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10 Yr Old Sick
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5 posts in this topic

Hi, Can anyone tell me how long before I should begin seeing some difference in my 10 yr. olds energy, weight etc. My heart is breaking watching her....Paula

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Everyone is so different from what I've read, it's hard to say. If her intestines showed signifigant damage, she will take longer. My intestines were signifigantly damaged, and I had lost a great deal of weight before my diagnosis. I gained a lot of it back during the first 6 weeks on the diet, but I have yet to show other improvements and I've been gluten-free for 8 months. So, as you can see, there's no magic number. If she hasn't gained any weight at all within 6 weeks, I'd have her see a celiac disease specialist and also look closely at the diet. Good luck.

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Wow Paula, I am in the same boat but its my eight year old and it kills me daily to watch her and I still see no positive results and I am scared to death to the point taking her into our hometown is stressful as people are so shocked by her appearance and weight loss.

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Your message struck me because my daughter just turned 10 a few days ago. She was confirmed with Celiac Disease in March. My daughter was extremely sick before the GI doctors confirmed with the endoscopy that she did have Celiac. The diet is "ok" for her but she hates everything as far as breads, crackers, cakes. The GI recommended her to go on a vitamin immediately and she is on Protonic to help with the additional problems she had before being confirmed. I was told also that it could be a while to see results. She hasn't gained much weight if any and also suffers from anxiety/stress related to "I might be sick". I think that part of the disease is worse then anything. I am just waiting and praying that in a few more months she will be back to my little girl. But I do see improvements overall as far as she generally has NO more stomach aches.

Keep pushing head.

Kristen

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I am 14 and I think I have Celiac. It is EXTREMELY hard for me to gain weight. My doctors think I may have a malabsorption problem. That's when your intestines do not absorb your food and fats correctly. Some doctors call this "Leaky Gut Syndrome" also, this may disgust you, but if your child has "floating" stools when the have a bowl movement, then that means they are not absorbing their fat in the food correctly. Hope this helped!

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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