Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

New Test Results

Rachel--24

By Rachel--24
in Related Issues & Disorders

Recommended Posts

Guest BERNESES
Guest BERNESES
Posted

Having been "under their care" for a year while I lived in California, i can say I'm glad you're outta there too. There's no doubt you'll get better!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 63
  • Created
  • Last Reply
ianm Apprentice
ianm
Posted

Best of luck and I hope this is what is really at the root of the problem.

Link to comment
Share on other sites
slpinsd Contributor
slpinsd
Posted

Jen H: Yeah- it was Blue Steel. Zoolander is my favorite movie, too! I switched it w/the real me now, though.

Rachel: I'm glad you don't have H. Pylori. I'm done w/my course of antibiotics, and onto probiotic treatment. Flagyl tastes nasty. I really don't notice any difference in my symptoms. The reflux is improved but my intestinal issues are pretty much the same. I believe that it may be from Candida that I have. Rachel, did you do a salivary test for the adrenals from BioHealth? I did that same test! Mine showed low DHEA and a high DHEA/cortisol ratio. Yeah, I am really happy with BioHealth's tests.

Nancy M: I am in SD, too. I know a really good Naturopath that does BioHealth's testing. PM me if you are interested. She WILL look for the root causes of your problems!

Link to comment
Share on other sites
Rachel--24 Collaborator
Rachel--24
  • Author
Posted
Rachel: I'm glad you don't have H. Pylori. I'm done w/my course of antibiotics, and onto probiotic treatment. Flagyl tastes nasty. I really don't notice any difference in my symptoms. The reflux is improved but my intestinal issues are pretty much the same. I believe that it may be from Candida that I have. Rachel, did you do a salivary test for the adrenals from BioHealth? I did that same test! Mine showed low DHEA and a high DHEA/cortisol ratio. Yeah, I am really happy with BioHealth's tests.

I just started my antibiotics. I'm not taking Flagyl. They gave me Tinitazole. Its very new....it wasnt even in the pharmacist's computer yet. I guess its sorta related to Flagyl but with less side-effects....but they did say I'd probably get a metallic taste in my mouth. I just hope it works. Are you doing anything for the Candida? They just told me that once the c-diff is gone the probiotics should get the candida under control but they may decide to give me something for it. They said Candida is not my main problem...its just there cuz I have an infection thats holding it in place right now. Yeah...I did have the same adrenal test. My DHEA was normal but my DHEA/cortisol ratio was a little high. Did you ever take the stool test for pathogens? Thats the test that detected my C-Diff. It seems like people with H. Pylori dont really get very many symptoms from it...if any. Maybe thats why you dont feel any different....also didnt you just start gluten-free?....its gonna take some time for you to heal. Are you going to retest to make sure the H. Pylori's gone? I have to retest 30 days after I finish my antibiotics.

P.S. I see you got your pic up now! No more Zoolander guy. :)

Link to comment
Share on other sites
Guest BERNESES
Guest BERNESES
Posted

Go Rachel- We're all rooting for you! Please keep us posted as to how things go. Best, Beverly

Link to comment
Share on other sites
Rachel--24 Collaborator
Rachel--24
  • Author
Posted
Best of luck and I hope this is what is really at the root of the problem.

Thanks Ian! You're one of the people on here who pretty much never complains about life after gluten. Well how could you...new girl, new job, great health! :D

I love how positive you are about the diet. We shared similar symptoms and circumstances and hopefully soon I'll have great health too....and some of that "bonus" stuff wouldn't be so bad either. :D

Link to comment
Share on other sites
ianm Apprentice
ianm
Posted

This is happening to you for a reason. I couldn't see it when it was happening to me then but I can see it clearly now. It is to prepare you for bigger and better things to come but you mind and body have to be ready for them.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest BERNESES
Guest BERNESES
Posted

[quote name='Rachel--24' date='Feb 14 2006, 10:26 PM' post='103408 Hopefully soon I'll have great health too....and some of that "bonus" stuff wouldn't be so bad either. :D

Link to comment
Share on other sites
thomas3000 Rookie
thomas3000
Posted

Hey Ian,

What were your symptoms before going gluten free if you don't mind me asking? I think I read it in another thread but can't find it, just curious if you had depression/anxiety/brainfog/headaches and how long did it take before they cleared up??

Link to comment
Share on other sites
Rachel--24 Collaborator
Rachel--24
  • Author
Posted
This is happening to you for a reason. I couldn't see it when it was happening to me then but I can see it clearly now. It is to prepare you for bigger and better things to come but you mind and body have to be ready for them.

I know my mind is ready...just waiting for my body to catch up now. :D

For anyone interested my doctor gave me the wrong meds. She didnt give me the antibiotic (Flagyl) which is what I need to be taking for C-Diff. She gave me some kind of anti-protazoal agent which clearly states on the instruction sheet that it is NOT effective in treating infections caused by bacteria. So I wasted 2 days and the cost of the perscription. I went on the C-Diff forum and told them what I was taking and everyone questioned why in the heck I was taking that for C-Diff....apparantly its not even an antibiotic. I was just starting to really trust my new doctors and now this. :(

Oh well...starting over today. Picking up the CORRECT meds after work. :)

Link to comment
Share on other sites
Judyin Philly Enthusiast
Judyin Philly
Posted
D

For anyone interested my doctor gave me the wrong meds. Oh well...starting over today. Picking up the CORRECT meds after work. :)

Good grief Rachel,

you really aren't catching a break are you.

I know we can research things to death..but it paid off for you going on the c diff forum.

judy in philly

Link to comment
Share on other sites
Rachel--24 Collaborator
Rachel--24
  • Author
Posted
Good grief Rachel,

you really aren't catching a break are you.

Aint that the truth! I guess life was too easy for me the first 3 decades so now I'm making up for it all in the last 3 years. <_<

BUT... I was definately given a break when I found you guys! ;)

Link to comment
Share on other sites
ianm Apprentice
ianm
Posted
Hey Ian,

What were your symptoms before going gluten free if you don't mind me asking? I think I read it in another thread but can't find it, just curious if you had depression/anxiety/brainfog/headaches and how long did it take before they cleared up??

Severe brain fog, fatigue and obesity. The way those things were destroying my life did lead to a period of depression. Overall it has been a two year process to become completely healthy. The worst symptoms cleared up within a few weeks but better for me would have been still really bad for anyone else. It takes time, no two ways around it.

Link to comment
Share on other sites
thomas3000 Rookie
thomas3000
Posted

Thanks for the reply Ian.. Lots of my family have depression/brain fog/anxiety/obesity, but won't listen to me about going gluten free. I tried like hell to tell them but they said they "need" their spaghetti...HMMM. Makes you wonder doesn't it. I'm trying to help people with this but nobody seems to believe that gluten can cause mental problems. I'm glad you self diagnosed because your right, doctors are clueless, unless of course you find one like mine and Rachels. I'm doing my best to get the word out that it's our diets that is causing these symptoms. Heck, if I can make a difference in 1 persons life and make some ripples, then I'll be happy with that. Your story is truly inspirational and I'm glad you are trying to help others...

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,070
    • Most Online (within 30 mins)
      7,748
    TT24
    Newest Member
    TT24
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      This forum might be the last hope I have in my life. Please I beg you

      By knitty kitty · Posted

      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      This forum might be the last hope I have in my life. Please I beg you

      By BluegrassCeliac · Posted

      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      14 year old with Celiac & EOE still suffering...

      By Scott Adams · Posted

      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...