Dr Said Its Not Coeliac...
Posted 24 April 2004 - 09:04 AM
Just wondered if anyone knows if it is possible to have a false positive blood test?
My GP tested me positive for coeliac, but when i saw a specialist to arrange a biopsy he said he doesnt think it is coeliac.
he said it may have been a bug i caught while i was travelling in indonesia 2 years ago...he also said i am too healthy to be coeliac...
anyone else experience this kind of thing? or know about false positive blood tests?
Posted 24 April 2004 - 09:27 AM
If your blood test was positive, then you either have Celiac Disease (advanced stage of gluten intolerance), or you are gluten intolerant. In my opinion there are no false positive blood test results, only uninformed doctors. Please either get a new doctor or pursue it further with this one. Insist on the biopsy, and if that fails then try the diet anyhow. If you feel better off gluten then that should be the proof that gluten is your problem.
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 24 April 2004 - 12:39 PM
If you are gluten sensitive, then it is important to follow a gluten free diet, in order for you not to develop celiac disease.
It is possible to have a false negative blood test(s), like my son did. He had over 70% of his small intestines, part of his ileocecal valve and part of his colon removed at 6 days old. His symptoms from short gut were similar to celiac disease, and he had been tested for it several times and had false negative results. Since he has gone gluten free after a biopsy showed celiac disease, he has made HUGE STRIDES and is gaining weight wonderfully
Posted 24 April 2004 - 01:38 PM
Posted 27 April 2004 - 08:54 AM
my doctor is being reasonable about it - he has not ruled out coeliac and will do the biopsy to check - but he is going to do lots of other tests as well because he is convinced it is something i picked up while travelling. what he is saying makes sense and i did get very sick while in Bali, but having had the positive blood test it just doesnt add up
i know that my body doesnt like food - its not just gluten though, my system doesnt like anything in it. i have to not eat at all to feel well the doctor said i have too many of the bacteria (that we all need a little of) in my gut and so when i eat, it over reacts and makes too much air - or something like that...
did anyone else find that before they went gluten-free all foods upset them or just foods containing gluten?
thanks for the link to recommended doctors, but i am in England bit far to travel really - lol
Posted 27 April 2004 - 12:39 PM
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