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Doctors In New York
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Does anyone know of any doctors in new york city or surrounding areas that specializes in Celiac Disease. I lost 35 pounds already. The only response I got from a doctors it must me nerves. I need to find a doctor that could help and has a heart. Thank you for you help Loretta

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Sorry, I forgot to be more specific about needing a doctor in New York. I live in Westchester County. I need a Doctor in Manhattan, Bronx or Westchester Country.

Thanks.

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Hi irish. I live in NYC and haven't found one who specializes yet but I am still looking. Have you been tested- do you know if you definitely have celiac? My primary care Dr gave me the blood test. Just wanted to make sure you weren't waiting to get tested until you found a specialist b/c that's not necessary.

Good luck!

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Hi! Erica. My primary care doctor did give me a blood test for Celiac Disease. I definitely have Celiac Disease. I found a Doctor that specializes in Celiac Disease. Dr. Green was recommended to me. But unfortunately, he does not take me coverage. Consultation with him is $450.00 plus extra if he takes blood.

Please e-mail if you want his telephone number. Have you gone to any support groups in NY. Thanks Loretta

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Hi Irish! Thanks for the info but I'd rather not pay if I already pay for insurance every month. I found that Columbia University has a Celiac Disease Center. My mother-in-law, who is affiliated at Columbia, is going to ask one of her colleagues there to recommend someone in the city. I'll definitely keep you posted! I haven't gone to any support groups but a friend of mine at work also has celiac so she is my main support. I alsos pend a lot of time at fairway shopping- they have a great gluten free assortment.

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Erica, I feel the same way. I just do not know where to turn. I was told that Dr. Green runs the Celiac Center in Columbia. I hope your mother-in-law can recommend someone. Please let me know. Where is there a Fairway in New York. I go to Whole Foods but they are very expensive. I had to leave work tonight because I got sick again. I just want a doctor that could help. Thanks Loretta

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If you live in Westchester, Fairway is a pretty quick and easy drive for you. I go to the one on 74th & Broadway since it is near my apartment. Upstairs is all health food and although there is no gluten free section, there are tons of gluten free options: cereal, pasta, frozen pizza, waffles, cookies, bread mizes, tons of flour options, etc... There is also a Fairway just off the highway on 125th street. It is huge but I am not sure what their gluten free selection is like. Whole Foods does get pretty expensive... but I find it is easiest to eat as many "normal" foods as possible and then use gluten-free foods when necessary. For example, for lunch I often have a salad which plain tuna on top and I use plain olive oil as my salad dressing. It is actually very tasty. I'll often make chicken cutelts (using gluten-free breadcrumbs I buy online) which rice and some vegetables. Investing in an indoor grill (unless you have a real one) is also great- I have one i bought from Crate & Barrell- I use it to cook fish and meat and the grill locks in the juciness and taste so you don't need to use seasonings or marinade- just alittle salt, pepper and a few herbs if you like.

I have a friend at work who is also celiac- I'll ask tomorrow if there is anyone she can recommend and I'll get back to you. In the meantime, take it easy and eat foods that you know can't hurt. Plain chicken, tuna, etc... nothing spicy,... until you feel better. Believe me, with time you will feel better :)

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Irish,

Hi, I'm new to this & was just diagnosed as a "weak positive" for gluten-sensitive enteropathy & the doctor advised I try a gluten-free diet for 3 months & then have the bloodwork checked again for antibodies. Anyway, he is an experienced gastroenterologist who seemed knowledgeable about celiac disease, and I was especially impressed with how thorough his questioning of my medical history was, which is unusual & I appreciated him for that alone. Several other doctors I've seen (including another gastroenterologist) were fairly dismissive of my symptoms (I heard the old "probably just stress" -- a popular catch-all diagnosis when you're a woman). I happened to notice New York magazine named him one of NYC's top doctors last year, if that carries any weight with you. I'm not exactly sure of the rules with this but feel free to email me and I will give you his name & number, if you are interested. He is located in lower Manhattan right near City Hall and the Brooklyn Bridge.

Good luck.

Ellen

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Hi All! Let me add my name to the list of those who are looking for a gastro who knows more than the average gastro about celiac disease. My husband newly diagnosed and it appears that the Dr. he has is only going "so far" with the problem. I feel like "Well, here's you diagnosis -- now live with it." is coming from the Dr. I'd like more direction: such as "what should I do if I inadvertently ingest gluten?" Would pepto bismol help? What anti- gas tablets are best? Is activated charcoal best? The Dr. should have the CSA food directory at his office - not to give it away, but to show it to you that it exists also should have a list of the gluten-free websites, including this one. More direction from Dr. on topic of weight loss, what to do if still getting gas after being 100% gluten-free after 3 mos....

Does anyone know of a "super" Celiac knowlegable gastro in the central to northeastern part of New Jersey? I live in Union County. I'll even go out of my HMO network if I have to....

Thanks.

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I found that Columbia University has a Celiac Disease Center.

Definitely do that -- Columbia has a whole program w/ celiac drs........the new doc. I'm going to tomorrow is affiliated w/ that program....try it.

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i called DR. Green and went through Columbia but they only take Oxford Insurance...and i have GHI...i've been also lookin for a DR that specializes in celiac disease...i live in LongIsland...but willing to go to Manahattan...

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Hi, I called Dr. Green this morning he is booking for January. He is specializes in celiac. Dr. Peter Green

Columbia University Hospital

161 Ft. Washington Ave

N.Y., N.Y 10032

212 305-5590

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Hello,

I can recommend Dr. Markovicks at the Valley Stream QLMC (formerly HIP) center.

Good Luck!

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
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    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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