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Celiac On Gma
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33 posts in this topic

I saw it too! I heard Robin say "the hidden medical reason women might feel bloated" (or something similar) and was hoping it was about celiac. I sat glued to the tv for 45 minutes waiting, and wouldn't you know it, the second I take a break to go to the bathroom, that's when it comes on!

I caught most of it though, and it seemed pretty good. I always get chills when something about Celiac is publicized, feels like it's a small victory. I"ll e-mail a big thank you too. I've also been meaning to e-mail Elizabeth Hasselback from the view, doesn't she have it?? It would be great if the women on The View could talk about it too, I mean heck, they talk about everything else under the sun, right?.....but if she hasn't already mentioned it, it may be a lost cause. Worth a shot though. Thought a before and after piccie of my little girl might help pull at the heartstrings a bit, or is that terrible? If it helped another parent, or anyone else suffering, it would be worth it. Anyway, I am proud of GMA, and I just hope this is the start of something good.

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Thought a before and after piccie of my little girl might help pull at the heartstrings a bit, or is that terrible? If it helped another parent, or anyone else suffering, it would be worth it. Anyway, I am proud of GMA, and I just hope this is the start of something good.

HI

There was a thread earlier about some one on the forum going to the View and during a break giving her a tee shirt about celiac disease or a note about it......

I really am sorry, I can't remember the whole issue.

If you have been dx'd and your daughter also, she might be interested as 'Gracie' is that her name, might have it...It's your call on whether to do this or not. If you do, might mention Dr. Tim's report today...but again,,,it's up to you

Judy in PHilly

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taweavmo3 - I would totally use the sympathy card if I had one like that.

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taweavmo3 - I would totally use the sympathy card if I had one like that.

I agree wholeheartedly.

Karen

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I didn't see the show, but my daughter's godmother called me to tell me about it, and then I hear about it here! So, I e-mailed them... I pointed out though that not all Celiacs lose weight, some are overweight...

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I didn't see the show, but my daughter's godmother called me to tell me about it, and then I hear about it here! So, I e-mailed them... I pointed out though that not all Celiacs lose weight, some are overweight...

great Nini

I wish i would have mentioned that too.

judy

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to all of you how are looking at this link--go to my new post--

there is now a video of the show on the page... :lol:

or click on Jenvan's link and go to GMA link.

Judy in Philly

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Just wanted to say that the GMA exposure did a LOT for us, more than I imagined. I have a client who remembers seeing the story but didn't write down the name so she was thrilled I could tell her about it. She needed the info for a friend's daughter who has had every test in the book - for stomach aches - to no avail. Anyway, I sent her the links to the NIH and Univ. of Chicago Celiac program sites. The word is getting out people! Together we actually can make a difference.

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    • Hello, I see you posted this a long while ago, and perhaps--I hope-- it's no longer a matter of concern, but I thought I'd mention that shortly before I was diagnosed for celiac's, I had distinct yellow blotches on the corners of my eyelids toward my nose. Some months after I had stopped eating gluten, the yellow gradually went away, and--as it just reappeared now several years later, I googled the issue again.  I am only speculating here, but I do believe it is related to liver problems, which, in turn, are related to celiac's. I don't think liver function tests cover all aspects of liver health. I say this because when I was pregnant I developed a temporary liver condition called interhepatic colestasis of pregnancy (ICP), but my liver function tests had been fine. (The condition is diagnosed based on bile levels in the blood, not on liver function). I discovered upon some research that (of course!) ICP  can be associated with celiac's disease.  My hunch is this-- that celiac's presents two problems to the liver: 1) the malabsorption of nutrients--esp. Vit. K2-- that are vital liver health; 2) since gluten registers as a toxin to the immune system (I think?), perhaps the liver gets overloaded processing so much toxic material. Or perhaps there's some other reason. At any rate, poor liver health and celiac's do seem to be linked, according to a few articles I've found. Anyway, hope your problems are resolved now.  
    • my daughter did stool test from enterolab but this gluten sensitive blood test is from http://requestatest.com/tests/search    
    • OK, was your daughter tested by a doctor or did you do one of these order online stool tests? And the same question goes for your tests. Can you give a link to the company?
    • NO. Approx. 1/3 of the population carries the genes for celiac but that does NOT mean they will ever present with celiac. Only a small percentage of them will. A gene test is really used more to rule out celiac rather than to diagnose it. What I meant was that since your daughter is diagnosed and IF you carry one or both of the celiac genes then there is a greater chance you are celiac or "early stages" especially in light of your symptoms. All 3 of those factors weighed together was what I was referring to.
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      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
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