Stressed And New To Celiac
Posted 28 April 2004 - 06:43 AM
Posted 28 April 2004 - 12:06 PM
You don't say how long she's been gluten-free but people who have been really, really sick take a while to respond. I was in the hospital 11 days and missed 10 weeks of work, all because of celiac. I also had the chills (and night sweats), which is a somewhat unusual symptom, and I had them for at least six weeks. Mood swings weren't a problem, but this is a common symptom in children.
And make sure, if you haven't already, that you get rid of sources of contamination. Don't use old teflon pans, wooden utensils or cutting boards, or that old toaster. Clean out all the silverware drawers. If you have old condiments, peanut butter, butter, jelly, etc. where you might have spread bread crumbs from the pre-gluten-free days throw those out and start fresh. Those are just a few suggestions.
Posted 28 April 2004 - 06:49 PM
If she is not already dairy-free conscider it for at least a few weeks to give her intestines time to heal. Once you reintroduce dairy, use the lactose free products for a while and this will give her system more of a break.
If she is having trouble digesting you may want to give her a dose of digestive enzymes with her meal. This should help her get more nutrition out of her meal, since her intestines are not healed yet.
Get the whole house gluten-free as soon as possible. With 4 of you needing the diet it will be easier all around. This will eliminate the possibilities of anyone getting contaminated by the other gluten sources. If there is anyone left in the house who is eating gluten, try to get them to eat their gluten when they are out of the home and if they have it at home to be very careful NOT to leave any crumbs or packages lying about. Have separate shelves and LABEL everything that is gluten-free, so the kids know what is safe and what is not. At 8 years old your daughter is old enough to start learning to read her own labels. My 7 & 9 year olds are doing this, and it is helping them alot to understand what is in the foods they can't have. I always double check in case they missed something and point out the "hidden glutens".
Patience is needed right now. It is a hard road to start down. Everything seems like an uphill battle, but it will get easier. Be patient with yourself and your kids and understand that mistakes will happen. Don't get upset by them, just learn from them and next time it won't be as likely to happen. And remember to ask as many questions as you need to to feel better about an issue. We have all had to ask and there are no stupid questions. Even after years we are all learning new things everday about Celiac Disease. Welcome to the message board.
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 29 April 2004 - 06:05 AM
Posted 30 April 2004 - 08:48 AM
Posted 30 April 2004 - 09:50 AM
Posted 08 May 2004 - 05:22 PM
Have you seen a pediatric gastroenterologist who specializes in nutrition ? If you live near a major city, most Children's Hospitals will have one, and probably most major teaching hospitals would have one. The pediatric GI/nutrition specialist dr we see (who is not our 'main' peds GI dr) works in a failure to thrive clinic. Have you at least been able to see a nutritionist who specializes in celiac ? That has been really helpful for us.
Someone else posted about staying away from casein (milk proteins) for a while and it sounds like you are doing that, is that per the GI dr you see? All three of my kids (triplets) were casein free for their first 4 yrs. They can now tolerate casein well, after going gluten free.
Good luck with your daughter, I hope she is feeling better soon.
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