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Gluten Free
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Havent been on the gluten-free diet that long-but have noticed an extreme change. it used to be whenever i ate; i felt sick. i have dropped from 160 to 130 in a short amount of time. does anyone know when and if i can put weight on? any ideas how to do this? i take vitamins and glutamine. just wanting to add a little weight. also, i am constantly hungry on gluten-free diet. sometimes wake up in the morning literally starving? anyone know why? i have only had two incidents in the past month where i have had a "belly blowout" or celiac bowel episode and that was when i ate out at a fish restaurant. Was grilled cod supposedly in lemon butter only-obviously not.

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Whole brown rice is the perfect food for people with celiac disease. It digests slowly, so you avoid a hypoglycemic reaction, it fills you up, so you avoid feeling hungry, and it is nutritious. Combine it with some fresh meat, and vegetables and you have a perfect meal. Just look at the billions of people who live on these types of foods, and compare them to the people who live on wheat.

One bit of advice. Do not use instant rice. I have had bad reactions to it, and suspect there is gluten in it. According to one article I read, up to 20% of foods called

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Not sure how long you've been gluten-free but if it's only for a month it will take more time. You will feel hungry a lot because now you actually feel like eating and your body is craving the nutrients you weren't getting. My doctor had me eating lots of protein -- think meat -- with every meal. I had dropped from 155 to 135. Because I kept pigging out and not exercising I eventually gained 70 pounds -- way too much. I've dropped 30 of that in about three months and want to lose 10 more.

I would also agree that for now you don't want to be eating at restaurants. Later, after you've healed, you could venture out to some local places with chefs or owners you can talk to. Eating out is risky but I've found impossible to live a nearly normal life without doing it every now and then.

richard

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Thanks for your help. i only eat long grain white rice cooked in a rice cooker.i have never tried brown rice-love the white rice. will try brown rice soon. i also love mrs leepers corn pasta-taste just like "regular" macaroni. thank you for everything.

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Going gluten free may be beneficial if you're among the roughly 10 percent of people who suffer from celiac disease, a genetic immune disorder, ... View the full article
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