13 replies to this topic

[irish]

Does anyone know of any doctors in new york city or surrounding areas that specializes in Celiac Disease. I lost 35 pounds already. The only response I got from a doctors it must me nerves. I need to find a doctor that could help and has a heart. Thank you for you help Loretta

[irish]

Sorry, I forgot to be more specific about needing a doctor in New York. I live in Westchester County. I need a Doctor in Manhattan, Bronx or Westchester Country.

Thanks.

[erica]

Hi irish. I live in NYC and haven't found one who specializes yet but I am still looking. Have you been tested- do you know if you definitely have celiac? My primary care Dr gave me the blood test. Just wanted to make sure you weren't waiting to get tested until you found a specialist b/c that's not necessary.
Good luck!

[irish]

Hi! Erica. My primary care doctor did give me a blood test for Celiac Disease. I definitely have Celiac Disease. I found a Doctor that specializes in Celiac Disease. Dr. Green was recommended to me. But unfortunately, he does not take me coverage. Consultation with him is $450.00 plus extra if he takes blood.
Please e-mail if you want his telephone number. Have you gone to any support groups in NY. Thanks Loretta

[erica]

Hi Irish! Thanks for the info but I'd rather not pay if I already pay for insurance every month. I found that Columbia University has a Celiac Disease Center. My mother-in-law, who is affiliated at Columbia, is going to ask one of her colleagues there to recommend someone in the city. I'll definitely keep you posted! I haven't gone to any support groups but a friend of mine at work also has celiac so she is my main support. I alsos pend a lot of time at fairway shopping- they have a great gluten free assortment.

[irish]

Erica, I feel the same way. I just do not know where to turn. I was told that Dr. Green runs the Celiac Center in Columbia. I hope your mother-in-law can recommend someone. Please let me know. Where is there a Fairway in New York. I go to Whole Foods but they are very expensive. I had to leave work tonight because I got sick again. I just want a doctor that could help. Thanks Loretta

[erica]

If you live in Westchester, Fairway is a pretty quick and easy drive for you. I go to the one on 74th & Broadway since it is near my apartment. Upstairs is all health food and although there is no gluten free section, there are tons of gluten free options: cereal, pasta, frozen pizza, waffles, cookies, bread mizes, tons of flour options, etc... There is also a Fairway just off the highway on 125th street. It is huge but I am not sure what their gluten free selection is like. Whole Foods does get pretty expensive... but I find it is easiest to eat as many "normal" foods as possible and then use gluten-free foods when necessary. For example, for lunch I often have a salad which plain tuna on top and I use plain olive oil as my salad dressing. It is actually very tasty. I'll often make chicken cutelts (using gluten-free breadcrumbs I buy online) which rice and some vegetables. Investing in an indoor grill (unless you have a real one) is also great- I have one i bought from Crate & Barrell- I use it to cook fish and meat and the grill locks in the juciness and taste so you don't need to use seasonings or marinade- just alittle salt, pepper and a few herbs if you like.

I have a friend at work who is also celiac- I'll ask tomorrow if there is anyone she can recommend and I'll get back to you. In the meantime, take it easy and eat foods that you know can't hurt. Plain chicken, tuna, etc... nothing spicy,... until you feel better. Believe me, with time you will feel better

[zippyten]

Irish,
Hi, I'm new to this & was just diagnosed as a "weak positive" for gluten-sensitive enteropathy & the doctor advised I try a gluten-free diet for 3 months & then have the bloodwork checked again for antibodies. Anyway, he is an experienced gastroenterologist who seemed knowledgeable about celiac disease, and I was especially impressed with how thorough his questioning of my medical history was, which is unusual & I appreciated him for that alone. Several other doctors I've seen (including another gastroenterologist) were fairly dismissive of my symptoms (I heard the old "probably just stress" -- a popular catch-all diagnosis when you're a woman). I happened to notice New York magazine named him one of NYC's top doctors last year, if that carries any weight with you. I'm not exactly sure of the rules with this but feel free to email me and I will give you his name & number, if you are interested. He is located in lower Manhattan right near City Hall and the Brooklyn Bridge.
Good luck.
Ellen

[debmidge]

Hi All! Let me add my name to the list of those who are looking for a gastro who knows more than the average gastro about celiac disease. My husband newly diagnosed and it appears that the Dr. he has is only going "so far" with the problem. I feel like "Well, here's you diagnosis -- now live with it." is coming from the Dr. I'd like more direction: such as "what should I do if I inadvertently ingest gluten?" Would pepto bismol help? What anti- gas tablets are best? Is activated charcoal best? The Dr. should have the CSA food directory at his office - not to give it away, but to show it to you that it exists also should have a list of the gluten-free websites, including this one. More direction from Dr. on topic of weight loss, what to do if still getting gas after being 100% gluten-free after 3 mos....
Does anyone know of a "super" Celiac knowlegable gastro in the central to northeastern part of New Jersey? I live in Union County. I'll even go out of my HMO network if I have to....
Thanks.

[celiac3270]

I found that Columbia University has a Celiac Disease Center.

Definitely do that -- Columbia has a whole program w/ celiac drs........the new doc. I'm going to tomorrow is affiliated w/ that program....try it.

[EddieJP125]

i called DR. Green and went through Columbia but they only take Oxford Insurance...and i have GHI...i've been also lookin for a DR that specializes in celiac disease...i live in LongIsland...but willing to go to Manahattan...

[Happycat]

Hi, I called Dr. Green this morning he is booking for January. He is specializes in celiac. Dr. Peter Green
Columbia University Hospital
161 Ft. Washington Ave
N.Y., N.Y 10032
212 305-5590

[nancyb]

Hello,
I can recommend Dr. Markovicks at the Valley Stream QLMC (formerly HIP) center.
Good Luck!