Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiac On Gma
0

33 posts in this topic

Well I almost fainted a few minutes ago from sheer shock. GMA did a tiny story on celiac disease about 8:21 am today. I could NOT believe what I was seeing. I may have missed it but I don't think they mentioned that some people have 'C' which I think is important to list as a sypmtom as well. But hey, it's a start. I'm going to e-mail Dr. Tim on GMA as well as Robin to thank them. Hopefully some of you will do the same. Have a great day everyone!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I KNOW! I was talking to my son before he left for work, and was walking back into to kitchen, and I heard the word "gluten" coming from the TV. I went in and saw the rest of the report, and hit the Tivo to record what I missed. I haven't watched it yet--I came up here to post that it was on, and got sidetracked reading the overnight posts! We're finally making the "big time" with GMA.

0

Share this post


Link to post
Share on other sites

I just e-mailed GMA to thank them for the report.

0

Share this post


Link to post
Share on other sites

After I read that post, I called my mom who loves GMA. She said she taped it for me!!! Good, good Mom!

0

Share this post


Link to post
Share on other sites

Wow LauraJ you're mom is a good mom!

Thanks for e-mailing GMA Patti!

I e-mailed GMA too and they actually had several articles on their site - I searched 'Celiac disease' and it said there was no match and then below were several articles on it. I printed them out but I have a question regarding getting info to family members. My GI told me that someone in my family has to have celiac disease if I do but so far I don't know of anyone. I'm planning to send my parents and two grown siblings the most comprehensive article I can find on celiac disease. But it needs to be easy to read so it can't be from a research study. They won't take the time to read and try and understand something like that. And I don't feel like sending them 10 articles b/c they again won't take the time to read. So if you guys could tell me what would you recommend as the absolute best, easiest to read and most comprehensive article on celiac disease. I need it to clearly mention that celiac disease is genetic.

Thanks in advance for any responses!

0

Share this post


Link to post
Share on other sites




floridanative: I am the only one in my family with celiac disease. Hey, I just figure it has to start somewhere... lucky me!! :( IF someone else has it, then they have no symptoms, signs, etc.

0

Share this post


Link to post
Share on other sites

What is GMA?

0

Share this post


Link to post
Share on other sites
Wow LauraJ you're mom is a good mom!

Thanks for e-mailing GMA Patti! I will also

And I don't feel like sending them 10 articles b/c they again won't take the time to read. So if you guys could tell me what would you recommend as the absolute best, easiest to read and most comprehensive article on celiac disease. I need it to clearly mention that celiac disease is genetic.

Thanks in advance for any responses!

Patti and FN thanks missed it today. rats.

I need a article like that 2...so much out there but want something just like that also for my 31 yr old son.

Judy

0

Share this post


Link to post
Share on other sites

Vincent--GMA=Good Morning America

Tiffany and Judy--Check out this link for information sheets that are, I think, user-friendly:

http://www.uchospitals.edu/specialties/cel...eets/index.html

The lists titled "Genetic Testing For Celiac Disease" and "Celiac Disease Statistics" may be useful to you. I printed the Statistics list to show to my relatives.

0

Share this post


Link to post
Share on other sites

thanks Jen and Patti

you guys are always on top of things.

I slept in this am.... :ph34r: wouldn't you know???

was on line last nite till 1:30 trying to find stuff on old threads re: dentist products-- they use. Saw your name Jen a couple of times. Was going to try to 'give you a rest' from my questions...as i've hit you pretty hard in the past :lol: BUT----- :blink: if you do know of the questioning things they use--- maybe you can send to me...still sleepy ;) can't get clicking.... :blink:

know the polishing stuff after cleanings, gloves, power in gloves, things they put on to numb the gums, mouthwash, are in question...???? anything else :blink:

Judy

0

Share this post


Link to post
Share on other sites

Tiffany--There was another article that someone posted a link to a while back. It was by Phil Lempert--the guy fron the Today Show. At the time, people said it was a good article, and would be a good one to show to relatives, etc. I agreed and printed it and sent it to my mom and dad. For the life of me, I can't remember that thread or the person who posted it. Maybe if they see this, they will let you know.

0

Share this post


Link to post
Share on other sites

Patti - I remember the Today article and I e-mailed them to thank them too. So I must have it somewhere in my big Celiac binder...I'll go through it again. I will check the other link you listed above as well. Thanks so much!

Judy - I have a dental cleaning in two months. I would never even thought about this....gosh I'm fairly intelligent but it seems you need to be a rocket scientist to think of everything. Thanks for mentioning. guess I'll call my dentist to see if he has gluten-free stuff to use on me. Surely they would?

Kimberly - My Mother has way more classic symptoms of Celiac than I do. She has her own pepto bismol (sp?) bottle with her name on it so she can drink straight from the bottle. Oh yeah - I'm sure she has it.

0

Share this post


Link to post
Share on other sites

Ah okay.. I dont watch TV before work (I start at 6aM) so would never have seen it.

0

Share this post


Link to post
Share on other sites

Judy--no problem :) As for the dentist--I asked them to verify all the products they use to be free from wheat, barley, rye and oats. They were able to do so and had an allergy/ingredient manual that classified products by certain allergens. I didn't have any problems with anything. I did not get a flouride treatment or have them verify that however. Is that what you were wanting to know ? I wasn't quite sure...

0

Share this post


Link to post
Share on other sites

Vincent - GMA won't know you didn't watch....just thank them and that will help.

I agree with Jnkmnky - we need to send tons of positive responses back to the media when they mention anything about Celiac disease. Boy I'm excited. I'm going to really focus on Martha Stewart now. For some reason I think she may do it before others with large shows. She really isn't the right format (since she'd do a cooking segment) to help people get tested but any publicity at this point is helpful I think. :)

0

Share this post


Link to post
Share on other sites

Judy - I have a dental cleaning in two months. I would never even thought about this....gosh I'm fairly intelligent but it seems you need to be a rocket scientist to think of everything. Thanks for mentioning. guess I'll call my dentist to see if he has gluten-free stuff to use on me. Surely they would?

quote]

FN--

Are you kidding, I'm intelligent too :lol: but I would NEVER have thought of it. Found a thread on it here a while back and ck'd it out but then-----Think Rachel--24 is the one who clued me in...she was talking yesterday about it on her ' Found a new Dr. thread'

My dentist kept saying.."Are you sure you don't have some other medical condition you've developed that your not telling us...." They mentioned my mouth being so dry...my tooth enamel not right, lots of gum problems..etc. attributed it to the antiob i have to take before going for hip replacement...

I'm calling to ck with them have been putting off going for cleanings because of dx and not wanting to take antiob and screw up my GI system.

Let me know what you find out.ok

Judy in PHilly

SHOOT---CAME ON HERE TO SAY I WROTE A THANKS TO DR TIM AND ROBIN ON GMA...AND FORGOT...BRAINFOG

YOU THINK?

Judy

0

Share this post


Link to post
Share on other sites

floridanative,

As far as having something to print out for relatives to read, the one I like to reference when wanting to explain everything, but not overwhelm is http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/ . It got a pretty good explanation in everyday language. It's also from the National Institutes of Health, which is part of the federal government, so who can argue with that?

Nancy

0

Share this post


Link to post
Share on other sites
Judy--no problem :) As for the dentist--I asked them to verify all the products they use to be free from wheat, barley, rye and oats. They were able to do so and had an allergy/ingredient manual that classified products by certain allergens. I didn't have any problems with anything. I did not get a flouride treatment or have them verify that however. Is that what you were wanting to know ? I wasn't quite sure...

Yep--thanks Jen.

I really must take the plunge and call them

how are you doing by the way and are you still using you 'spa mat'?

Judy

floridanative,

As far as having something to print out for relatives to read, the one I like to reference when wanting to explain everything, but not overwhelm is http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/ . It got a pretty good explanation in everyday language. It's also from the National Institutes of Health, which is part of the federal government, so who can argue with that?

Nancy

WOW WHAT A GREAT SITE

THANKS SOOOOO MUCH :rolleyes:

Judy in Philly

0

Share this post


Link to post
Share on other sites

By chance, I had a dental cleaning shortly after I was diagnosed, by chance. They couldn't verify the ingredients so for my cleaning/polishing, they just used toothpaste with fluroide.

At my new dentist, the hygenist gave me two options-regular cleaning or one with safe baking soda and a water spray. She said she actually prefers to use the baking soda so it worked out well!

0

Share this post


Link to post
Share on other sites

Nantzie - that is a great link - thanks! I am down to less than ten sheets of paper now due to printing everything out.

Off to the office supply store after lunch and then on to the library to check out a few books. I want to buy a gluten free guide for easy reference as well. If you only could purchase one book -which one would it be?

Judy - now I at least now why I had to have a root canal last spring. I take very good care of my teeth so the dentist was surprised. Oh and my dad had to have gum surgery a few years back. Maybe there's a connection to Celaic there?

0

Share this post


Link to post
Share on other sites

This could be just what everyone in my family is praying for, a cure for my Mother who has been sick all of her life. Thank you and everyone else for the research and support!!!

0

Share this post


Link to post
Share on other sites

I just emailed GMA- i didnt see the show, but they'll never know that. I love when basic TV stations (CBS, NBC, ABC) address Celiac- i always think they should be rewarded for doing so!

0

Share this post


Link to post
Share on other sites
This could be just what everyone in my family is praying for, a cure for my Mother who has been sick all of her life. Thank you and everyone else for the research and support!!!

I will be keeping your Mom and family in my prayers.... Hopefully, this is the answer to your prayers...

Hugs.

Karen

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,120
    • Total Posts
      919,468
  • Topics

  • Posts

    • Hi Alok, I suggest not eating any soy.  Soy is one of the top 8 food allergens in the USA.  Soy has other things about it that are not helpful to us.  Plus it is often sprayed with pesticides that are not so great for people.  Maybe you can try some other food for a while?  Also it might help to wash all your vegetables before using them. Just some ideas, I hope they help.
    • What she said!     The antibody panel is an important part of follow-up!
    • I have Celiac, Hashi's thyroid disease, Sjogren's Syndrome and Reynaud's Syndrome.  All have gotten better, inflammation wise, after 11 years gluten free.  I am very strict with my diet, never take chances if I feel the food is not really gluten free and limit the number of times I go out to eat.  I am not saying I never go out but it is normal for my husband and I to not see the inside of a restaurant for 3-4 months at a time and then I only eat at the places that have never glutened me.  I am lucky in that the state I live in has 3 restaurant chains that are run/owned by Celiac's, so they get it right every time. You have not been gluten free for very long, in reality.  It took me three years to completely rid myself of all symptoms related to the disease.  I was 46 at the time of diagnosis.  I know it is hard to accept that healing can take that long but you have to measure it differently.  Looking back, you should feel better than you did a year ago.  As time goes on, healing slowly takes place until you realize that certain problems have disappeared.  It is not as cut and dried as taking an antibiotic for an infection. http://www.drweil.com/drw/u/ART03424/Elevated-Creactive-Protein-CRP.html  Read this article on elevated c reactive protein. It is by Dr. Weil, who is a Harvard trained physician who chose to go the more natural route to healing people.  All his stuff is interesting.  Yes, your elevated level will most likely come down, as you heal better.  Pay attention to it but don't let it freak you out too much! 
    • Hi Calla, I think the safe answer is 12 weeks on gluten for a blood test.  I am pretty sure they say 2 weeks on gluten for the gut endoscopy.  But usually people/doctors don't want to  do an endoscopy before a positive blood test, so catch 22 there. There's a chance you still have active antibodies in your blood after 3 weeks off gluten.  But nobody can tell you for sure.  If you can get you doctor to test you now and in 9 more weeks if you are negative now, that might work.  If the doctor is willing to do 2 tests, that would be great. The best thing would have been to do all celiac disease testing before going gluten-free.  But sometimes it doesn't work out that way. The University of Chicago celiac center has an FAQ that answers some of your questions. http://www.cureceliacdisease.org/faq/i-dont-have-the-money-to-get-tested-for-celiac-disease-but-a-gluten-free-diet-makes-me-feel-better-is-it-okay-to-start-the-diet-without-being-diagnosed/ Welcome to the forum!  
    • Couldn't have said it better!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,159
    • Most Online
      1,763

    Newest Member
    Anns
    Joined