Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Feeding Tube Anyone?


chrissy

Recommended Posts

chrissy Collaborator

i talked to the ped gi today. if we can't get tianna to eat enough to gain some wait, she may end up with a feeding tube. she is anorexic, but i am beginning to wonder if she has anorexia nervosa. has anyone had to go this route to keep their child from losing too much weight?

christine

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



key Contributor

She definitely needs a team approach with the whole medical community if this is what she has. It is an emotional disorder as well as physical. I struggled in high school, but never got that bad. I can imagine just the diet being very difficult for her at her age and this is compounding the normal problems of adolescent girls. If she weighs what you say, then you need to have something done. I hope she and you get the help she needs.

Monica

Link to comment
Share on other sites
nikki-uk Enthusiast

My son had a feeding tube from birth to 2 yrs(because of a heart condition)

Even at this young age it was difficult to manage.

To pass the tube on a teenager would require some level of co-operation on your daughters part.

Docs generally aren't keen unless the patient agrees.

Even though he was only a baby ,I used to have to 'pin down' my son to pass the tube-not pleasant.

I'd get the damn thing in,then he'd pull it right out :(

Link to comment
Share on other sites
ryebaby0 Enthusiast

My son had an ng tube while he was hospitalized, for about 4 weeks. He stabilized enough that he was able to convince his peds gi team to let him DRINK the Peptamen Jr. rather than continue the ng tube. Very skeptical, they were -- but they underestimated his determination to NOT have the tube :) It worked fine, even drinking 9 cans a day (which is an awful lot of this basically tasteless stuff) You might want to offer that if she is resistant . The tube itself can rub a sore spot at the back of their throat, but taped to their cheek and over the ear, it isn't a big deal. The awful part is putting it in (they swallow, you advance, they swallow, you advance it, etc...) Make sure they use a pediatric, not an adult, ng tube. (Ask--you'd be surprised how uninformed some places can be)

That being said, if she's anorexic, she needs admittance to an eating disorders clinic. I have several family members with eating disorders, and you need to be thinking "whole-health" and "long term" to get her to recovery. It's not just about calories

Joanna

Link to comment
Share on other sites
TCA Contributor

My daughter had an NG tube for 5 mos. after birth due to a heart condition, but now has a MicKey Tube. It's not hard to manage and is allowing us to pump enough breast milk into her to keep her healthy until her next surgery in April. she'll 1 year old then. It's been a life-saver for her (seriously).

Link to comment
Share on other sites
chrissy Collaborator

i think our ped gi would do a G-tube in her side if it comes to that, but hopefully she will put on some weight here and get feeling better and get her appetite back. (i hope it is not an eating disorder)

christine

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,173
    • Most Online (within 30 mins)
      7,748

    Art34
    Newest Member
    Art34
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Eldene
      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
    • Beverley Ann Johnson
      HI, my doctor suggested one week of consuming gluten before blood tests.  I have been gluten free for 3 years.  Has anyone been through this and will I get exact results after one week of consuming gluten?  I don't even know if I can do this, if I get sick I am not sure if I can continue, any suggestions??  Thanks in advance.  
    • Denise I
      I did reach out to them on April 4th and left a message. I will try calling again. Thank you!
    • trents
      PPI's can be a wonderful healing agent when used as prescribed on the label which I believe recommends use of up to 8 weeks. But they are like antibiotics in that they are overprescribed and undermonitored. Docs generally prescribe them and then keep prescribing them because they take care of immediate symptoms so well. Physicians are more into treating symptoms than uncovering causes.
×
×
  • Create New...