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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Free
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Havent been on the gluten-free diet that long-but have noticed an extreme change. it used to be whenever i ate; i felt sick. i have dropped from 160 to 130 in a short amount of time. does anyone know when and if i can put weight on? any ideas how to do this? i take vitamins and glutamine. just wanting to add a little weight. also, i am constantly hungry on gluten-free diet. sometimes wake up in the morning literally starving? anyone know why? i have only had two incidents in the past month where i have had a "belly blowout" or celiac bowel episode and that was when i ate out at a fish restaurant. Was grilled cod supposedly in lemon butter only-obviously not.

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Whole brown rice is the perfect food for people with celiac disease. It digests slowly, so you avoid a hypoglycemic reaction, it fills you up, so you avoid feeling hungry, and it is nutritious. Combine it with some fresh meat, and vegetables and you have a perfect meal. Just look at the billions of people who live on these types of foods, and compare them to the people who live on wheat.

One bit of advice. Do not use instant rice. I have had bad reactions to it, and suspect there is gluten in it. According to one article I read, up to 20% of foods called

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Not sure how long you've been gluten-free but if it's only for a month it will take more time. You will feel hungry a lot because now you actually feel like eating and your body is craving the nutrients you weren't getting. My doctor had me eating lots of protein -- think meat -- with every meal. I had dropped from 155 to 135. Because I kept pigging out and not exercising I eventually gained 70 pounds -- way too much. I've dropped 30 of that in about three months and want to lose 10 more.

I would also agree that for now you don't want to be eating at restaurants. Later, after you've healed, you could venture out to some local places with chefs or owners you can talk to. Eating out is risky but I've found impossible to live a nearly normal life without doing it every now and then.

richard

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Thanks for your help. i only eat long grain white rice cooked in a rice cooker.i have never tried brown rice-love the white rice. will try brown rice soon. i also love mrs leepers corn pasta-taste just like "regular" macaroni. thank you for everything.

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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