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Antigen Tests
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4 posts in this topic

Hi

I was just diagnosed with Celiac. I have a history of ulcers from NSAID intake and was recently iron deficient anemic and we thought it was due to a bleeding ulcer. I asked my doc to also check for celiac upon a co-workers recommendation and it turns out I had severe damage of the villi and a very high antigen count.

I'm curious as to what other peoples antigen counts were and from the doctors curious as to what you consider a severe antigen count.

BTW, I have never had ulcer pain in my life, stomach pain or constipation or diarrhea which is why my doc was surprised to find I had celiac.

I've cut out wheat, oats and milk and have been taking iron. I'm no longer anemic but don't really notice any other differences due to the fact that I don't have symptoms to begin with. Its been about 2 weeks since I changed my diet..

thank you

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Hi,welcome to the board!

I cannot help you with antigen tests as my husband(who's the coeliac) scored a negative-(coeliac was diagnosed by biopsy).

Just wanted to point out that to be totally gluten free(which you definitely need to be as you have a dx of coeliac)you need to not only cut out Wheat and Oats but Barley and Rye too.

Alot of coeliacs do also cut out dairy initially going gluten-free (as my husband did)-but you may find that once you've been gluten-free a while you may be able to up your intake of dairy products.Try it and see,so far as the dairy.

By the time my husband was dx he was very ill,but he'd never suffered from some of the stomach troubles others do.He had alot of the other symptoms though-so I understand that your doc found it a shock.We're all different :)

My husband also was refererred to the gastro doc as it was thought he had ulcers caused by taking NSAIDS for arthritis,-he was also anaemic.

No ulcers!but docs found villous atrophy from the biopsy.

Can you tolerate NSAID's anymore?

My husband has had to stop them as they cause him to get blood in his stools.

Anyway-good luck with the diet!! :)

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Hi

I was just diagnosed with Celiac. I have a history of ulcers from NSAID intake and was recently iron deficient anemic and we thought it was due to a bleeding ulcer. I asked my doc to also check for celiac upon a co-workers recommendation and it turns out I had severe damage of the villi and a very high antigen count. I'm curious as to what other peoples antigen counts were and from the doctors curious as to what you consider a severe antigen count. BTW, I have never had ulcer pain in my life, stomach pain or constipation or diarrhea which is why my doc was surprised to find I had celiac. I've cut out wheat, oats and milk and have been taking iron. I'm no longer anemic but don't really notice any other differences due to the fact that I don't have symptoms to begin with. Its been about 2 weeks since I changed my diet..thank you

I cannot help you with your question about antigen count, as I do not have my info available, and some new test results, from two days ago, will not be available until next week.

Welcome aboard. Although I have not yet read it, I would like to recommend the new book by Dr. Peter H.R. Green, CELIAC DISEASE: A HIDDEN EPIDEMIC, which is coming out in Feb. That should give you all the information you need to start living a healthy life with this condition, and it's author, Celiac Specialist Dr. Green, is the head of the Celiac Disease Center at Columbia University in NYC, and one of our best advocates. In the meantime, this website has plenty of resources for the newly diagnosed celiac patient.

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Wow! You guys are just like me. I have a bad back and was constantly taking NSAIDs. I came up anemic again 8/05 and had 2 pts blood to help. positive for h-pylori and was treated for that then. had stomach pain after that (was not terribly bothered with anything but constipation before). went to GI Dec 19th, who said I had classic ulser symptoms. did an endoscope w/biopsy on 12/22. he still didin't know about celiac. said I had gastritis, hiatal hernia (that was a shock) but no apparent ulcer. The biopsy came back positive blunting of villi and blood test (last week) since verified anitgens (haven't seen that test yet) He told me NEVER to take NSAIDs again. What do you do for the inflamation now? I hate my ortho but I guess I'll have to contact him again. My 'gut' is more messed up now than before diagnosis but maybe not as bad this morning. been gluten-free for 1 week. Guess I'm just transitioning. We look like we're just about the same time table so I'd be interested to know how you progress.

Tina, Arkansas

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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