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Hmm...not sure where to start.... I guess I will start with my son. About 5 years ago I started researching answers for my son's behavior problems. He was found to have ADHD, gluten and casein intolerances as well as allergies to other foods. He has been on a gluten free casein free diet for about 5 years, and we are still learning.

I have basically been on his diet in order to keep him on it, but I do cheat much more often than he does. I did notice some improvement in my sinus problems and some bowel changes when I started eating the Gluten-free Casein-free diet. I also noticed that I seem to have problems with certain foods such as severe stomach pains with eggs and broccoli and oatmeal constipates me. Since Christmas I have eaten more things more frequently that are not Gluten-free Casein-free. I have become increasingly tired. I ache all the time especially in the mornings. My back muscles stay extremely tight to spite buying a new mattress. I have a rash on the back of my neck that won't go away and have been getting sores in my mouth. My mouth got real bad last week, my tongue felt 3 times its normal size making it difficult to pronouce words. My GI track was a mess from my mouth on down. I can't say I really have diarrhea but mostly constipation with occassional loose stools. Anyway I finally went to the doctor about my mouth which was almost healed by the time I got the appointment. He did a CBC which was off. He said I may be deficient in folic acid and vitamin B12 and said to take vitamins and come back to have the blood tests again in 3 months. Since my appointment I have noticed tiny blister like bumps on my knees (only a few) that itch. (I can't see the rash on my neck so not sure what it looks like.) Also, over the past who knows how long, I can't seem to think straight, my brain seems to be in a fog all the time, and for a long time I have been fighting depression.

Ok, for the questions. I am wondering that with my son's problems might I have had undiagnosed celiac disease? If I take vitamins for 3 months, whether or not I keep eating gluten, will that mask any deficiencies that are there due to malabsorption? I feel that from what I eat, I should not be deficient in either B12 or folic acid. Should I take the vitamins, wait three months and see what happens or ask the doctor to do the blood tests for celiac disease or refer me to a gastroenterologist?

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Talk to your doctor about the changes the diet has made for you. It sounds like you went gluten-free, then started eating some again, and your body is now throwing a fit at you because it doesn't like gluten! Since your son is gluten-intolerant, he most likely inherited it from someone: you! Taking vitamins will not mask the symptoms of celiac. Being gluten-free will make the tests come back a false negative, unless you do the Enterolab tests. I wouldn't wait three months. Three months is a long time to not feel well.

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HI feedjake92,

I would make an apt to see either your Gastro or Family doc as soon as possible and talk to them about the symptoms you are experiencing. I sugget making a list of your symptom, making notes of when they started and how long they last. Also keep a food diary or everything you eat, that way it will give your doctor a much broader view of your health problems.

Good luck to you and God Bless

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    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
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