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Hello to everyone!

I have been hanging around here and reading posts for quite a few weeks. A friend of mine was diagnosed with celiac disease and I thought it might be my problem.

I have had diarrhea for my whole life. I was told years ago it was IBS and to learn to live with it. As I have gotten older I have found it to be a real problem.

I went to my primary care who told me I wasn't sick enough to have celiac disease and I was too heavy. She sent me to an allergist,who did skin testing for foods and the blood tests for celiac disease, The skin test showed positive for wheat, fish, peanuts and eggs. The celiac disease blood test came back normal. He told me to avoid those foods. Then he ran allergy bloodwork and they came back negative. I have omitted those foods from my diet and I feel better. But now they say I don't have any allergies according to the blood work. I guess the big old welts from the skin tests don't count. So according to the Drs. I don't have allergies or celiac disease.

I decided that I would stick to the diet for six weeks and see if I keep improving.If so ,that is how I will eat.

Has anyone else had all the negative tests,but felt better gluten free?Am I crazy?



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You are not crazy. I tested negative on the blood tests, too. See the blood test measures the level of antibodies to gliadin (another word for gluten protein) in your blood. The antibodies are produced in your intestine, but only start to leak into your bloodstream when there is a lot of damage to your intestine. Since the damage in the intestines often starts out as patchy and the lining heals quite quickly, it can take quite a long time for some people to produce a positve bloodtest result.

You could ask a GI doctor for a biopsy to see if there is damage, but even the biopsy has some flaws. You already know that you feel better off wheat, so I would say go with that, but understand that it is much harder to get positive test results after being on a gluten free diet.

Welcome to the message board. :)

God bless,



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My blood test wasn't negative, but it wasn't positive either. I determined by celiac status by how I did on the gluten-free diet. I felt better going gluten-free, and can tell when I get something that's contaminated, so I stay gluten-free.


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My doctor diagnosed Celiac Sprue from the diet changes. You have to have almost massive amounts of damage for the tests to show positive. If you feel better on the gluten-free diet, then stick with it. A long, healthy life is very much worth not eating wheat!


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    • I have not taken him to a dermatologist. I have dapsone, which I put on the rash, it always clears up. I have it for another family member. But then I started reading about celiac and all these dots are out there but not connected.  The next time he has the bumps, I am going to take him in. In the mean time, I am trying to find a dermatologist who understands the condition. I don't want my kid to have celiac. And I kinda feel crazy for thinking he may have a gluten issue but with it in my family and him having these other things, I want to be dilligent.   i will read up on the test you suggested. Thanks for taking the time to read and respond everyone.   
    • I tested positive to deamidated gliadin in August at a hospital. My old GI tested me using gliadin (the test listed on your result) in September and it was negative. Literally the next day, my new GI tested for deamidated gliadin again and it was positive (I was unaware the hospital scheduled an appointment with the new GI for follow up).  If you still suspect it, Google deamidated gliadin, print out the Mayo clinic lab info and circle the part where it says they have discontinued the use of gliadin in favor of the deamidated gliadin.  Has he seen a dermatologist?
    • He has a rash on his fingers from time to time. Angular Chetelis. Mouth sores. So skinny. Anxious. 
    • The blood test results are negative (and he had the complete panel).  No GI issues (per your posting).  What makes you suspect celiac disease?  
    • Hi WS, So sorry to hear your not feeling quite right just yet. I can relate! I believe in doing whatever is needed for you to be able to come to terms with the diagnosis, which it sounds like was given to you already but if you still need further evidence then do whatever is needed!  In regards to food, I am a pescatarian so I also don't eat meat but I get my protein from some seafood, eggs, beans, natural protein replacements, exct...I was vegetarian and found it extremely difficult on the gluten-free diet for my lifestyle. I found probiotics have really helped me but even now I still feel off days with my digestion and I think that just comes with having a digestive disease. I know what foods trigger it (Yes gluten-free foods!) and try to stay away. I remember the first month or so I was very sick from removing gluten, almost like withdrawal symptoms. Probably because I ate a lot of it prior so it was a shock. 3 1/2 years later, I still feel weak and light headed if I don't eat enough carbs/protein. Celiacs are known to have deficiencies already so your nutrition intake/supplements are super important! I hope your able to find peace with your health and get the answers your looking for! Let us know an update -Cristina  IG: ifitceliac
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