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Mild Celiac Disease?
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I have been recently diagnosed with celiac disease. We had been searching for cause of my anemia problem that was noticed only because I was refused as a blood donor. All my donating life (several years) I was always borderline of 38% hermaticrit. Well in the last year I fell below that and went to the doctor. Started with 3 iron supplements per day (1200% MDR). Iron improved but a colon endoscopy was ordered (close to 50 years old anyway). That proved normal so they scoped from the other direction and found short and flattened villi. A biopsy confirmed celiac disease. A blood sample was then taken.

My question is: Since my symptons have been mild after I have been on a gluten-free diet for 6 months, will my system become even more sensitive to gluten. I consider myself to be pretty healthy; my physical conditioning is better than most people half my age. If in six months I cheat or have glutin by mistake, will my system revolt and act like so many people I've read about on the forum? Or is it possible to have a case of mild celiac disease? Perhaps my atheletic training has masked some of the problems. Even when anemic I was on the elliptical 50 minutes per day maintainingng a heart rate of 150.

Were any of you diagnosed in around the bout way? (I don't have the stomach cramps, diahrea only when I eat bread after a missed meal.)

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If anyone had a case of "mild" celiac (symptom wise) I could probably be it. Particularly in the gastro department. But yes, I've definitely gotten more sensitive to accidents over the eight months I've been gluten-free.

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Dale,

I don't think Celiac Disease is something you can have mildly. You either have it or you don't. However everybody is different and can react differently to different things. Let's say for instance we both have a milkshake with a small amount of gluten in it, I may react quite badly and you might not react at all. This doesn't mean that your intestines are less damaged, it just means that our bodies reacted different. I notice that I am too more sensitive to an accident since going gluten free.

Hope that helps :)

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I never had the typical celiac disease symptoms and I was diagnosed via a endoscopy - done becauase of reflux. I was shocked to find that I was positive -since I really never had any overt stomach problems. I have been gluten free for 1 1/2 years and if I happen to get some gluten by mistake I now get a very bad stomach ache and get sick. This lasts around 4 hours and then goes away. I definitly feel that I am more sensitive to gluten at this point and I have become very strict about my diet. I eat almost everything(not gluten) as long as I cook it - I eat very plain going out (chicken - no seasoning etc.). It is not worth the pain.

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SILENT SPRUE

I was the same no great sympton, great shape, exercise, but turned down to be a blood doner (after given for 10 years). No stomach ache or signs of eating gluten. gluten-free since Jan. I think it is litterly impossible not to get some gluten and

this being said, I have not had any reactions. I did eat some doritos, but spit them out and still never had a reaction. I think will always have silent sprue.

When they called to tell be I had this I said" but I don't feel bad now".

Course I now know that I was exhaused everyday of my life, but still

execised and worked hard at not noticing I was being dragged down.

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I, too, am among the asymptomatic group. I was diagnosed after years of unresolving anemia, but never had GI symptoms or symptoms from the anemia. I still am unaware if I have accidental gluten ingestion. People keep asking me if I feel better now that I don't eat gluten. I tell them that I didn't feel poorly before diagnosis and I notice no difference since. I saw my labs and biopsy results so I don't consider my celiac disease as mild and I am very compliant with my gluten free diet. I have been gluten-free for about 7 months and my labs are definitely improved. I still eat out and travel alot (I try to always make the best choices, but assume that I am getting accidental gluten). For me, it is hard to know how strict to be in my kitchen (I haven't changed utensils, etc) as some people suggest is absolutely necessary.

L.A.

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hey celiacfreeman,

i thought doritos were gluten-free?

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Hey, Jen, NOPE!! Some of them use wheat starch in the cheesy coating. It is buried in the middle-to-the-end of the ingredients list. That was my favorite chip, too!

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Talk about opposite ends of the spectrum: my 11 year old daughter and I are both celiac disease. I was a total wreck for years, one foot in the grave. The only symptom she had was a sore on the corner of her lip as pictured on a celiac disease website, zero intestinal complaints. Her labs were awful and her gut was a mess! I read that it is not uncommon for a celiac to reach the age of 70 totally asymptomatic.

FYI, ever wonder why all those yummy gluten-free cookies and crackers are imported from Italy? It's because ALL children there are tested for celiac disease before the age of six. Can you believe it? Think how less complicated our lives would be if we had that kind of testing in the US.

And in Europe you can walk into a McDonald's and order a burger on a gluten-free bun!

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dana,

I heard that about Italy!! I think that is amazing, they must have really good pasta there then!! I'm trying my hardest to go there and see what it's like for a person with Celiac!!!

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Maybe we should all go to Italy and ask the doctors there if we have celiac disease. At least they won't treat us like stupid idiots over it!

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I was in the process of cancelling a trip to Italy when I started to read these posts. I was diagnosed with celiac disease only 3 weeks ago by a dermatologist who spotted DH and got a positive biopsy. I didn't have a clue! I was told I had a sensitive stomach all my life, but never saw a Dr. unless I thought I had food poisoning (funny, I seemed to get it a few times a year!) So I can still go to Italy?

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Hi all,

I live in the uk and was diagnosed with celiac disease last august at the age of 33.

I had been having stomach problems for years and always put it down to eating too fast or eating too much junk food.

I have read most of your comments with great interest and although my health has improved since being on a gluten free diet. I have found that I do react more severly when I accidently take in gluten.

It appears to be good that people are being diagnosed early on in Italy and that they get better care dont know as I have not been there but Portugal was quite switched on when I stayed there last year and was able to eat a wide range of food that was gluten free.

In the uk however it is a differnt story when I go into Burger king or Mcdonalds and ask for a big mac or whopper meal without the bun I get strange looks and people laughing at me only on a couple of occasions have I had someone who was switched on and was ok with what I was asking for. I have also been into pubs and restuants where I have been informed that there is nothing on the menu that is suitable for a person on a gluten free diet.

Its nice to know that I am not the only one who has problems trying to eat out hope my contribution is of some use to you

bye for now lee :D

ps sorry to dana g if she also gets this message I have just joined the forum and it has taken me a bit to work out how to post a message

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    • Mnoosh,    Can you give us a link to the article you read about the increased risk after being diagnosed and maintaining a strict gluten-free diet??       IMO,   You are over reacting to a misprint or most likely a misread article.
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    • Take a deep breath and calm down!    The incidence of cancer with Celiac Disease is rare.......it can happen but the vast majority of people never have that experience.  You may have somewhat enlarged lymph nodes due to inflammation from undiagnosed Celiac but that will all calm down and go away once you get going on the diet.  Believe me, there are many of us that have things happen during the diagnosis and early recovery period and everything turned out just fine.  There is an elevated risk for some cancers with Celiac but that risk goes back to that of the general population after a couple of years on the gluten-free diet. I cannot remember the exact time frame but it is somewhere between 2-4 years, I think.  So many of us went years without a diagnosis and when it was all figured out, we have gone on to be healthy with little complications.  Really...do  not worry about this.  Concentrate on learning all the ins and outs of this disease and how to live gluten free happily.  We are here to help you and guess what? The diet is not as bad as some make it out to be. Many things can be made gluten free and are every bit as good as their gluten counterparts. The diet may not be convenient but it is not hard. I would not lie to you!   
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    • I was recently diagnosed as having celiac and to be honest the part I'm having the most trouble with isn't the change in food or lifestyle. I'm really upset about what I've read about the risk of cancer increasing with celiac disease. I think this is playing into my fears because I currently have lymph nodes all over my body-my Doctor says they are not considered swollen or concerning, but I don't usually feel nodes. The lymph nodes and horrible diarrhea for the last 3 weeks were what got me into the the doctor for lab work. My blood work came great so I'm wondering if anyone else experienced lymph nodes reacting when they found out they were celiac? Also how do you deal with anxiety surrounding the increased risk of cancer? Thanks!
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