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My Journey
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6 posts in this topic

Hello Everyone!

I've been watching the entries these past couple months and really getting a kick out of the responses. My favorite today was, "annoying comments." HAHA! Been there before...sigh!

I thought I would go ahead and make my first entry and become of part of this wonderful support group!

My history starts back when I was a wee little girl belching beyond belief and even embarressing my 3 brothers because of my skills. Aparently they weren't skills but a disorder that I just discovered back around June of 2005. Everything started to get worse, very worse. So, I made an appointment with a holistic doctor to mainly find out why my mentrual cycles were so crazy, and we ended up talking most of the time about all of the digestive disorders I was going through (I was thinking they were just normal). She suggested a book "Eat Right for Your Type" by Peter D'Adamo. So immediately I got the book, and followed the basic steps of 'wheat is your enemy!' and WALAH! Cured! I was amazed after about 24 hours of not eating wheat, bread, pasta etc. I was feeling like a new woman and tickled pink about my new discovery.

I did go through a slight depression and some denial after realizing gluten was in everything. Then I just got tired of feeling so ill and told myself it was time to be true to myself and to my poor abused intestines. Needless to say the menstrual cycles regulated too as a part of my lifestyle change.

My favorite bread I found is Millet Bread by Deland Bakery and I buy it at Health Foods Unlimited here in Dayton, Ohio. You can also buy it online, and their bagels are scrumptious! I also read a book called "Dangerous Grains" by James Braly which REALLY helped my understand the actual physiological effects of what's really going on in our bodies when we eat wheat or gluten. I'm the type of person that wants to know how everything works, even right down to the cellular level. Another book I really enjoy is "Gluten Free Groumet" by Bette Hagman. Every recipe I've tried in there has been fabulous and delicious. She really has discovered ways to make gluten-free bread very moist.

So right now I'm just living my life reading labels and enjoying the act of cooking gluten free meals that my husband will enjoy also. He's been such a blessing in my life and so supportive! Don't get me wrong, I have my bad days of depression and feeling ill if I accidentially ingest it, but I'm trying to maintain the positive attitidue, I guess that's the only way to survive!

But I wanted to thank everyone for their humor and good insight to this new lifestyle we've all been a part of!!

Emily LMT

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Welcome to the board! I have found this board to be a life saver! It truly is a great group of people.

Hez

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Hi Emily . . .

WELCOME to the Board ! ! ! I just joined myself three days ago, and have gotten a real education from this Board. These are intelligent, funny (I'm Gellin') kind of people who are taking Celiac seriously. Thank you for your book recommendations. I've made a list of product recommendations from fellow Board members, and just yesterday picked up some new grocery items I would have never looked for before.

Dianna

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Welcome!! This board has been so helpful to me!

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Emily,

Welcome to the board :D

Good for you for listening to your body, educating yourself and having a positive attitude about the whole thing. ;)

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Hi Emily Welcome to the board. It has been a real life saver for me and my husband. There is a lot of helpful information here and a lot of super caring and supportive people to help with your questions and concerns on your "journey". Good Luck.

Jennifer

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    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
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