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Insomnia/cortisol Levels
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Hello everyone!

I'm new to the boards, I found this site yesterday when I was looking for a good recipe for gluten free gnocchi. Yum yum.

So, I was diagnosed with gluten intolerance less than a month ago. (well, actually not really.) I forced my GP to give me a blood test for celiac disease, the test results... well. Both my IgA levels were normal, my IgG levels though were sky high. So, my GP is like, meh, whatever you don't have anything. After suffering all my life with IBS, I did not like this answer. I want to find out what my problem is! So, I got a second opinion and that doctor said I could have celiac disease, so I'm on a gluten free diet. I'm vegan as well, so I haven't been on dairy and all that for 10 years, so I know that's not the problem.

So, my problem is that on this gluten free diet, my isomnia has gotten 10x worse. My doctor (the 2nd opinion one) says it's my cortisol levels, they're all out of whack. Like, they're high during the night and low during the day. Does anybody know a way to naturally lower them during the night and raise them during the day? I can't fall asleep till after 4am and I'm constantly tired. I do suffer from fatigue (due to the IBS) so, I get B12 shots, but they don't seem to be helping.

So, if anyone has any suggestions on the cortisol/fatigue issue that'd be great.

Also, to Celiacs, what did your blood tests say? I want to get a colonoscopy done to make sure. (I got diagnosed with IBS without it, they did some stomach endoscopes and intestinal x-rays instead). The blood test cost over $200, and I don't want to pay the money for a biopsy. I can't afford it. :P

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I don't know about how to deal with a reversal of cortisol patterns, but I do know that regular exercise (especially aerobic exercise) can help to manage high cortisol levels. Basically, anything that's good for dealing with anxiety -- meditation, exercise, etc.... will help regulate cortisol levels. Maybe this will also help you to reset your natural rhythms.

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Hello everyone!

I'm new to the boards, I found this site yesterday when I was looking for a good recipe for gluten free gnocchi. Yum yum.

So, I was diagnosed with gluten intolerance less than a month ago. (well, actually not really.) I forced my GP to give me a blood test for celiac disease, the test results... well. Both my IgA levels were normal, my IgG levels though were sky high. So, my GP is like, meh, whatever you don't have anything. After suffering all my life with IBS, I did not like this answer. I want to find out what my problem is! So, I got a second opinion and that doctor said I could have celiac disease, so I'm on a gluten free diet. I'm vegan as well, so I haven't been on dairy and all that for 10 years, so I know that's not the problem.

So, my problem is that on this gluten free diet, my isomnia has gotten 10x worse. My doctor (the 2nd opinion one) says it's my cortisol levels, they're all out of whack. Like, they're high during the night and low during the day. Does anybody know a way to naturally lower them during the night and raise them during the day? I can't fall asleep till after 4am and I'm constantly tired. I do suffer from fatigue (due to the IBS) so, I get B12 shots, but they don't seem to be helping.

So, if anyone has any suggestions on the cortisol/fatigue issue that'd be great.

Also, to Celiacs, what did your blood tests say? I want to get a colonoscopy done to make sure. (I got diagnosed with IBS without it, they did some stomach endoscopes and intestinal x-rays instead). The blood test cost over $200, and I don't want to pay the money for a biopsy. I can't afford it. :P

You may want to read up on folic acid for the control of your cortisol level.

Also you mention getting a colonoscopy to check the celiac disease diagnosis; actually they can't tell doing a biopsy that way only going through the mouth and stomach (encoscopy) and doing a biopsy in the intestines that way

ruth

Hello everyone!

I'm new to the boards, I found this site yesterday when I was looking for a good recipe for gluten free gnocchi. Yum yum.

So, I was diagnosed with gluten intolerance less than a month ago. (well, actually not really.) I forced my GP to give me a blood test for celiac disease, the test results... well. Both my IgA levels were normal, my IgG levels though were sky high. So, my GP is like, meh, whatever you don't have anything. After suffering all my life with IBS, I did not like this answer. I want to find out what my problem is! So, I got a second opinion and that doctor said I could have celiac disease, so I'm on a gluten free diet. I'm vegan as well, so I haven't been on dairy and all that for 10 years, so I know that's not the problem.

So, my problem is that on this gluten free diet, my isomnia has gotten 10x worse. My doctor (the 2nd opinion one) says it's my cortisol levels, they're all out of whack. Like, they're high during the night and low during the day. Does anybody know a way to naturally lower them during the night and raise them during the day? I can't fall asleep till after 4am and I'm constantly tired. I do suffer from fatigue (due to the IBS) so, I get B12 shots, but they don't seem to be helping.

So, if anyone has any suggestions on the cortisol/fatigue issue that'd be great.

Also, to Celiacs, what did your blood tests say? I want to get a colonoscopy done to make sure. (I got diagnosed with IBS without it, they did some stomach endoscopes and intestinal x-rays instead). The blood test cost over $200, and I don't want to pay the money for a biopsy. I can't afford it. :P

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Thanks for the replies.

Yes, I guess I should look more into the B vitamins, I suppose getting B12 shots isn't always enough. If I was low on B12 levels it could be very well possible that I'm deficient for folic acid as well.

And to ruth, I don't really understand your response about the colonoscopy... can you please explain further?

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I have HORRIBLE insomnia. Especially since going gluten-free, too. I hadn't really thought about it until I read your thread. In the past, I've had low DHEA and high cortisol levels (they have a converse relationship) -- and had to have B12 injections -- didn't think about the cortisol issue. Think I will ask my endocrinologist about testing for those -- I'm having a bunch of bloodwork done next visit anyway, why not a little more???? Lynne

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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