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Seattle Area Anyone?
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16 posts in this topic

Just wondering if there is anyone from the seattle area on here???

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Just wondering if there is anyone from the seattle area on here???

I am now! (moved up here three months ago)

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Just wondering if there is anyone from the seattle area on here???

I live in Seattle. I've also been looking for others in Seattle that frequent this forum. How long have you been gluten free? I'm on yahoo messenger as massage45678 if you want to chat.

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We live in Bellevue. My two daughters and I are all gluten-free. You're in Woodinville? Have you been to Made by Mona's yet? I just heard about this place -- it's just off of 522 and 202. Here is her website:

http://www.madebymona.com

Laura

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I live in lakewood, which is about 40 miles South of Seattle.

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Hi,

I too am in Seattle, north end.

Do y'all go to any of the local support groups? Or is this the place?

bb22

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I'm in Federal Way. One of my children is gluten-free too. Just went to Kaili's kitchen in Edmonds today. It was a little, let's say, informal, but sure was nice to have fish and chips for the first time in 10 years.

Liz

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Hi All of You in the Seattle Area:

I LEAD A CELIAC SUPPORT GROUP WHICH MEETS IN BOTHELL (NORTH SEATTLE AREA) on every 2nd Tuesday of the Month. We meet next on Valentine's Day (February 14) 7-8:30pm. We will have free NAMASTE gluten-free goody samples and discuss 'Travelling with celiac disease'. If you're interested, email me, penguinea@hotmail.com and I'll send you directions to our meeting location. Our group is called 'SNOCOCELIACS' because we used to meet at "Kaili's Kitchen" in Snohomish County. When I assumed leadership last August, I chose a nonrestaurant location to eliminate restaurant noise distractions during our discussions.

If 2nd Tuesdays don't work for you or if you would prefer an Eastside (Bellevue/Redmond) location, another group which calls themselves "Seattle Celiacs" (yeah, that's confusing) meets on 3rd Tuesdays at the Group Health Eastside Hospital from 7-9pm. Contact earl.ley@comcast.net. He leads that group.

BURDEE

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I'm live in Bellevue...just moved here with my DF three weeks ago. I'm not officially gluten-free yet (tried an elimination diet, found some positive results, but waiting until I have Enterolab or similar to go off officially), but I would love to hang out and talk with other Seattle-area gluten-free folk. I have had eczema since I was an infant, IBS since 17 or so, and after I moved to Russia for six months, an explosion of systems, mostly related to pain/cramping/heaviness in legs and arms, breathlessness, bloatedness, and anxiety. Getting an EKG in Moscow....quite the adventure! I also have a family history of GI problems, anemia and infertility. I like the idea of drug-free treatments, so if the tests turn up even suggestive of gluten intolerance...I'm done with it.

I'd love to stop by these groups. Thanks for letting us know about them! :)

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I live in Seattle. I've also been looking for others in Seattle that frequent this forum. How long have you been gluten free? I'm on yahoo messenger as massage45678 if you want to chat.

I live in sammamish I was just diagnosed three weeks ago with celiac's. It really sucks so basiclly i have only been gluten free for three weeks.

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I used to live in Seattle. Most beautiful city ever--I still miss it :( . Go hear the Seattle Symphony--they are terrific!

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I was in Seattle last year for vacation. Loved it there.......I will vouch for Mona's mixes from Woodinville. Her pancake mix is the very best I have ever eaten.....I tried to contact Kailli's place but she just about hung up in m y ear so I can't say I was impressed with her. Maybe she was having a bad day ..........She was the first celiac that wasn't friendly and helpful ......

By the way Lisa from Mona's mixes contacted me immediately after I left her a message and she is very polite and friendly...

mamaw

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Hello Everyone!

I live in Kirkland, which is in the Greater Seattle area. I suspected I had celiac disease now for the last year or more, but I just received my results from the biopsy via the mail today, Yippee.

/wave

My first post here...

:unsure:

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I lived on Cap Hill for several years...now I live in Bellingham (1.5 hours north). I don't miss Seattle traffic, noise, or smell...but other than that. I miss Lake Union, and rowing, and restaurants that are open late, and "Whole Paycheck..." I mean, Whole Foods.

B-ham is great, though. Got the fresh air, enough dogs to satisfy anyone (even me), trails, mountains, skiing, Vancouver BC...yeah, I like Bellingham.

All you Seattle-area-ites should make a trip up here and we can all go on a Celiac hike in the Chuckanuts.

Welcome, anyway, though I see it was months ago you started this post.

Yeah, Seattle! (I read that Seattle was voted #2 good eatin by PETA - lost to San Francisco but beat out New York for place 2...never mind PETA makes me cranky, that's another story.)

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Can anyone confirm that Kaili's kitchen or Kaili's Bakery has moved to;

10003 Greenwood Ave N

Seattle, WA 98133

I haven't been there yet and would like to try it out!

-Thanks

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I lived on Cap Hill for several years...now I live in Bellingham (1.5 hours north). I don't miss Seattle traffic, noise, or smell...but other than that. I miss Lake Union, and rowing, and restaurants that are open late, and "Whole Paycheck..." I mean, Whole Foods.

B-ham is great, though. Got the fresh air, enough dogs to satisfy anyone (even me), trails, mountains, skiing, Vancouver BC...yeah, I like Bellingham.

All you Seattle-area-ites should make a trip up here and we can all go on a Celiac hike in the Chuckanuts.

Welcome, anyway, though I see it was months ago you started this post.

Yeah, Seattle! (I read that Seattle was voted #2 good eatin by PETA - lost to San Francisco but beat out New York for place 2...never mind PETA makes me cranky, that's another story.)

Bully4You,

I like Bellingham as well. I went to WWU for 2 + years up there. Very pretty area. Now I live about 30 minutes from Vancouver WA. Another pretty area but not as picturesque as Bellingham. I would love to try and get to NE Washington but jobs aren't very plentiful there and my hubby is the only income earner as I stay home with the kiddies.

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    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
    • Annual celiac antibody testing is, in my opinion (and based on what celiac researchers have published), is critical, especially for a 12 year old.  Life is going to get harder for her.  Peer pressure is huge (I have a 15 year old daughter), and remaining diet compliant can be tough.   In Dr. Fasano's, Gluten Freedom, he discusses a young patient who became ill in high school after being gluten free for years.  His parents were perplexed.  Dr. Fasano took the young man aside and he confessed that while on a date, he didn't want to bring up his celiac disease.  So, he ate pizza.  He was too embarrassed to tell his parents.   My daughter does not have celiac disease.  She was first tested two years ago.  Since she is symptom free, is not anemic and her other lab work is fine, we'll wait to test her in another year.  It all depends on the patient, but every few years, testing is recommended for all undiagnosed first-degree relatives.   It certainly sounds like your younger children should be screened.   I wish you both well!      
    • Perhaps you should consider asking for a GI referral.  You might just skip the blood tests and go directly to an endoscopy/biopsies while you are still consuming gluten.  It is the "gold" standard for a celiac diagnosis anyway!   Here's the deal with going gluten free.  You can do it.  It costs nothing, but you must give it six months or longer.  You'd need to think like a celiac, but it can be done!  I'll tell you my tale.  My hubby went gluten-free 15 years ago per the very poor advice of his GP/PCP and my allergist.  After a year of mistakes and learning, he got well.  It worked!  Thirteen years later, I was formally diagnosed.  (It was a shock as I was only anemic at the time.)  Hubby would be the first to say that I have had way more support from family, friends and medical.  I must say, it's nice to see those lab results.  It really helped me adhere to the diet in the beginning too.   So, you know your medical situation.  You must do what's best for you!   I hope you feel better soon!  
    • I'm sure going to have a long talk with my doctor.  Then I'll find a new one that will support me and make sure that my daughter and I both have the proper testing done yearly.  
    • also:  glutendude - i don't get it.  shouldn't it be glutenfreedude?  lolz i eat out few and far between.  most of the times i've been glutened it's been eating out.  this weekend i'm getting my bacon cheeseburger on at red robin  i always get my 'good' waitress - lucky, i guess, paula takes good care of me   and i will eat at bonefish but they have a limited 'safe' menu.  look for places that have the 'GiG'  training they know their stuff.  mellow mushroom, melting pot, california pizza kitchen, pf changs are all supposed to be trained that way.  they know to avoid cc and change their gloves, etc.  
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