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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

My Journey
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6 posts in this topic

Hello Everyone!

I've been watching the entries these past couple months and really getting a kick out of the responses. My favorite today was, "annoying comments." HAHA! Been there before...sigh!

I thought I would go ahead and make my first entry and become of part of this wonderful support group!

My history starts back when I was a wee little girl belching beyond belief and even embarressing my 3 brothers because of my skills. Aparently they weren't skills but a disorder that I just discovered back around June of 2005. Everything started to get worse, very worse. So, I made an appointment with a holistic doctor to mainly find out why my mentrual cycles were so crazy, and we ended up talking most of the time about all of the digestive disorders I was going through (I was thinking they were just normal). She suggested a book "Eat Right for Your Type" by Peter D'Adamo. So immediately I got the book, and followed the basic steps of 'wheat is your enemy!' and WALAH! Cured! I was amazed after about 24 hours of not eating wheat, bread, pasta etc. I was feeling like a new woman and tickled pink about my new discovery.

I did go through a slight depression and some denial after realizing gluten was in everything. Then I just got tired of feeling so ill and told myself it was time to be true to myself and to my poor abused intestines. Needless to say the menstrual cycles regulated too as a part of my lifestyle change.

My favorite bread I found is Millet Bread by Deland Bakery and I buy it at Health Foods Unlimited here in Dayton, Ohio. You can also buy it online, and their bagels are scrumptious! I also read a book called "Dangerous Grains" by James Braly which REALLY helped my understand the actual physiological effects of what's really going on in our bodies when we eat wheat or gluten. I'm the type of person that wants to know how everything works, even right down to the cellular level. Another book I really enjoy is "Gluten Free Groumet" by Bette Hagman. Every recipe I've tried in there has been fabulous and delicious. She really has discovered ways to make gluten-free bread very moist.

So right now I'm just living my life reading labels and enjoying the act of cooking gluten free meals that my husband will enjoy also. He's been such a blessing in my life and so supportive! Don't get me wrong, I have my bad days of depression and feeling ill if I accidentially ingest it, but I'm trying to maintain the positive attitidue, I guess that's the only way to survive!

But I wanted to thank everyone for their humor and good insight to this new lifestyle we've all been a part of!!

Emily LMT

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Welcome to the board! I have found this board to be a life saver! It truly is a great group of people.

Hez

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Hi Emily . . .

WELCOME to the Board ! ! ! I just joined myself three days ago, and have gotten a real education from this Board. These are intelligent, funny (I'm Gellin') kind of people who are taking Celiac seriously. Thank you for your book recommendations. I've made a list of product recommendations from fellow Board members, and just yesterday picked up some new grocery items I would have never looked for before.

Dianna

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Welcome!! This board has been so helpful to me!

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Emily,

Welcome to the board :D

Good for you for listening to your body, educating yourself and having a positive attitude about the whole thing. ;)

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Hi Emily Welcome to the board. It has been a real life saver for me and my husband. There is a lot of helpful information here and a lot of super caring and supportive people to help with your questions and concerns on your "journey". Good Luck.

Jennifer

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    • Weird Reaction
      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
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