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My Journey
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6 posts in this topic

Hello Everyone!

I've been watching the entries these past couple months and really getting a kick out of the responses. My favorite today was, "annoying comments." HAHA! Been there before...sigh!

I thought I would go ahead and make my first entry and become of part of this wonderful support group!

My history starts back when I was a wee little girl belching beyond belief and even embarressing my 3 brothers because of my skills. Aparently they weren't skills but a disorder that I just discovered back around June of 2005. Everything started to get worse, very worse. So, I made an appointment with a holistic doctor to mainly find out why my mentrual cycles were so crazy, and we ended up talking most of the time about all of the digestive disorders I was going through (I was thinking they were just normal). She suggested a book "Eat Right for Your Type" by Peter D'Adamo. So immediately I got the book, and followed the basic steps of 'wheat is your enemy!' and WALAH! Cured! I was amazed after about 24 hours of not eating wheat, bread, pasta etc. I was feeling like a new woman and tickled pink about my new discovery.

I did go through a slight depression and some denial after realizing gluten was in everything. Then I just got tired of feeling so ill and told myself it was time to be true to myself and to my poor abused intestines. Needless to say the menstrual cycles regulated too as a part of my lifestyle change.

My favorite bread I found is Millet Bread by Deland Bakery and I buy it at Health Foods Unlimited here in Dayton, Ohio. You can also buy it online, and their bagels are scrumptious! I also read a book called "Dangerous Grains" by James Braly which REALLY helped my understand the actual physiological effects of what's really going on in our bodies when we eat wheat or gluten. I'm the type of person that wants to know how everything works, even right down to the cellular level. Another book I really enjoy is "Gluten Free Groumet" by Bette Hagman. Every recipe I've tried in there has been fabulous and delicious. She really has discovered ways to make gluten-free bread very moist.

So right now I'm just living my life reading labels and enjoying the act of cooking gluten free meals that my husband will enjoy also. He's been such a blessing in my life and so supportive! Don't get me wrong, I have my bad days of depression and feeling ill if I accidentially ingest it, but I'm trying to maintain the positive attitidue, I guess that's the only way to survive!

But I wanted to thank everyone for their humor and good insight to this new lifestyle we've all been a part of!!

Emily LMT

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Welcome to the board! I have found this board to be a life saver! It truly is a great group of people.

Hez

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Hi Emily . . .

WELCOME to the Board ! ! ! I just joined myself three days ago, and have gotten a real education from this Board. These are intelligent, funny (I'm Gellin') kind of people who are taking Celiac seriously. Thank you for your book recommendations. I've made a list of product recommendations from fellow Board members, and just yesterday picked up some new grocery items I would have never looked for before.

Dianna

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Welcome!! This board has been so helpful to me!

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Emily,

Welcome to the board :D

Good for you for listening to your body, educating yourself and having a positive attitude about the whole thing. ;)

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Hi Emily Welcome to the board. It has been a real life saver for me and my husband. There is a lot of helpful information here and a lot of super caring and supportive people to help with your questions and concerns on your "journey". Good Luck.

Jennifer

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    • You're welcome! Yes, I too, hate waiting for lab results. Ugh!
    • I understand this is not a doctor's office and that I need proper testing done to rule out Celiac disease, however, I am stuck waiting until November to even see a GI doctor. So I need some suggestions soon on which test to go for first and what to do as I wait. Also do note, I am 28 years old.

      Right now, the most suspecting culprits to my symptoms have been Gallbadder, Celiac disease, and IBS. I have also been recently diagnosed with pre-diabetes and I am obese.  My Ultrasound and CT scan have all come up as normal and no signs of gallstones. However, I was in extreme pain as my upper abdomen was examined during the ultra sound. My white blood cell count also seems to be high at 12,000 but all blood work came back normal for liver and everything else.

      Symptoms included are: diarrhea
      yellow-stools (Sometimes foul smelling but always sink)
      light gnawing pain in area a few inches above belly button
      burning in chest
      sometimes pain below upper right rib cage.
      Tenderness all around the upper abdomen, but more so on the right and center.
      burping frequently after meals
      Gassy
      bloating in abdomen The pains used to come and go for the past few years as something very mild, but then the yellow stools happen at least four months ago and at a constant rate. Everyday it is either yellow or orange.  Sometimes the stools are lose and other times they are not. Two months in, I was finally diagnosed with pre-diabetes and have been having a strict low calorie and non fatty diet.

      So far the upper right pain has subsided but the pain above my belly button would continue. The gassy and bloated feeling would come and go as well. I get severe heart burn after almost every meal. But I felt it especially after eating whole wheat sandwiches or whole wheat pasta. I however don't feel it when I eat a Nature Valley granola bar, or pack of peanut butter crackers. I also had a chicken and vegetable stir fry with soy sauce cooked in that also had little effect on me. A bowl of cereal also made the heart burn act up pretty bad. I sometimes feel numb or light headed after various meals. Especially larger ones. In fact, it seems the more I eat, the worse I feel. But the less in the stomach, the more the pain above my belly button starts to act up.

      It is usually in the morning and afternoon I feel the most with gas and bloating. Especially after any large meals from the previous day. Despite the diet and work outs I have had, nothing has changed the stools. However, taking fish oil pills has greatly reduced the pain in my upper abdomen as well as the pain  in the the area above my belly button. My question now is, is there a very likely chance of this being celiac disease? Should I go on a gluten free diet to test since I Have to wait so long? Also, which test should I ask the doctor for first, as it will take a GREAT deal of time to pay off each one. Colonoscopy, HIDA scan, or endoscopy. 

      Again, I understand this isn't a site to get compete medical advice or to know exactly what my illness is, but I am trying to narrow down the possibility or what is most likely. If this has a chance of being celiac disease, I would rather know sooner than later.
    • Thank you very much for all the info Squirmingitch. The doctor told me as we were talking he was going to order some tests with urine so I don't know why he didn't mark that. Maybe he forgot as we were talking? Duly noted about the bladder Cancer to watch out for too. Doctor said it will take about a week to get the lab results back usually from this lab. The wait will seem like forever I'm sure. Yes I will press to have the other tests done too if this one comes back negative.
    • http://www.cureceliacdisease.org/screening/ Was your hubs tested for total IgA to see if he's IgA deficient? Read this thread: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/83660
    • Yes, bone density problems are all part of the celiac "umbrella" so to speak and yes, osteoporosis tends to happen more rapidly and at earlier ages than normal when malabsorption is happening. At age 43, it's not normal to have osteoporosis as you describe so that's another part of the jigsaw puzzle. Time to receive blood test results back from the doc are entirely dependent on the particular lab they were sent to. Yep, it's time for you to start keeping a very close check on the PSA in light of your father having had prostrate cancer. I would think you should get a PSA every year. I really would have liked to see him do a urinalysis. With the prostrate cancer your father had, it would seem a close watch should be kept on you for bladder cancer as well. The first symptom of that is blood in the urine but it's generally microscopic before you're ever able to actually see it. That happens to be the 8th most common cancer in men & it's moving up in the rankings. I know this because my hubs had it. The good news is that it's also one of the easiest and most successfully treated provided it's caught early. Certainly starting @ age 50, men should see a urologist every year. BTW, in the last year before I found out I was celiac, I turned up with microscopic blood in my urine. I got it checked out thoroughly since I know about bladder cancer & all tests, ultrasounds, cystoscopy, CT scan etc... turned out fine. The docs were stumped & finally said, "apparently that's just what your body does". Guess what? That's not "just" what MY body does. Once I went gluten-free, I have had no more microscopic blood in my urine. Interesting eh? Before now I didn't realize you are in Canada. The doc didn't do the full celiac panel but I understand the initial screening protocols in Canada only order the TTG but if that comes back negative be sure & press for the full panel as cyclinglady said. We have several here who tested like cyclinglady so it's not a rare thing, it's just not the norm. I'm glad he's doing the B-12 & Ferritin -- those can be big clues.
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