Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Colonoscopy Results
0

7 posts in this topic

My results from the recent colonoscopy and second endoscopy I had are now in, and I was told that I have a second disease. It's chronic colitis and it's apparently everywhere in my colon, according to my dr. I'm very upset over this, of course, and was wondering if anyone else here has both celiac disease and Colitis, too. I was prescribed Asacol and will begin that drug tomorrow (anyone else here ever used that?) The dr. also said most of my Sprue appears to be gone, or at least improving, which is weird because the antobodies in my blood haven't dropped at all. Right now I just can't believe that I am only 30 and have two diseases neither of which runs in my family. Really depressing!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Sorry to hear of this, I do hope the meds begin to kick in and start working for you soon! I too have not improved as much as I thought I would have after being gluten-free for almost 8 months. I still have "some" abdominal pain and loose BM's everyday, hardly ever have a normal one. I know something else must be wrong but have not got the nerve up to go back to the GI doc.

:D I do hope you begin to feel better soon, take care & God Bless :D

0

Share this post


Link to post
Share on other sites

I found out I was gluten/dairy/yeast/egg sensitive through stool tests done with>www.Enterolab.com

They give the prices on their site, and most insurance companies will cover at least part of the cost. I found out both my kids also have the same problem, so it makes it a lot easier to know what to avoid.

I had previously done the allergy/sensitivity testing and found other foods I was sensitive to, and I have read that it is difficult to heal unless you avoid all the things you are sensitive to. If you can't afford this,I have read you can avoid the food you think you might be sensitive to for 4-5 days, and then first thing in the morning eat just that thing. Check your pulse before eating it and again during the 2 hours following, if your pulse increase it supposedly means you are reacting to that food.

good luck, Nin ;)

0

Share this post


Link to post
Share on other sites

Sorry to hear about that. I found out that I have Celiac D and Crohns about a month ago. I was very bummed when I was told and I'm still down about it. Not really sure how to react to news like that. All the bad side effects that can happen down the road run through my head and it depresses me. I'm 34 and having both of these diseases seems like a lot of baggage as far as carrying on a somewhat normal social life. But I'm doing my best to think positive and hopefully with a Gluten Free Diet, medication and more relaxed way of life, things will turn out fine.

Speaking of the positive -the meds I have taken have worked for me so far(knock on wood).

I was given 40 mg of prednisone for 2 week and have been cutting back slowly. I

0

Share this post


Link to post
Share on other sites

Steve,

Thanks, I too am very depressed right now and feel shocked to be this age and have 2 diseases to deal with. I don't understand why I wasn't put on Prednisone for 2 weeks just to get this problem under control, then switched over to the Asacol later. Seems like that is the usual way to go, but my dr. has very negative feelings about steroids. I thought they are usually no problem at all in the short term? Have you noticed any major side effects from Prednisone? Asacol is a "sulfa" drug, used for inflammation, and considered safer than steroids, but is usually used in preventing inflammation...my inflammation is currently there, so I really probably should've gone with Prednisone, but I guess I'll try this first and see how it goes. One question: What is the difference between Colitis and Crohn's? They're both inflammation of the intestine, so how does the dr. know one from the other? I asked my dr. which type of colitis I have, and he doesn't know!

0

Share this post


Link to post
Share on other sites




Hi Gillian,

I'm sorry to hear about you having colitis. At least you know what is wrong and that you are doing well on the gluten-free diet with the Celiac Disease. When I had my colonoscopy my doctor took biopsies to test for microscopic colitis, she said there was a lot of inflammation in my colon, but since the biopsies were neg. for MC she didn't say anything else about it. And when I asked for them to mail me copies of the biopsy reports they only sent it for my endoscopy. I keep meanig to call them again, but never get around to it. I still wonder if that is part of the reason I still have some occasional rumbling in my intestines and fairly frequent loose stool...My children's Ped. GI thinks that both my son and I have some sort of inflammatory bowel disease.

It would be nice if they could pin point what is causing your colitis, so that you could do something to help it, other than meds. I hope the medication starts to work for you.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Gillian

For the first 2 weeks I was taking 40 mg of Prednisone I slept only 3 hours a night-I also got a nasty cold/flu. I was very hungry and ate all the time( a good thing for me). The thing is I didn't realize how long it takes to get off Prednisone. When all is said and done It will take around 4 -5 months.

The side effects at the moment (10 mgs a day) are pretty much gone.

Sometimes I feel like I'm getting my GI symptoms back as I lower the dose but after a day or two things settle down. Keeping my fingers crossed.

I'm not sure what the difference is. I think Crohns can be in the small and large intestine while Colitis is in the large only.

Crohns also effects all layers of tissue while Colitis is just one.

Correct me if I'm wrong :)

They can tell the difference from a Biopsy, location of irritation, Blood tests (Crohns and Colitis have different anti bodies), and how you react to certain meds will also give clues. Thats as much as I know.

Good luck

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,501
  • Topics

  • Posts

    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined