Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Celiac Test

Ashley462

By Ashley462
in Meet Up Room

Recommended Posts

Ashley462 Rookie
Ashley462
Posted

Hi, I'm Ashley and I'm 14 years old. I have been gluten-free for about 3 weeks.

On Friday I was tested for Celiac Disease. My docotor said MANY of her patients are gluten-intolerant, but the Celiac Disease does not show up! Its very clear to me that whenever I eat gluten I am in pain, and when I dont, I feel fine.

The test said I did NOT have Celiac Disease. Thats great, but are any of you gluten-intolerant w/out Celiac?

Just Curious,

;) Ashley ;)

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gf4life Enthusiast
gf4life
Posted

Hi Ashley,

I am a mom of three kids, ages 5, 7, & 9, and we are all gluten intolerant without Celiac. Only me and my daughter have the gene for Celiac Disease, but we don't have enough damage in the intestines to be called Celiac yet. (And I do not plan on waiting to get further damaged!) Celiac is just what they call the worst form of gluten intolerance. But you still need to stay on the gluten free diet for life. Even if it isn't Celiac. It is just as important to your health. I hope you are feeling better on the diet. You are lucky that your doctor recognises gluten intolerance without Celiac. Most don't and us patients are left without follow-up care since our doctors won't believe us that gluten is our problem.

God bless,

Mariann

Link to comment
Share on other sites
Ashley462 Rookie
Ashley462
  • Author
Posted

Thanks Mariann

Link to comment
Share on other sites
gf4life Enthusiast
gf4life
Posted

You're welcome. :)

God bless,

Mariann

Link to comment
Share on other sites
  • 3 weeks later...
celiac3270 Collaborator
celiac3270
Posted

What test did you get done? Blood test or endoscopy? There are cases where the blood test finds you not to have Celiac, but the scope does, or the other way around. It could be that he said you have an intolerance because the blood suggested, but didn't strongly indicate Celiac, or something like that. If you had both tests done, then the doctor's probably right, but keep in mind that the blood test isn't always 100% accurate, though the biopsy almost always is. However, I guess gluten-intolerant or Celiac, you'll still need to be on the gluten-free diet, so it probably doesn't even matter.

- celiac3270

13 yrs. old

13 wks. gluten-free

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Trying to read my lab results

      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms?
    2. Kirbyqueen
      - Kirbyqueen replied to Kirbyqueen's topic in Dermatitis Herpetiformis
      11

      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in...
    3. dixonpete
      - dixonpete commented on dixonpete's blog entry in Pete Dixon
      1

      I started another couple of jars today

      Day 2, the day after incubation, I found 1 inactive larvae after sampling both jars. By sampling I mean inspecting about 15 mls of water extracted from each jar. Day 3, nothing. Day 4, I saw one larva in each jar. Day 5, I estimate there were 15–20 larvae in each jar. Enough to inoculate. So I guess that's the answer. 5 days. Waiting l...
    4. trents
      - trents replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Trying to read my lab results

      You have three celiac disease specific antibody tests that are positive: Endomysial Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual...
    5. Bayb
      - Bayb posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Trying to read my lab results

      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac? Endomysial Antibody IgAPositive Ft-Transglutaminase (tTG) IgA6 H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,211
    • Most Online (within 30 mins)
      7,748
    DaniellePaxton
    Newest Member
    DaniellePaxton
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Trying to read my lab results

      By Scott Adams · Posted

      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

      By Kirbyqueen · Posted

      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      Trying to read my lab results

      By trents · Posted

      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
×
×
  • Create New...