20 yrs now - and her Dr says that she doesn't have celiac disease - although he did not perform a biopsy. (my celiac disease was diagnosed via biopsy results)

I know that eating gluten-free for the past 2 weeks has already changed my life - after taking every IBS drug on the market - with short-lived to no success - my body is already starting to function like a "normal" person! I feel like a new person!

Any information in helping me help my loved ones is greatly appreciated!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,346
    • Total Posts
      917,409
  • Topics

  • Posts

    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
    • Will my doctor test me? So many symptoms...
      Hi! I was hoping some of you might be able to tell me if my symptoms seem like good reason to be tested for celiac disease... I actually asked my doctor to test me (years ago) and she told me she would not test me because the test is expensive... However, I am now desperate to figure out how to manage my health issues and am willing to find a doctor that WILL test me if my symptoms seem to point to celiac...Here they are:
      I have been diagnosed with all of the following over the last 12 years (I am 22 years old, and have always been a healthy weight/slightly underweight, and quite active):
      Irritable Bowel Syndrome Fibromyalgia Anorexia (started when I was 10, I have been mostly recovered since I was 14) Depression Anxiety Panic Attacks Horrible mood swings (from suicidal to totally fine in a matter of minutes)
        Chronic constipation and bloating Acne   HOWEVER, no one in my family has been diagnosed with celiac....am I wrong to think I have it??
    • Weird Reaction
      Yes, I was surprised about the MSG in broccoli as well. I just had a quick look now as I couldn't remember where I had read it but some mushrooms have it to. A Google search will bring up a few things. I always just thought MSG was an artificial food enhancer!! Insecticides are still a big possibility though. Why do you not want to try organic? We buy organic when we can and fruits and veges that are in season are usually the best and cheapest.  Thank you for the link, Cristiana. Very helpful. I have an appointment with my Naturopath in a couple of weeks and going to have a blood test done before that. She is excellent. Very knowledgeable and loves her work. Until then I'm not taking any supplements. I generally eat pretty well anyway so we'll see what she says. In the past I have used B12 injections (aka Neo Cytamen) which I found much better and safer than taken orally and very cheap. The energy boost was very noticeable. I didn't know it helped with anxiety though. She has also had me on Magnesium, Probiotics and Vitamin D3 and I also make my own Liver Tonic (Milk Thistle, Dandelion Root Powder, L-Glutamine, Taurine and Choline Bitartrate) which I use from time to time for a quick detox. Too much of anything can be bad but I think iron can be not real good in large amounts. Deficiencies can be related to gut health and/or competing for absorbtion with something else you may be taking I found. I'm no expert though but just a few things I've picked up during research. My normal GP told me to just eat some more red meat but I want to speak to my Naturopath first before supplementing. Her knowledge on nutrition is a bit more up-to-date.  I was just sitting there at lunch today after feeling great all morning and had a "weird feeling" come over me. Just a not quite right feeling. Very hard to describe and nausea seems to have returned to. It's funny that as I get older any little thing I get I seem to think it's life threatening even though all the tests I get back say I'm in good health. I guess that's part of that dread and doom and gloom feeling I mentioned earlier. Wish that would go away.  
    • Gluten and panic attacks
      There are great gluten-free pizza crusts out there, as well as good dairy free cheese. I find the key is to add good toppings, e.g. meats, carmelized onions, other veggies, white anchovies. Life goes on. Congrats. Hope the good feelings keep up. 
    • Gluten and panic attacks
      Just want to update incase anyone can find this helpful. I have stopped eating grains and dairy and everyday I'm feeling more and more like myself. It's amazing and I don't really care that I won't eat a regular pizza again. I mean 4 months ago I would have said I would die without gluteny soft pizza, now I am happy to never eat it again if it means I will never have to suffer a panic attack.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,480
    • Most Online
      1,763

    Newest Member
    Luposgirl
    Joined