Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Gluten Reaction And Constipation


jojoe72

Recommended Posts

jojoe72 Rookie

Not a nice topic but I've got to ask. I've been noticing some fairly odd reactions lately. Over the last week I've been feeling horrible and also been terribly constipated. Two days before this I had gotten some gluten in my diet by mistake. Each passing day I got more constipated and felt worse and worse. Finally after a week of this I took a bunch of laxitives...after the laxitives did their thing I felt like a totally new person mentally and physically. The back ache, head ache, bags under my eyes, and mental funkyness completely went away within 10 mins. Is this common? If I could only stay feeling this way all the time. I feel like a new person. Ideas??

Joe

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sdore Enthusiast

Hope this helps. I am the complete opposite if I get gluten in my diet, you know what I mean. If the constipation happens often you may want to get checked for IBS. I had similar problems with constipation as a teen and the Dr's swore it was IBS. But now many years later after going gluten-free, I haven't had the problem. You need to make sure that you drink a lot of fluids, mainly water and also be sure to eat fiber in your diet. (you may be doing these things already).

The only thing that I can think that you may have eaten a constipating food or maybe some kind of medication?

Hope this helps a little :D

Link to comment
Share on other sites
tarnalberry Community Regular

While it's not so much the typical reaction these days, when I had been eating gluten continuously (before going gluten-free), I didn't get D, I got C.

Link to comment
Share on other sites
blueshift Apprentice
Not a nice topic but I've got to ask. I've been noticing some fairly odd reactions lately. Over the last week I've been feeling horrible and also been terribly constipated. Two days before this I had gotten some gluten in my diet by mistake. Each passing day I got more constipated and felt worse and worse. Finally after a week of this I took a bunch of laxitives...after the laxitives did their thing I felt like a totally new person mentally and physically. The back ache, head ache, bags under my eyes, and mental funkyness completely went away within 10 mins. Is this common? If I could only stay feeling this way all the time. I feel like a new person. Ideas??

Joe

I used to get constipation constantly until I started eating one raw bell pepper plus a jalapeno pepper with both lunch and supper or any snack. Skip the laxatives since they will likely obstruct your small bowel as they did for me.

Link to comment
Share on other sites
CMCM Rising Star
I used to get constipation constantly until I started eating one raw bell pepper plus a jalapeno pepper with both lunch and supper or any snack. Skip the laxatives since they will likely obstruct your small bowel as they did for me.

This is a curious couple of things to eat for constipation....where did you learn about this? And how on earth do you eat a raw jalapeno....doesn't it burn your mouth to eat that much????

And do you eat a red or green bell pepper?

Carole

Link to comment
Share on other sites
jnote Newbie

Joe,

If it helps, I've noticed the same thing. I thought constipation was the way I was until going on a gluten-free diet seemed to help me. Now, when I accidentally ingest it, I get constipated for several days after. I can't give you any scientific proof for it, just experience. Jenn

Link to comment
Share on other sites
Silver-naki Rookie

Good topic here ---- > CONSTIPATION! :(

Since I went "gluten-free," I have had problems with constipation & also much stomach ;) "bloating." Before going gluten-free I had normal bowel-movements :P and after reading so much on the Forums here, I detected that RICE FLOURS and such things don't have alot of fiber to them. Even tho I eat alot of fresh Fruits & veggies, I still have the "bloat" & constipation more than I ever have. I don't get alot of "gas," so am thankful for that! ( I love my Rice Breads & such, so may be getting too much of those in my system each day as well...)

I drink WATER all day long, and so I know I'm getting my correct intake of liquids. I got miserable for a couple of days there, being "plugged-up" and such, so had my husband stop at the Store & get me a big bottle of 100% pure PRUNE JUICE... (... I don't "do" Laxatives...)

Well guess what folks? The Prune Juice "did the trick" alright... (if you can stand the taste of it,) and between all the water I was drinking, I ingested way too much Prune Juice that day, and Lordy..... not a good scene for the Toilet bowl!!!!! Laugh! :lol: You guessed it, I got "cleaned-out" in a hurry!

Being new on the gluten-free diet, I am still experimenting with my body, & what to eat and what NOT to eat... I have NOT gotten my digestive tract "leveled-out" yet, that's for sure. I was wondering if anybody else did the "Prune Juice trip," like I'm doing??? I know that too much Prune Juice will most likely tear the "lining" right out of my intestines, if I over-do it too much....... duh. :blink:

Any good ideas on what to do for a good source of "gluten-free" FIBER? (besides beans?) I've yet to discover new Foods~

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMCM Rising Star
Good topic here ---- > CONSTIPATION! :(

Since I went "gluten-free," I have had problems with constipation & also much stomach ;) "bloating." Before going gluten-free I had normal bowel-movements :P and after reading so much on the Forums here, I detected that RICE FLOURS and such things don't have alot of fiber to them. Even tho I eat alot of fresh Fruits & veggies, I still have the "bloat" & constipation more than I ever have. I don't get alot of "gas," so am thankful for that! ( I love my Rice Breads & such, so may be getting too much of those in my system each day as well...)

I drink WATER all day long, and so I know I'm getting my correct intake of liquids. I got miserable for a couple of days there, being "plugged-up" and such, so had my husband stop at the Store & get me a big bottle of 100% pure PRUNE JUICE... (... I don't "do" Laxatives...)

Well guess what folks? The Prune Juice "did the trick" alright... (if you can stand the taste of it,) and between all the water I was drinking, I ingested way too much Prune Juice that day, and Lordy..... not a good scene for the Toilet bowl!!!!! Laugh! :lol: You guessed it, I got "cleaned-out" in a hurry!

Being new on the gluten-free diet, I am still experimenting with my body, & what to eat and what NOT to eat... I have NOT gotten my digestive tract "leveled-out" yet, that's for sure. I was wondering if anybody else did the "Prune Juice trip," like I'm doing??? I know that too much Prune Juice will most likely tear the "lining" right out of my intestines, if I over-do it too much....... duh. :blink:

Any good ideas on what to do for a good source of "gluten-free" FIBER? (besides beans?) I've yet to discover new Foods~

Hi...I'm still working on this too! Big problem sometimes! One think I think helps is this, and personally I think it tastes great. I buy a bottle of pure cranberry juice, nothing but cranberry (hard to find). It is too strong to drink straight, so I take a pictcher of water which I'll keep in the fridge, probably about a litre or so, then I mix in about 1/3 cup of the pure cranberry juice. It tastes great...everyone I've given it to liked it. Just a mild, nice flavor, no sugar needed. Then I buy golden whole flax seeds....I learned about them from Dr. Christiane Northrup and others...I get them mail order. I have a cheap little coffee grinder devoted just to the flax seeds, and then each day I take 2 full tablespoons of flax, grind it in the grinder, and stir it into about 3/4 c. or so of the cranberry water. You have to stir and drink, and use a spoon to get it all, but as weird as it sounds, the taste is really nice. The golden flax seeds are wonderful. So doing this once a day is good fiber, plus the flax provides omega 3's and lignans and other good things.

I'm also trying to eat at least one big salad a day with carrots and celery too. This helps. And an apple a day. Beyond this, it's really HARD to get a lot of fiber. I think rice stuff/breads/ etc. are kind of useless for fiber. Oh yeah....I think I read that sweet potates/yams are good fiber too. I'm trying to avoid dairy..I know for a fact that for me it's constipating.

Why is everything delicious so bad for the system? :(

One more thing I forgot about the flax seeds....they MUST be ground up to be useable by your body. Eating whole seeds would go right through. I used to add this flax to my oatmeal, but since I'm not eating oats right now, it just occurred to me that you could put the flax in with creamy hot rice cereal....it might even give the rice cereal more flavor (it's pretty bland.) I get an organic brown rice cereal from Lundberg...it's pretty good, but not much fiber (if any) on its own. I would cook the rice cereal until basically done...and add extra water because the 2 T of flax would really thicken it all up....add the ground flax right at the end, and add more water as necessary to make the consistency you want. I'm not sure, but I think I read that it's better to not really cook the flax, which is why you would add it at the end.

Prune juice: I haven't tried that for awhile, but I buy those prunes with orange in them (Sunsweet??) and they taste really nice. A few of those per day will help, and is probably better and less of a sugar jolt that the prune juice.

Carole

Link to comment
Share on other sites
Silver-naki Rookie

Hey Carole! :)

Gee... THANKS here for the neat "flax" advice!! I'd never heard of doing this, so this would really be something for me to experiment with! Ok now, what's the difference between the "golden" flax and regular flax seeds??? I saw a box of (brown I believe) Flax seeds at Wal-Mart awhile back, & almost bought some, but didn't quite know what to do with them! Laugh!! :)

I also take Flax Seed Oil in the capsule form each day.... and I have never had the hot Rice cereal before, because I rarely eat Cereals. I eat alot of Oranges & Apples, and both of these really help my digestive tract... so do the YAMS. Of course, the Prune Juice has always worked for me, as a natural "laxative," that's for darned sure!!!

The kind of Prune Juice I buy is: "Sunsweet" (Gold Label) ... and reading on the back of it, it states it's 100% prune juice, no preservatives, no added sugar, & nothing artificial.

I liked your idea about the pure Cranberry juice! That is really a good idea! I like Cranberry juice, but it is definitely high in "acidity," and it will upset my stomach if I don't have it "watered-down!" Sooo, I will have to look for some like you described. Let me know on the Flax seeds.... THANKS CAROLE! :D

Link to comment
Share on other sites
covsooze Enthusiast

two figs a day works for me :D Sharon fruit (also called persimmons) are in season at the mo and they are very high in fibre and delicious too. The added bonus is that they don't seem to irritate my stomach like lots of other fruit does.

Link to comment
Share on other sites
ebrbetty Rising Star

I take cutrucel everynight, It seems to really help. A salad would kill me, I have IBS too and salad and raw fruits are really tough on the colon.

Link to comment
Share on other sites
darlindeb25 Collaborator

My sister always tells me I need more fiber in my diet--this is a recipe she put together to get more fiber for us--she is a dietician and celiac as well--try these, they are very good:

Muffins 20-25 mins @ 350

1 cup shredded carrots

1 cup shredded zucchini

2 apples, peeled and shredded

1 cup raisins

1 cup nuts

Mix this all together and set aside

1 1/2 cups flour mix (I use all purpose gluten-free flour)

3/4 cup flax seed

1 cup white bean flour

1 cup brown sugar

2 teasspoons baking soda

1 teaspoon baking powder

1/2 teaspoon salt

2 teaspoon cinnamon

2 teaspoon xanthum gum

Combine all these ingreds, then add 3/4 cup milk, 2 beaten eggs, and 1 teaspoon vanilla. Mix breifly and then add the shredded mixture, blens only long enough to blend. Do not over mix! Makes 20 muffins.

This is too much fiber for me, but they are very tasty--she is a greeeeeeeeeeat cook--most never even know they are eating gluten free. I do have a problem with processed corn and I just read this weekend that I shouldnt use xanthum gum because it is made from corn--that may be the problem for me. Corn and soy constipate me--gluten does the opposite. Deb

Link to comment
Share on other sites
mightymorg Rookie

I've always had a problem with being constipated and bloated, but I think I've finally found a routine that works for me-going gluten-free has really helped, especially the bloating. I make sure to eat maybe 2 cups of watery veggies, cooked, every night at dinner (usually squash with some carrots), and drinking a couple of cups of coffee in the morning really gets things going. :D Also, I take Miralax, which helps soften everything up to make it easier to move.

Oh lordy, what a great topic! :P

Link to comment
Share on other sites
marciab Enthusiast

I've been struggling with constipation for a couple of years now. So I know how you feel.

Lately, I've been using oils with Essential Fatty Acids, like extra virgin olive oil, flax seed oil, and grape seed oil and they are working great. I just stir a tablespoon into my bowl of grains and beans, etc right before I eat it.

You said you felt great after your laxatives "worked". I get that same feeling and thought it was just me. I wonder what causes that. If only we could tap into "healthy feeling" full time.

good luck

Link to comment
Share on other sites
GlutenFreeAl Contributor

Prunes (if you can put up with all of the jokes!) and dried apricots are wonderful. Despite their reputation, I actually think prunes are pretty tasty.

I add raisins to all of my cereal, because corn and rice based cereals have pretty much zero fiber.

Also, Mary's Gone Crakers seem to go right through me! Anyone else experience this??

Link to comment
Share on other sites
CMCM Rising Star
Hey Carole! :)

Gee... THANKS here for the neat "flax" advice!! I'd never heard of doing this, so this would really be something for me to experiment with! Ok now, what's the difference between the "golden" flax and regular flax seeds??? I saw a box of (brown I believe) Flax seeds at Wal-Mart awhile back, & almost bought some, but didn't quite know what to do with them! Laugh!! :)

I also take Flax Seed Oil in the capsule form each day.... and I have never had the hot Rice cereal before, because I rarely eat Cereals. I eat alot of Oranges & Apples, and both of these really help my digestive tract... so do the YAMS. Of course, the Prune Juice has always worked for me, as a natural "laxative," that's for darned sure!!!

The kind of Prune Juice I buy is: "Sunsweet" (Gold Label) ... and reading on the back of it, it states it's 100% prune juice, no preservatives, no added sugar, & nothing artificial.

I liked your idea about the pure Cranberry juice! That is really a good idea! I like Cranberry juice, but it is definitely high in "acidity," and it will upset my stomach if I don't have it "watered-down!" Sooo, I will have to look for some like you described. Let me know on the Flax seeds.... THANKS CAROLE! :D

I had never tried flax seeds at all, but then I kept getting these things in the mail from all these doctors who have newsletters....Dr. Christiane Northrup was one, Dr. Weil was another....and they were all pushing the flax seeds. They claimed the golden ones tasted better and milder and had other good qualities which I've since forgotten. Anyhow, here's a link for some...check, out the 3rd info box for the SEEDS (not the meal) and you'll see that 2T has 8g fiber--pretty good! I haven't tried this brand...I got Pizzey's for awhile, and last time I bought I got a different one, but they're the same. I always make sure they're organic. They come in air sealed bags, and like I said,I grind them right when I'm going to eat them, never before because after they are ground they can go rancid. In their packaged seed form, they last a long time. When I decided I was going to eat them all the time, I ordered from Pizzey's and got a lot of bags...cheaper that way because they didn't charge shipping. Some of the companies offer a starter pack with the little coffee grinder....you never should grind anything but flax in a grinder so don't use it for coffee too. The grinder I was sent was just a tiny little blade grinder. Anyway, here's the link: Open Original Shared Link

:)

Oh yeah...I forgot....with the flax seeds after I open the bag I put them into one of those airtight clamp type containers....you don't really have to do that, but I figured it would be good. You don't refrigerate the seeds or anything.

Like I said, I think it tastes really GOOD, but you have to get beyond the fact that you've got this little glass of cranberry water mix with all this stuff in it which really doesn't blend in...you can kind of drink some of it, but you have to spoon out the rest. I don't mind...I just kind of "eat" it. Nice flavor overall, I enjoy it. B)

Link to comment
Share on other sites
TinaB Newbie

So, can I join this club? I too do not have the big D prob w/celiac but constipation. Have had this prob most of my life. I eat prunes but I either don't get enough or too many (and I too like the flavor). can't stand raisins. I take 4 flax seed oil capsules a day. Will this do as well as the seeds? I can't take much in fiber right now. my stomach is still trying to heal (dx 12/22/05). Cranberry juice is still pretty acidic and I've been scared to try that even though I have a long history of bladder probs that I've kept in check in the past w/craberry juice. I tried some laxatives but they seemed to bloat me even worse. What brand is good and not bloating? Didn't I read that silica or some form of that is the bloating cause but then all I've seen have that in it. What do we try next or am I doomed until I've fully healed? :blink:

I read that someone drank a glass of warm water first thing in the morning and 30 min before eating anything and it worked for her (hasn't for me). Try that.

Link to comment
Share on other sites
marciab Enthusiast

Tinab ...not sure I want to be a member of this club, but here I am ... I found meats or anything with a hard skin, such as raisins, prunes, apples, etc., cause me to be constipated. So, I eat them in moderation or not at all. I used laxatives for a couple of years, but they stopped working. Or sometimes would work so well I couldn't leave my house for days. And fiber just made me bloat up. I'm using oils with essential fatty acids now and they are working great. Fresh fruits are helpful too, like papayas, mangos, watermelon, etc. I can't tolerate cranberry juice or anything acidic right now either. good luck marcia

Link to comment
Share on other sites
marciab Enthusiast

...after the laxitives did their thing I felt like a totally new person mentally and physically. The back ache, head ache, bags under my eyes, and mental funkyness completely went away within 10 mins. Is this common? If I could only stay feeling this way all the time. I feel like a new person. Ideas??

Joe

Link to comment
Share on other sites
  • 2 weeks later...
sneako Rookie

Last night and today, my first ever case of Constipation, been gluten-free for bout 2 months or so now, my GI tract is amazingly silent, until these days with the constipation. Friggin annoying as hell, and rather painful sometimes.

Luckily my 5 pounds of dried Turkish Gold Figs came in yesterday :D that should help clear me up right quick.

Link to comment
Share on other sites
pattic Rookie

Great topic!

Yes, one of my reactions to being glutened is the big 'C'! When I've had something I shouldn't have, it's usually 2 days later that I realize it. Then among some other symptoms, constipation. Then approx 3 to 4 days later, I can't get out of the bathroom. The timing and symptoms are always the same.

Prior to becoming gluten-free I was chronically constipated. I would drink water; excercise; I'm a vegeatarian; I tried metamucil type products that only seemed to bulk me up further and never do their job. Finally, at age 33 I went to a nutritionist who told me to 'lay off wheat', and add a low dose supplement of magnisium citrate capsules (just for a while). Well, it worked, and here I am on the celiac board - avoiding eating gluten now for 9 years!

I don't take the magnisium anymore (you shouldn't make it a habit). But since I've been gluten-free, it really isn't a problem anymore.

One last note, there is a new product out now called Fiber Choice. Chewable, orange flavored or mixed fruit flavored, regular and sugarfree. I checked with the company and they are gluten-free.

.....it's been a pleasure discussing such a personal issue with all of you strangers!!!!!!!!!! LOL!!!!!!!!!!!

Link to comment
Share on other sites
key Contributor

I too have the same problem it seems after getting gluttened. A few days afterwards. I had IBS symptoms before going gluten-free and would alternate back and forth between D and C. FUN! ANyway, now it seems to be more problems with C. So I do the flaxseed thing and prunes and apricots seem to work. Also I put my flaxseeds ground in applesauce and then drink water.

Also my doctor perscribed Citrucel and it works great without the bloating.

Also for me I have found that laying off caffeine helps me not have problems. I like it though, so that is a hard one.

Yes, I feel cruddy too when having C and great when not.

Monica

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,069
    • Most Online (within 30 mins)
      7,748

    angie78
    Newest Member
    angie78
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
×
×
  • Create New...