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Cc Vs. Slice Of Pizza
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Ok, as I tell more and more people about having Celiac, I keep getting the same question, and now I'm beginning to wonder: will cross contamination hurt me as much as eating a slice of pizza, or having bread? I know that any amount of gluten will do damage, but I'm wondering if the portion of gluten that is consumed has different affects?

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For me, there is no question, the pizza will hurt much worse than accidentally eating small amounts of gluten.

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This is an edumacated :blink: guess, so someone tell me if I'm right or wrong. If this is an autoimmune disorder, and our "soldiers" get sent out to fight off the "bad guy" they think gluten is, wouldn't less "soldiers" be needed for less amount of bad guys? And vice versa? With as efficient as our body is, I can't imagine our body mounting the same counter attack on a cold that it would for, say, hepatitis. I don't know, maybe our body always sends out the same amount of soldiers when there's gluten detected, and the offensive is taken against the lining of the small intestines. I guess we need a scientist in here!

Lisa

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I don't know because I haven't purposely eaten any gluten since going gluten-free... BUT, I can say that when I get cc, I have very real, icky symptoms. I can't imagine eating a whole piece of pizza!!! Yikes! SO, I guess the answer is: You will never know because you can not eat the pizza!! :blink: Right??? Getting cc is bad enough...

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from what I know, yes there might be fewer antibodies produced with "less" gluten, but the auto-immune system is being activated either way, and damage is being done. I try to prevent all "reactions" from occurring.

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In case any of you are wondering, I'm not going to go out and get a slice of pizza to see the reaction. As tempting as it may be working in NYC and having so many great pizza places around, I wouldn't do that to my body intentionally - ever. Getting glutened by CC is bad enough.

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All I know is that CC will cause me to be sick for days. I have not eaten anything that I knew to have gluten since my Dx, nor do I have any urge or temptation to do so--so I really don't know if the reaction would be the same. :)

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I read that there is a new pizza joint in NYC with gluten-free pizza AND gluetn-free beer!! I've thought about coming all the way up (2 hours) just for that!!

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Oooo, I work in NYC. Do you know the name?

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Oooo, I work in NYC. Do you know the name?

Hi Carrie,

as a fellow NY'er who loves pizza (what Nyer doesn't?)

i am very excited to tell you the name of the place is

Risotteria

http://www.risotteria.com/

it's on bleeker - i work in midtown - not too convenient for a quick lunch

so I haven't been there myself (i'm only gluten free since 1/1/6), but i look forward to trying it soon.

funnily enough, i posted the same comparison as you did. pizza vs a speck. i guess NYers just see life as with a slice or without. i hope that place makes it not so black and white

-rg

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    • Here is another point.  My hubby went gluten-free per the poor advice of his GP and my allergist.  It worked.  A tough first year, but he got well.  Thirteen years later, I got diagnosed with celiac disease.  I was shocked!  😱.   Does he have celiac disease?  We will never know because we can not afford to have him do a challenge.  He refuses and I can not blame him.  He knows he will be very sick!   The point?  I am so lucky that we both can not have gluten.  I never worry about him making me sick or vice versa. We made the house completely gluten free for  1) our health and 2) the fact that our kid started helping in the kitchen. Kids make mistakes and I personally need a safe haven.  She wants gluten?  I buy prepackaged stuff and she takes it to school.  All parties and events at my house are gluten free.  Lots of work, but we stay healthy.  She does not have celiac disease.  When she is preparing for a celiac test,  I send her on the porch to eat cookies or bread or whatever floats her boat.  We travel in a gluten-free RV.  I have five sizes of ice chests.  We just have to be prepared for any event.   How can we live this way?   We love feeling good.
    • Freize is right, you need to think about your environment.   Based on that a study I posted for you, you will note that the patients who were diagnosed with refractory celiac disease and THOUGHT they were diet compliant found that they WERE NOT diet compliant.  How is this possible?   This is way out there, but unless you are growing all your own food, you don't really know if it is gluten free.  In the US, we do have laws to help protect our food supplies (no perfect, but a start).    I can not speak for India.  For example, what about your soy?  It can be contaminated by the farmer as it is often rotated with wheat.  Here is an article by Jane Anderson who has celiac disease.  She is very strict as she has DH (celiac rash), but she cites Trisha Thompson who tests foods for gluton contamination, The gluten-free WatchDog (like Consumer reports).  She found that soy which is naturally gluten free, but can be cross contaminated by wheat: https://www.verywell.com/is-soy-gluten-free-562371 so, start thinking about your food supply. As far as a negative TTG IGA or TTG IGG?  I test negative to both.  Only the DGP IGA has ever been elevated in my blood tests (even repeats), yet I had a Marsh Stage IIIIB on my biopsy.  Have you had a DGP IGG?  (I do not see this in your posting).   http://www.cureceliacdisease.org/screening/ These additonal celiac tests might help you feel confident that you have celiac disease and not something else that is damaging your villi.  But remember, some  folks have celiac disease even with negative blood.  I am not IGA deficient, so this is an area I have not researched.  Not to mention that some celiac researchers do not think that the celiac  antibodies tests are good for diet compliancy.   I wish I had better answers for you.  Try a grain free, whole foods diet of meats, fish, eggs, and vegetables for a while.  All food prepared by you. Who cooks your food now?  Is your home gluten free?  Cross contamination at home?  Kissing a loved one.  We had a doctor with celiac disease who was getting glutened by her little children who were consuming gluten!  
    • I won't say I will never eat out but I can't see me eating out for the foreseeable future. Even then, I will most likely only eat at a dedicated gluten free place. I am extremely sensitive to the tiniest amount of gluten and it's just not worth the risk to me. Eating out is playing Russian Roulette as far as I'm concerned and I'm not ready to play that game yet.
    • You are right. The weirdest part is that I feel fine, however, I am sure cross-contamination is doing damage even when we don't think it is. 
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