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Could My Niece Have Celiac Disease?
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3 posts in this topic

hello,

I am not a mom of a child with celiac disease but my sister suspects that her 3 year old daughter may have it. Since she was a baby she has suffered from eczema, at times quite badly. She is also terribly allergic to eggs, she can't even touch the shells. But recently my sister has noted, that her stomach is becoming somewhat distended, she has diarrahea, and sometimes her stools look like undigested food. She also craves bread and wants to eat it all the time. She has also been complaining of a pain in her stomach. Is it possible that she has celiac disease? And is there a link between eczema and celiac disease?

My sister is bringing her to the Specialist this week, but I thought I would post and maybe get some advice.

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Hi,

It definitely sounds like a possibility in regards to your niece. You have found a great site to look up information on this subject. One of the common descriptions of Celiac's is that they look like the starving children who have bloated stomachs, although it is definitely not always the case. The undigested food in her stool is another symptom. There are so many symptoms which vary from person to person, but the Dr. can start checking it out with a simple blood test and testing her for the gliaden antibodies. I wish you all much luck in getting the little one healthy again.

Lily

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I agree.

"...She also craves bread and wants to eat it all the time. She has also been complaining of a pain in her stomach." Sounds like she should be tested for celiac!

Celiacs often have a skin condition known as Dermatitus Herpetiformis. Use that as a buzz word for the specialist. Maybe she could be checked for that--it's a sure fire way to diagnose celiac.

Good luck!

Connie

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    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of all grains, with the exception of rice which I reintroduced using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • I'm not sure I just had the endoscopy, and I've had a  songram. 
    • Thanks and I'm seeing a doctor in three months may have to make it sooner.    Thanks for all the replies.
    • Hey guys so question. I still am going through some of the motions to finally be diagnosed. I has a really bad case of acid reflux a few days ago and now i feel soo sick. Im still eating gluten because i got a negative biaopsy test but ive been told thag i more than likely still have it because its really hard to detect. Well i drank beer last night and had a poutine today stupid i know and now i feel soooo sick. And only felt really sick after the poutine. Now my question is can your symptoms get worse all of a sudden??  I have many other symptoms thaat read celiac deisease for most of my life. But since all doctors told me you have anxiety ibs and fibro at 28 years old. I just baiscally gave up and figured this was going to be my life feeling like crap for the rest of my life. Any thoughts??? Thanks guys. Sorry for the novel lol
    • A negative result from a biopsy that is. 
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