32 replies to this topic

[floridanative]

Well I almost fainted a few minutes ago from sheer shock. GMA did a tiny story on celiac disease about 8:21 am today. I could NOT believe what I was seeing. I may have missed it but I don't think they mentioned that some people have 'C' which I think is important to list as a sypmtom as well. But hey, it's a start. I'm going to e-mail Dr. Tim on GMA as well as Robin to thank them. Hopefully some of you will do the same. Have a great day everyone!

[jerseyangel]

I KNOW! I was talking to my son before he left for work, and was walking back into to kitchen, and I heard the word "gluten" coming from the TV. I went in and saw the rest of the report, and hit the Tivo to record what I missed. I haven't watched it yet--I came up here to post that it was on, and got sidetracked reading the overnight posts! We're finally making the "big time" with GMA.

[jerseyangel]

I just e-mailed GMA to thank them for the report.

[happygirl]

After I read that post, I called my mom who loves GMA. She said she taped it for me!!! Good, good Mom!

[floridanative]

Wow LauraJ you're mom is a good mom!

Thanks for e-mailing GMA Patti!

I e-mailed GMA too and they actually had several articles on their site - I searched 'Celiac disease' and it said there was no match and then below were several articles on it. I printed them out but I have a question regarding getting info to family members. My GI told me that someone in my family has to have celiac disease if I do but so far I don't know of anyone. I'm planning to send my parents and two grown siblings the most comprehensive article I can find on celiac disease. But it needs to be easy to read so it can't be from a research study. They won't take the time to read and try and understand something like that. And I don't feel like sending them 10 articles b/c they again won't take the time to read. So if you guys could tell me what would you recommend as the absolute best, easiest to read and most comprehensive article on celiac disease. I need it to clearly mention that celiac disease is genetic.

Thanks in advance for any responses!

[VydorScope]

What is GMA?

[Judyin Philly]

Wow LauraJ you're mom is a good mom!

Thanks for e-mailing GMA Patti! I will also
And I don't feel like sending them 10 articles b/c they again won't take the time to read. So if you guys could tell me what would you recommend as the absolute best, easiest to read and most comprehensive article on celiac disease. I need it to clearly mention that celiac disease is genetic.

Thanks in advance for any responses!

Patti and FN thanks missed it today. rats.
I need a article like that 2...so much out there but want something just like that also for my 31 yr old son.
Judy

[jenvan]

Good Morning America...go here http://abcnews.go.co...tory?id=1543835

[jerseyangel]

Vincent--GMA=Good Morning America

Tiffany and Judy--Check out this link for information sheets that are, I think, user-friendly:

http://www.uchospita...eets/index.html

The lists titled "Genetic Testing For Celiac Disease" and "Celiac Disease Statistics" may be useful to you. I printed the Statistics list to show to my relatives.

[Judyin Philly]

thanks Jen and Patti
you guys are always on top of things.
I slept in this am.... wouldn't you know???
was on line last nite till 1:30 trying to find stuff on old threads re: dentist products-- they use. Saw your name Jen a couple of times. Was going to try to 'give you a rest' from my questions...as i've hit you pretty hard in the past BUT----- if you do know of the questioning things they use--- maybe you can send to me...still sleepy can't get clicking....
know the polishing stuff after cleanings, gloves, power in gloves, things they put on to numb the gums, mouthwash, are in question...???? anything else
Judy

[jerseyangel]

Tiffany--There was another article that someone posted a link to a while back. It was by Phil Lempert--the guy fron the Today Show. At the time, people said it was a good article, and would be a good one to show to relatives, etc. I agreed and printed it and sent it to my mom and dad. For the life of me, I can't remember that thread or the person who posted it. Maybe if they see this, they will let you know.

[floridanative]

Patti - I remember the Today article and I e-mailed them to thank them too. So I must have it somewhere in my big Celiac binder...I'll go through it again. I will check the other link you listed above as well. Thanks so much!

Judy - I have a dental cleaning in two months. I would never even thought about this....gosh I'm fairly intelligent but it seems you need to be a rocket scientist to think of everything. Thanks for mentioning. guess I'll call my dentist to see if he has gluten-free stuff to use on me. Surely they would?

Kimberly - My Mother has way more classic symptoms of Celiac than I do. She has her own pepto bismol (sp?) bottle with her name on it so she can drink straight from the bottle. Oh yeah - I'm sure she has it.

[Jnkmnky]

[VydorScope]

Ah okay.. I dont watch TV before work (I start at 6aM) so would never have seen it.