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Eating Wheat Before Testing
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I'm new to this site. I stopped eating wheat 2 weeks ago at the suggestion of a doctor to see if it helped the 20+ years of unexplained symptoms. It worked wonderfully. I know that I have to be eating wheat in order to have the blood tests. Does anyone know how for how long I need to be eating wheat before I can get the bloodwork done? Is testing necessary since it's working for me? Thanks!

Jen

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In my personal opinion, if YOU can live with knowing that the diet is helping you and you wouldn't be tempted to cheat, then testing isn't needed. If you can go completely gluten free for a while then do a " gluten challenge" you still don't need a medical Dr.

If, however, you are the type to start doubting yourself, you may want to do the testing just for the peace of mind... BUT, and especially if you have been wheat free/gluten free for a while, you may not re introduce enough gluten into your diet for testing to even be accurate.

Ultimately you will be the one to decide if Positive Dietary Response is enough for you or if you need to know if it's Celiac. You may not have Celiac and still be Gluten Intolerant though, which doesn't show up in testing... only with the dietary challenge.

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How do you know if you've reintroduced enough gluten for the test to be effective? And how many days/weeks should you reintroduce the gluten before taking the blood test?

I want to re-take the blood test, because mine was taken while gluten free. My doctor told me today that antibody levels don't change even when on a gluten-free diet. Most everything I've read and heard is to the contrary.

Tweedledee

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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