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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten In Rice Milk? Other Problems
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3 posts in this topic

I've been trying to use Rice Dream Rice Drink instead of cow's milk or soy milk wirh rice chex in the morning, or with Carnation instant breakfast at dinner (which I now know to stay away from). When I do I have problems in AM, then am ok, then problems pm, then ok.

Hidden on the back of the box (other flavors list this under ingredients so I haven't tried them) are the words "contains gluten from barley protein at less than 0.002%." Is that enough to bother?

My ELab results were "thumbs down" for gluten, dairy, egg, and yeast. I switched to rice drink rather than soy milk because I thought that bothered me. Fiber seems to bother me, and for some reason sugar really bothers. I can have Lifestream/Nature's Path Buckwheat Wildberry Toaster waffles (gluten, dairy, yeast, and egg free)(taste okay) with margarine and am ok. With syrup I have problems. Jello is bad. Jelly beans bad. Honey ham seems to bother. Etc.

If anyone has problems with soy products or sweets your comments would be appreciated. Rice Chex lists sugar as #2 ingredient even though they are not sweet.

re: eggs

Am going to try cornbread again, I've been shying away from corn products while I sort other things out. Not sure whether to use an egg or not. One piece of cornbread would be 1/9 of an egg, about the same as a couple Gluten Free Pantry chocolate chip cookies (not bad) which didn't seem to bother. Try it and see?

I guess this post is about as confused as I am. Losing eggs, yeast, and dairy really made things tough - no more bread or rolls. If I can save corn it will be a big plus.

If you are on a low budget I plan to post a good leftover chicken over rice recipe in the food forum tomorrow. One cup of diced chicken is enough for me and mom for dinner.

Talk to you folks later.

Phil

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You betcha that's enough to bother! That is all it takes to cause a reaction in me. I have had to quit eating all processed cereals because even that little bit does me in. Instead of an egg, try 1 Tbsp of ground flax mixed with 3 Tbsp of water, set aside to thicken for a minute. I use it in my pancakes, and it works just great! Also, the rice chex I used to eat listed malt flavoring, which is a barley product, in the ingredients.

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If anyone has problems with soy products or sweets your comments would be appreciated.

Hi Phil,

I am allergic to soy, so I don't use soy milk anymore for myself. At the doctor insistance I bought some for my kids. The doctor did warn me that they might be soy intolerant as well as gluten and dairy. One out of three of my kids gets a bad stomachache after drinking the soy milk. By the third day he was rolling on the floor in pain and couldn't go to school. It wore him out and he ended up taking a three hour nap! For a 7 year old this is a big deal! ;) So no more soy milk for him. He does okay on smaller amounts of soy. Like the soy lecithin and soybean oil in products and the soy flour in the gluten-free pretzels. But the soy milk was just too much for him.

You should try to find a rice milk that does not use barley in the processing. Rice Dream is a no-no for us, but I have used Pacific brand. We prefer Blue Diamond Almond Breeze. It tastes great and we use the plain flavored for our cereal and the chocolate for drinking. I recommend that you skip the vanilla flavored it just doesn't taste right. I do hope you feel better.

There are lots of substitutes for eggs when cooking. I would suggest trying those before using eggs. At least for a while and let your self heal. You may someday be able to tolerate eggs and yeast again. There are some other "raising agents" that can be used instead of yeast also. Here is a good

article on yeast free baking .

God bless,

Mariann

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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