[Edgar]

I've been experiencing symptoms of Glueten intolerance for the past 5years. It began after a bout of extremely strong anti-biotics for a sinus infection. It first showed up as dizziness and brain fog, then built progressively over the past 5 years to include a range of symptoms from depression, anxiety and lack of sleep to brain fog, dizziness and severe gastro problems.

It was an allergist who first suggested wheat allergies. I followed up with not one but two GI doctors in Los Angeles and Burbank. One suggested celiacs, another refused to even consider it. Niether did testing and the one who thought I was celiacs seems to have been reitred under odd circumstances (You could say I've seen three GI guys. One of this doctors partners their practice saw me when I did a return visit and insisted the diagnosis of celiacs was a mistake).

I've been kind of floundering on my own since. I'd love a recommendation for a good GI doctor in Los Angeles who has experience with celiac disease.

I've been seeing a nutritionist for help. Aside from being a great accupuncurist, I haven't really gotten much help from her. She keeps prescribing enzymes and things designed to increase acid production. These only seem to make things worse. I know I feel better when I've been able to avoid glueten for even a few days but the symptoms are getting worse so I've resolved to get aggressive about diet and treatment with the new year. Suggestions for doctors in town are sincerely appreciated.

[uclangel422]

I live in Sherman Oaks and I see Dr. Michael Hirt, he is a general internal medicine guy and he diagnosed me.

I also work in Burbank at a hospital and for G.I. guys, Dr. Kerry Weiner is supposed to be the best.

[Edgar]

I'm a little dubious about Dr. Weiner. It was a partner in his practice that refused to test me and insisted there was no such thing as a food allergy.

[Edgar]

I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

[nathela]

Edgar, on Dec 27 2005, 02:28 PM, said:

I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

I live in Los Feliz, in Los Angeles. I am also looking for a good celiac GI specialist in the area. So, if you like the new doctor, can you let me know? Thank you. I am going to research on naturepath.com... I heard it might be helpful.

[uclangel422]

I am so sorry that that happened to you with someone affiliated with my hospital. Thanks for telling me about that too, i will stay away from them if i ever need any GI work done.

[rpinette]

Edgar, on Dec 27 2005, 12:28 PM, said:

I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

Edgar, where you happy with Dr. Pietzak? I too am looking for an LA based doctor. Thanks.

[nasalady]

rpinette, on Jul 31 2009, 10:09 AM, said:

Edgar, where you happy with Dr. Pietzak? I too am looking for an LA based doctor. Thanks.

Pietzak is exclusively a pediatric doctor, as far as I know. She wouldn't even see my little girl and had her seen by a younger GI doctor (Collins) at CHLA. We do like Dr. Collins, but even though Emma's DNA test revealed HLA DQ2, she wouldn't order a biopsy because Emma's bloodwork was negative. The celiac panel is notoriously inaccurate in young children. I put Emma on the gluten free diet and her eczema disappeared and she started to gain weight.

I saw Dr. Peter Rosenberg in Pasadena. He took me seriously and is a good listener. I think he's the best GI doctor that I've seen.

The only negative I have to report is that when my husband saw him recently (my husband has DH, which I've understood from this board to be an automatic diagnosis of celiac disease), he said that he wasn't convinced that Paul had celiac and wants him to have the celiac panel run even though he's been gluten free since JANUARY. I was surprised by this, because Rosenberg seemed to be up on the latest celiac research.