Anyone Know What Causes This?
Posted 30 April 2004 - 06:55 AM
Also starting a couple of months ago my left elbow will hurt and get real sore for days and this past week my right knee has been the same way. I have anemia, weight loss, diarrhea, constipation, abdominal pains and cramps, headaches and sometimes in bed at night my left leg will tingle but not like it is going to sleep, and I get the urge to jerk it constantly.
My GI thinks I may have Celiac and after blood work came back both of my gliadin antibodies were both high, not extrememly but high enough for a moderate positive. My antiendomysial came back negative. I think I read I can still be Celiac but if not then with both antibodies high that I more than likely have a gluten intolerance.
Any replies would be greatly appreciated and I hope everyone is feeling well today!
Posted 30 April 2004 - 10:05 AM
I do have to read things over and over, and I still make mistakes. Like yesterday I bought the wrong product even after reading the label 20 times! Iím not sure how I miss those little things, or if it is the manufacture that makes it hard to understand!
Iím not sure I could even post on this board without the use of Microsoft Word.
One thing I also notice, is that I only read the short post. If the post gets too long I skip it.
I went back to college at the age of 34 to get a degree in art for fun. To get the degree I had to space out the hard courses to one per quarter. It was a real struggle, but I managed to graduate with a B+ average, so I could go onto graduate school (which I never did).
Iím working on the joint pain I have right now with supplants, and diet. Red apples are supposed to be good for joint pain, amongst other thing.
Posted 30 April 2004 - 03:43 PM
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
Posted 03 May 2004 - 08:58 AM
To someone in India, the Garden State would be an exotic place. I think it is all in how you look at it, and what your perspective is. I travel so much because I just can not stand to be cold, and I really like fresh air (Goa was nice, but getting there is way too hard). Iím not sure I could stand being cooped up in a house for the winter any more. Celiac disease turned me into a snow bird.
I'm in Jacksonville, Oregon now, and then Colorado Springs next. I average about a month per place, with the exception of my winter home in Quintana Roo, Mexico, which can be up to six months. I love the Caribbean in the winter, Oregon in the summer, Texas in the spring, and Maine in the fall.
Posted 03 May 2004 - 10:26 AM
Your lifestyle sounds intriguing to me. What will be bringing you to Colorado Springs ? I live in Boulder, you might like it here, it a fun place and lots of alternative organic, gluten free foods here too . There is a bakery in Colorado Springs called outside the breadbox, owned by the parents of a celiac patient. They also have casein free, gluten free foods.
Posted 03 May 2004 - 10:36 AM
I've heard that there is a link between celiac disease and attention deficit in many cases. I understand what you mean by reading things over and over. I currently take Adderall and have noticed a dramatic improvements in my attention deficit symptoms. I have become sharper and am able to retain information more effectively. This might be something to try.
Posted 03 May 2004 - 11:26 AM
ALL your other symptoms are EXTREMELY typical of celiac and the fact that both tests came back moderate positive makes the case very strong. I've read somewhere that two positives mean there's better than a 95 (maube as high as 98?) percent chance you have it. Gluten intolerance, in my mind, is nothing more than early stages of celiac disease. To make the case even stronger, you said these symptoms started after you had a baby. Childbirth is a known trigger of celiac disease in people (others include stress or a severe illness) who have the genes and are susceptible.
It seems to me you have two choices. One is to keep eating gluten and schedule a biopsy if you feel a need for further proof. Make sure you find somebody with the experience and who knows you have to take several samples, not just a couple. There's also the chance that a biopsy won't show celiac even if you DO have it. The second choice is to go gluten-free and see if it makes a difference, remembering that it will possibly take months to heal. But if you think you want or need the biopsy, now's the time to do it while you're eating gluten.
Posted 03 May 2004 - 01:44 PM
It stands to reason that if you suffer some or all of the classic symptoms of celiac disease it's going to affect your concentration. If you go round with gutsache all the time, or feeling nauseous and bloated, you're going to be stressed out, short tempered and your concentration will suffer (this is my experience anyway!) I ended up shouting at the kids and taking twice as long as my colleagues to do things at work and having to work late to finish them. I was gluten-free for 2 years until I learned the lesson not to eat anything that gave me these symptoms. Just because something's gluten free doesn't mean it's OK for you! Unfortunately most of the things I had to give up were things I liked the most, like cheese and Scotch. I'm still trying to get it right, but believe me it IS worth it, life's a whole lot better when you're not muddle-headed all the time!
All the best, Bob
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