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Celiac On Gma


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32 replies to this topic

#16 jenvan

 
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Posted 26 January 2006 - 09:09 AM

Judy--no problem :) As for the dentist--I asked them to verify all the products they use to be free from wheat, barley, rye and oats. They were able to do so and had an allergy/ingredient manual that classified products by certain allergens. I didn't have any problems with anything. I did not get a flouride treatment or have them verify that however. Is that what you were wanting to know ? I wasn't quite sure...
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~~~~~~~
Jen
Indianapolis, IN

gluten-free since Feb 2005
dairy-free

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#17 floridanative

 
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Posted 26 January 2006 - 09:12 AM

Vincent - GMA won't know you didn't watch....just thank them and that will help.

I agree with Jnkmnky - we need to send tons of positive responses back to the media when they mention anything about Celiac disease. Boy I'm excited. I'm going to really focus on Martha Stewart now. For some reason I think she may do it before others with large shows. She really isn't the right format (since she'd do a cooking segment) to help people get tested but any publicity at this point is helpful I think. :)
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Dx'd with anemia - March 2005
Positive blood tests - Sept. 2005
Positive biopsy - Jan. 2006
Gluten free since 1-23-06

#18 Judyin Philly

 
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Posted 26 January 2006 - 09:14 AM

[quote name='floridanative' date='Jan 26 2006, 11:40 AM' post='95910']

Judy - I have a dental cleaning in two months. I would never even thought about this....gosh I'm fairly intelligent but it seems you need to be a rocket scientist to think of everything. Thanks for mentioning. guess I'll call my dentist to see if he has gluten-free stuff to use on me. Surely they would?

quote]
FN--
Are you kidding, I'm intelligent too :lol: but I would NEVER have thought of it. Found a thread on it here a while back and ck'd it out but then-----Think Rachel--24 is the one who clued me in...she was talking yesterday about it on her ' Found a new Dr. thread'
My dentist kept saying.."Are you sure you don't have some other medical condition you've developed that your not telling us...." They mentioned my mouth being so dry...my tooth enamel not right, lots of gum problems..etc. attributed it to the antiob i have to take before going for hip replacement...
I'm calling to ck with them have been putting off going for cleanings because of dx and not wanting to take antiob and screw up my GI system.
Let me know what you find out.ok
Judy in PHilly


SHOOT---CAME ON HERE TO SAY I WROTE A THANKS TO DR TIM AND ROBIN ON GMA...AND FORGOT...BRAINFOG
YOU THINK?
Judy

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Judy in Southern CA

#19 Nantzie

 
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Posted 26 January 2006 - 09:21 AM

floridanative,

As far as having something to print out for relatives to read, the one I like to reference when wanting to explain everything, but not overwhelm is http://digestive.nid...es/pubs/celiac/ . It got a pretty good explanation in everyday language. It's also from the National Institutes of Health, which is part of the federal government, so who can argue with that?

Nancy
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The person who says it cannot be done should not interrupt the person who is doing it.
~Chinese Proverb

#20 Judyin Philly

 
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Posted 26 January 2006 - 09:27 AM

Judy--no problem :) As for the dentist--I asked them to verify all the products they use to be free from wheat, barley, rye and oats. They were able to do so and had an allergy/ingredient manual that classified products by certain allergens. I didn't have any problems with anything. I did not get a flouride treatment or have them verify that however. Is that what you were wanting to know ? I wasn't quite sure...


Yep--thanks Jen.
I really must take the plunge and call them
how are you doing by the way and are you still using you 'spa mat'?
Judy

floridanative,

As far as having something to print out for relatives to read, the one I like to reference when wanting to explain everything, but not overwhelm is http://digestive.nid...es/pubs/celiac/ . It got a pretty good explanation in everyday language. It's also from the National Institutes of Health, which is part of the federal government, so who can argue with that?

Nancy


WOW WHAT A GREAT SITE
THANKS SOOOOO MUCH :rolleyes:
Judy in Philly

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Judy in Southern CA

#21 happygirl

 
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Posted 26 January 2006 - 10:13 AM

By chance, I had a dental cleaning shortly after I was diagnosed, by chance. They couldn't verify the ingredients so for my cleaning/polishing, they just used toothpaste with fluroide.
At my new dentist, the hygenist gave me two options-regular cleaning or one with safe baking soda and a water spray. She said she actually prefers to use the baking soda so it worked out well!
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#22 floridanative

 
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Posted 26 January 2006 - 10:39 AM

Nantzie - that is a great link - thanks! I am down to less than ten sheets of paper now due to printing everything out.

Off to the office supply store after lunch and then on to the library to check out a few books. I want to buy a gluten free guide for easy reference as well. If you only could purchase one book -which one would it be?

Judy - now I at least now why I had to have a root canal last spring. I take very good care of my teeth so the dentist was surprised. Oh and my dad had to have gum surgery a few years back. Maybe there's a connection to Celaic there?
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Dx'd with anemia - March 2005
Positive blood tests - Sept. 2005
Positive biopsy - Jan. 2006
Gluten free since 1-23-06

#23 tbuehler

 
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Posted 26 January 2006 - 10:53 AM

This could be just what everyone in my family is praying for, a cure for my Mother who has been sick all of her life. Thank you and everyone else for the research and support!!!
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#24 mookie03

 
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Posted 26 January 2006 - 10:57 AM

I just emailed GMA- i didnt see the show, but they'll never know that. I love when basic TV stations (CBS, NBC, ABC) address Celiac- i always think they should be rewarded for doing so!
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#25 Canadian Karen

 
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Posted 26 January 2006 - 11:03 AM

This could be just what everyone in my family is praying for, a cure for my Mother who has been sick all of her life. Thank you and everyone else for the research and support!!!


I will be keeping your Mom and family in my prayers.... Hopefully, this is the answer to your prayers...

Hugs.
Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#26 taweavmo3

 
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Posted 26 January 2006 - 11:15 AM

I saw it too! I heard Robin say "the hidden medical reason women might feel bloated" (or something similar) and was hoping it was about celiac. I sat glued to the tv for 45 minutes waiting, and wouldn't you know it, the second I take a break to go to the bathroom, that's when it comes on!

I caught most of it though, and it seemed pretty good. I always get chills when something about Celiac is publicized, feels like it's a small victory. I"ll e-mail a big thank you too. I've also been meaning to e-mail Elizabeth Hasselback from the view, doesn't she have it?? It would be great if the women on The View could talk about it too, I mean heck, they talk about everything else under the sun, right?.....but if she hasn't already mentioned it, it may be a lost cause. Worth a shot though. Thought a before and after piccie of my little girl might help pull at the heartstrings a bit, or is that terrible? If it helped another parent, or anyone else suffering, it would be worth it. Anyway, I am proud of GMA, and I just hope this is the start of something good.
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Tamara, mom to 4 gluten & casein free kiddos!

Age 11 - Psoriasis
Age 8- dx'd Celiac March 2005
Age 6- gluten-free/cf, allergy related seizures
Age 4 - reflux, resolved with gluten-free/cf

#27 Judyin Philly

 
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Posted 26 January 2006 - 12:09 PM

Thought a before and after piccie of my little girl might help pull at the heartstrings a bit, or is that terrible? If it helped another parent, or anyone else suffering, it would be worth it. Anyway, I am proud of GMA, and I just hope this is the start of something good.


HI
There was a thread earlier about some one on the forum going to the View and during a break giving her a tee shirt about celiac disease or a note about it......
I really am sorry, I can't remember the whole issue.
If you have been dx'd and your daughter also, she might be interested as 'Gracie' is that her name, might have it...It's your call on whether to do this or not. If you do, might mention Dr. Tim's report today...but again,,,it's up to you
Judy in PHilly
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Judy in Southern CA

#28 floridanative

 
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Posted 26 January 2006 - 12:38 PM

taweavmo3 - I would totally use the sympathy card if I had one like that.
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Dx'd with anemia - March 2005
Positive blood tests - Sept. 2005
Positive biopsy - Jan. 2006
Gluten free since 1-23-06

#29 Canadian Karen

 
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    That Crazy Canuck!

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Posted 26 January 2006 - 01:15 PM

taweavmo3 - I would totally use the sympathy card if I had one like that.


I agree wholeheartedly.

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#30 Guest_nini_*

 
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Posted 26 January 2006 - 05:07 PM

I didn't see the show, but my daughter's godmother called me to tell me about it, and then I hear about it here! So, I e-mailed them... I pointed out though that not all Celiacs lose weight, some are overweight...
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