Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Do I Know If I Am Lactose Intolerant?
0

10 posts in this topic

Is lactose intolerance ALWAYS a part of celiac disease? What about cheese? One source tells me only 'aged" (i.e., brick) cheeses like cheddar,etc. Another source tells me most cheese are ok. What about cottage cheese? Is there a specific dairy product that sets off L.I. or is it all dairy products? Milk doesn't seem to bother me, but I eat a lot of different kinds of cheeses...sometimes I have problems, others no.

I'm at a loss...

:blink:

0

Share this post


Link to post
Share on other sites


Ads by Google:

When I was diagnosed with Celiac, my doctor said I might also be lactose inteolorent. She said to go on a gluten-free and lactosde-free diet for 3 to 6 weeks, or until you feel better. Then, start slowly introducing dairy back into your diet. I found out I can digest lactose when i feel good. If I get glutened, I cannot at all take it so I stop it again until I'm back to normal.

0

Share this post


Link to post
Share on other sites

Lactose is a complex sugar, made up of two other sugar molecules, that is unique to mammalian milk. The body needs to produce an enzyme, lactase, to break it into it's two components so that the body can use it to make energy. If it doesn't get broken down by your body, it moves on through the digestive tract and is metabolized by bacteria in your intestines, which produce gas as a by-product of the process. This is what causes the gas and bloating that is the overwhelming classic symptom of lactose intolerance. It is often connected to celiac disease, because the disease damages the intestinal villi, and it is the very tips of these villi that release the lactase into the digest tract.

Starting at a natural weaning age, people naturally lose the ability to produce lactase. In some cultures, it happens so slowly that you don't notice for decades, if ever. But the majority of the world's population develops a noticeable level of lactose intolerance by the time they reach adulthood. (Those cultures don't rely so heavily on regular dairy products.) It makes a big difference, however, how quickly you reduce your production of lactase, because the body makes so much, initially, that it won't cause a problem that you're making a bit less. It is not like celiac disease in that the lactose causes an immune reaction.

Any processing done to fluid dairy (milk) to separate out the components of fat or protein will reduce the amount of lactose, because lactose is a sugar. So, for instance, curdling the proteins of milk to make cheese removes a good portion of lactose. Hard cheese have more lactose removed than soft cheeses. Processing of dairy to culture it also reduces the lactose content, because the bacteria that are used to culture dairy feed off of the lactose, reducing how much of it is in the remaining product. A good way to tell if something may have a lot of lactose or a little is to look at the nutrition label - if it has a fair amount of sugar/carbs listed (like milk), then it has a fair amount of lactose. If it's mostly protein (or in the case of cream, fat), then it has less lactose. (The exception here is yogurt that has sugar added to it, of course.)

The easiest way to determine if you're lactose intoleranct is run an experiment:

1. have a full glass of milk

2. wait four hours and see if you experience any bloating or gas

3. take some lactaid tablets (over the counter lactase in a pill form) in a fairly high dose and wait a minute or two

4. have a full glass of milk

5. wait four hours and see if you experience any bloating or gas

If you get bloating/gas in the first case, and not the second (or significantly less in the second), you're lactose intolerant.

If you get symptoms with both cases, you are more likely casein intolerant. Casein intolerance is an immune reaction to the protein in milk. (Side note: 'intolerance' isn't strictly used in these senses - and 'intolerance' to a sugar like lactose or fructose generally isn't an immune reaction, because immune reactions primarily revolve around larger molecules, usually proteins.) ALL dairy has casein - it is a distinguishing characteristic of mammals. There are different subtypes of casein, however, and most people are intolerant to only one or a few. Most people who are casein intolerant are most sensitive to the primary caseins found in cow's milk, so they may find they can drink other milks (that have a much smaller proportion of that subtype of casein) without symptoms, but there is still that subtype of casein in other mammals' milk, so there may still be a reaction.

The fact that you say milk doesn't bother you but cheese does leads me to believe that it's a casein intolerance, because milk has more lactose but less casein than cheese. If it were a lactose problem, milk should bother you more than cheese does.

0

Share this post


Link to post
Share on other sites

Is lactose intolerance ALWAYS a part of celiac disease? What about cheese? One source tells me only 'aged" (i.e., brick) cheeses like cheddar,etc. Another source tells me most cheese are ok. What about cottage cheese? Is there a specific dairy product that sets off L.I. or is it all dairy products? Milk doesn't seem to bother me, but I eat a lot of different kinds of cheeses...sometimes I have problems, others no.

I'm at a loss...

:blink:

I don't think it is always part of celiac disease. My mom was diagnosed 40+ years ago....she had malabsorption so bad and it took so long to actually diagnose her that she nearly died. Despite how bad her intestinal damage was, she has never had any problem at all with dairy.

On the other hand, I thought for a good 20 years I had lactose intolerance. Perhaps I do...but thru testing for celiac etc. I found out I am at the very least casein sensitive, which is a different thing from lactose intolerance. Casein is the milk protein, and lactose is the milk sugar. I have heard many people on this site say that when they stop eating gluten, later on they don't seem to suffer from the lactose intolerance any more. But if you are casein sensitive, that won't go away just as gluten sensitivity/celiac disease won't go away.

I have read that cheese actually has a much lower level of casein than milk.

Ultimately, the way to really figure out what works for you is to eliminate things from your diet for a period of time (at least a couple of weeks), and then re-introduce that food and see how you react.

0

Share this post


Link to post
Share on other sites

I am pretty new to this gluten free diet. My GI Dr. just said to avoid gluten. He never told me what not to eat. He did set me up with a nutritionist, which I see this Friday. I can drink milk and eat all dairy products without any problems, so I am hoping I won't have to give them up. I hope the nutritionist works with me to find a diet that will work for me. I am on disability and don't have much money to buy all of those special foods.

0

Share this post


Link to post
Share on other sites




Just a small note about lactose intolerance - the degree of lactose products you tolerate can vary. I could not come near milk, cream, ice cream, froqen yogurt (not really yogurt) even using Lactase enzymes, but I could eat all cheeses, sour cream, butter, ricotta (anything with cultures or enzymes added) without any problem. So you just have to experiment and see what works for you.

0

Share this post


Link to post
Share on other sites

I've had lactose intolerance for 15 years. It started after my second child was born, which was also when my Hashimoto's began.

When you are lactose intolerant, you will react worse to dairy products that are more milky and lower in fat. For instance, if you have a fat-free milkshake and are a huge gurgling gasbag for the next 12 hours, that's a big sign. (That's when I first suspected I had a problem, LOL).

Dairy products that are higher in fat, like regular milk, cream, or butter may not affect you quite as much.

I have lactose intolerance symptoms when I try to eat lowfat cheeses (even hard lowfat cheeses). For years I could eat those products just fine as long as I took a Lactaid pill along with them. But as the years rolled on, I began to notice that sometimes I had symptoms DESPITE taking one, or even two Lactaid pills -- or even other digestive supplements that contain Lactase enzyme and other digestive enzymes.

That was the point where I began to suspect another problem and now here I am, being gluten free. Turns out that gluten was actually causing some of these problems, and I had no idea. Maybe gluten was making everything worse for me.

I found some lactose-free yogurt at Whole Foods the other day. I ate it; it was delicious. I did NOT take a lactaid pill with it. It already had lactase enzyme in it. I had absolutely no symptoms afterward. So I suspect that perhaps I don't have a casein problem, only a lactose problem.

0

Share this post


Link to post
Share on other sites

zeeclass6, my lactose intolerance developed just like yours, except I could always eat yogurt :) I think it was maybe the degree of damage in our guts - it starts out quite patchy at first, but theoretically it could continue to cover the whole small intestine :unsure:

0

Share this post


Link to post
Share on other sites

For years I could eat yogurt just fine without a lactaid pill. Then a few years ago I started to notice symptoms afterward, so I started taking a lactaid pill with the yogurt. Then even that didn't help. I was actually surprised that the lactose-free yogurt I found at Whole Foods didn't bother me at all.

What really sent my digestive system into a tailspin was trying dairy-based Kefir. I tried it for the probiotics. Wow, it was awful. Sewer farts. I mean...wow really awful foul disgusting....I couldn't control it and couldn't go out in public for a few days until it calmed down. I tried drinking kefir with and without lactaid pills. Didn't make any difference. Bluck. I like the IDEA of keffir, but that stuff sure doesn't like me! BTW, I tried the keffir before I went gluten-free. I'm kind of afraid to try it again. The gross farts were totally uncontrollable -- they would just seep out. I felt like an old incontient Grandma who was engulfed in a foul brown cloud, LOL.

zeeclass6, my lactose intolerance developed just like yours, except I could always eat yogurt :) I think it was maybe the degree of damage in our guts - it starts out quite patchy at first, but theoretically it could continue to cover the whole small intestine :unsure:

0

Share this post


Link to post
Share on other sites

I am pretty new to this gluten free diet. My GI Dr. just said to avoid gluten. He never told me what not to eat. He did set me up with a nutritionist, which I see this Friday. I can drink milk and eat all dairy products without any problems, so I am hoping I won't have to give them up. I hope the nutritionist works with me to find a diet that will work for me. I am on disability and don't have much money to buy all of those special foods.

I was diagnosed with Celiac 5 years ago. I have always done pretty much my own cooking(no packaged things, etc.)..I find that the food you buy that are gluten free arent neccesarily good for you. Once in awhile a muffin or whatever(pkgd gluten free) are good, but all in all they are not that good. I make my own food, and to avoid any cross contamination I just dont eat out. I drink one glass of milk a day and see no problems so far..eat more fruits and egetables..and i eat leaner meat..

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,630
    • Total Posts
      918,404
  • Topics

  • Posts

    • A good diet for avoiding type 2 diabetes
      Hey, I am a member of that forum (not very active though).  But that's exactly how I eat.  They base their diet on this site: http://www.phlaunt.com/diabetes/ A year after my celiac disease diagnosis, my GP tells me that I am prediabetic via an email.  Instructs me to improve my diet and exercise more.  What?  I exercise more that most my age.  I run, swim, bike and teach a few exercise classes.  Change my diet?  I am gluten free.  I can not give up my gluten-free goodies!  It was asking for too much.  But I did know about celiac disease and the connection to Type 1 diabetes and Type 2 runs in my family.  So I found Jenny's site.  It made sense and I continued to research more.  Bought a Walmart meter, started testing my foods and found that "snap" I had huge spikes!  Kept meticulous data for a month and went back to my doctor.  He agreed.  I am insulin resistant and the writing's on the wall.  How to stop or slow the progression?  A low carb high fat diet.  Within three days, my blood sugar readings were normal.  Keep tracking and went back to my doctor who was amazed.  He told me to keep doing what I had been doing -- and it's been 2-1/2 years! Here's a recent study from the University of Alabama: https://www.uab.edu/news/innovation/item/4997-low-carb-diet-recommended-for-diabetics Sometimes you just have to take things into your own hands.  If I had just cut down on sugar, I 'd be on drugs and insulin and struggling to keep my feet from being amputated.  That's an exaggeration (not really), but really who cares if my foot gets chopped off?  My doctor?  He's nice, but pretty busy.  No, it's all on me!   Guess what?  I am happy on my diet.  I was addicted to sugar.  What's the biggest thing to change in our diet over the last 100 years?  Sugar.  It's in everything!  California just released a study stating over 50% of all Californians are prediabetic or have diabetes and most don't even know they have it (hummm....sounds like celiac disease).   http://newsroom.ucla.edu/releases/majority-of-california-adults-have-prediabetes-or-diabetes Enough of my soapbox talk......I've got to get some stuff done!  
    • healthy bread recipe?
      One month into the diet and she's probably very constipated because she HAS celiac disease.  She needs more time to heal.  Maybe six months to a year.  Why so long?  In theory, she should heal within weeks, but it takes a long time to really master the gluten free diet and learn about cross contamination and shared manufacturing lines.  Plus, consuming lots of gluten-free items right off the bat, may be contributing more to her health problems.  We had kids on this forum who did not drop their antibody levels until they eliminated processed foods.  20 parts per million may just be too much for her to handle right now. I would recommend reading our Newbie 101 section under "Coping".  It has some nice tips.  I would strongly recommend feeding her whole foods.  She can get plenty of fiber from fruit and veggies.  I do not even eat any grains at all, but that's my choice because grains spike my blood sugar just the same as cane sugar (I have diabetes too).   After she has healed, you can introduce breads and all kinds of junk food!     By then you will not remember what real bread tastes like.  Ask my non-celiac kid.  She's likes gluten-free pasta now.  She admits that she has forgotten what real pasta tastes like.  She adores all my baked-from-scratch gluten free cakes and cookies (that I can not eat! ) When I was diagnosed, my learning curve was easy.  My hubby had been gluten free for 12 years!  So, I ate like him.  Turns out that I was reacting.  Found out that because I was in the healing stage, I could not tolerate additives like Xanthan Gum (really needed to replace gluten in bread), preservatives, etc.  found in commercial breads and baking flour mixes.  I had lots of food intolerances that eventually resolved and some did not!   Okay. Villi damaged but not gone?  Is your doctor crazy?  Your daughter has celiac disease!  I strongly recommend getting her records and lab results and getting a second opinion.  She should have been diagnosed by now.  You should be looking into keeping her safe at school with a 504 plan (but a 12 she shouldn't be playing with playdough, but colleges will have to accommodate her diet and that's coming up faster than you think!)   Welcome to the forum!  I hope this helps.  
    • Received Results. Looks like not Celiac?
      If I were in your shoes, I would first test out a histamine intolerance diet before going gluten free.  Migraines and  fatigue seems to scream histamine intolerance.  It's most widely known in Europe, but it is gaining some ground here in the US.   But, I am not a doctor and I do not know you.  What I can suggest is that you do some research and continue to advocate for your health.   If you go gluten free, then it's six months.  If you had celiac disease, it would take that long to heal or longer!  It's a hard diet to follow when your results are negative, but nothing's impossible!  
    • My doctor suspects Coeliac Disease ?
      Money.  It costs more to run a celiac panel.  For years the TTG has been the recommended screening test for celiac disease.  It catches most, but not all celiacs.  It's a pretty good test, but no test is perfect.  You are going forward with the endoscopy.  Make sure your GI takes 4 to 6 tissue samples (biopsy) because just a "visual" often looks fine (visually I was fine, biopsies revealed a Marsh Stage IIIB).   So, keep eating gluten.  My advice is to eat all your old favorite things.....it might be your last chance!   The good news is that you are getting closer to getting a diagnosis which will result in improved health (if you go gluten free).  
    • Received Results. Looks like not Celiac?
      Thank you so much.  I have not had those things ruled out, but will look into those.  I wonder how long I should try gluten-free to truly know if there is a difference?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,720
    • Most Online
      1,763

    Newest Member
    Fendell
    Joined