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Cigarettes?
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I haven't heard from anyone else on this board about cigarettes, and am wondering if they're ok. I'm not a regular smoker, but have maybe one cig. every 3 months or so. I haven't had any since going gluten-free, however (8 months ago.) Are they considered "safe" or it something we have to call the manufacturer about?

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cigarettes Are they considered "safe" or it something we have to call the manufacturer about?

Gillian, I think that you're referring to Gluten content (correct me if I'm wrong) in this topic, but I'd like to share a little of my story and Toot my own horn, so to speak. There is a cigarrette topic under Coping With Celiac started on 3-17 by Mario that I found very interesting. It has a lot of replies and in these, I learned that it could be contributing to my Celiac as well as ruining my health in other ways. I'd smoked for about 40 + yrs; 3 pkg. a day! Stupid ? YES!! but truthful!!

I had cut back to 1 pkg a day and could tell it helped but I still had problems. After reading this string, I bought a box of patches, finished the last cigarette in the house, put on a patch and haven't had a cig. since!!! I'm so happy to be free of them and feel a lot better. THANKS to all who wrote on this string!!

I still have days of temptation but they are getting less and with God's help and all the help I've received here, I know I can do this and stay clean. I'm very interested in responces to your question as I'd never even considered that they might contain gluten! There is so much knowledge here!

Thanks for listening! Granny

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Granny -

I heard through the grapevine that cigarette papers contain trace amounts of gluten. Whether this is true or not I am not sure. Like I said I didn't hear it from a doctor or manufacturer just a friend commenting on it. Sorry I don't know for sure or have more information. If you find out let me know because I'm around smokers all the time, and it would be a nice thing to know.

Sorry I can't help more!

MURDA

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if the gluten doesn't bug you, the formaldehyde will! etc!

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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