Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Degenerative Disc Disease
0

15 posts in this topic

I began getting really sick last July and the docs never could figure out what was wrong with me. I had the diarrhea, bloating, stomach pain, body aches, extreme fatigue, the constant pain under my left ribs and lost close to 20 pounds to mention a few. Towards the end of it all, I started having pain in my lower left back. A few weeks later, I got this horrible muscle spasm in my left leg and it has hurt off and on since then. The docs ordered an MRI and my back and it shows degenerative disc disease. The neuro says that everyone will get it eventually, but not usually until your in your sixties or so. I am 37. He said while it's not unheard of for people my age to get it, it is uncommon.

Has anyone else been diagnosed with this? Have you been told that it's related to gluten intolerence?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Don't know if it's related to gluten intolerance, but, out of 24 possible discs that are in your back, all but 7 of mine are either bulging or herniated. I also have "osteophytosis" on the front of my vertebrae -- a growth of calcium that usually comes about in your late 50's or early 60's. I'm 43. The docs just shrug their shoulders as to WHY my vertebral column is like that. I'm a PT -- and have been in a very physical job, but shouldn't have that much damage and degeneration. Don't know what to tell you, but I'm in the same boat. . . . Lynne

0

Share this post


Link to post
Share on other sites

I don't know either but I had 3 really badly herniated disks that took 2 years to heal and a factured vertebrae that still has not healed after 4 years. I was an elite athlete and it was an injury of sorts but now the doctors are starting to think it wasn't an injury after all as I have not resumed anything athletic since and it still has not healed! I'm 19 (it happened just after my 15th birthday!!!) and my doctors were absolutely shocked that anything like this could happen to someone so young!

0

Share this post


Link to post
Share on other sites

As for a fractured vertebrae, it won't heal unless you are immobilized. Typically patients are put in "clamshell" type braces that go from right under your neck down to the tops of your hips -- and they are rigid. You typically wear them for about 12 weeks. If it still hasn't healed, they need to put a bone stimulator on it -- or somehow go in and stabilize it . At 19, you can certainly have herniated discs, particularly if you were a vigorous athlete -- but they usually dont' heal, they just become less symptomatic. Discs are like car tires -- they herniate from the rings of layers tearing from the inside out and a herniation is like the little "bubble" you see on a bad tire. You need to keep up with that -- you're too young to stop everything -- and that fracture has me a little concerned . . . (can you tell I'm a mom???) (but I'm also a PT, too, and I've treated kids with the exact stuff you have -- it's no small matter)

0

Share this post


Link to post
Share on other sites

I also have herniated discs - mine are in my neck. I have had issues off-and-on for at least 15 years with a stiff neck and/or excrutiating pain in my neck and shoulder. Up until a couple of years ago I just lived with it. I finally couldn't take it any more and asked my doc what we could do because I was fed up with medicating it when it flared up (which didn't work that well anyway). He ordered an MRI which showed that I had 2 herniated discs in my neck, as well as issues with the 'conduit' that the nerves are in being compressed (I forget the medical terminology.....). He referred me to a neuro who asked what kind of accident I had been in. I have never been in an accident and cannot recall anything that would have caused this damage.

I am 39 by the way......and I also have TMJ. I wonder how much of this is related to celiac disease?

0

Share this post


Link to post
Share on other sites




I have degenerative disc disease and bone spurring, calcifications in my brain, calcifications in my breast. A lot of this is related to poor calcium absorption. You need magnesium to absorb calcium. And since we are about poor absorption as celiacs, we need all the help we can get. I started taking big doses of magnesuim and the pain in my back and neck have subsided a great deal. Not gone, mind you, but it is tolerable. Get a good magnesium (google magnesium KAL - it's cheap) and take 200 mg every hour until you reach diarrhea. Keep a written record of how much you are taking. When you hit diarrhea back down to the last dose you took and that's how much you need. Magnesium is like vitamin C and you body will slough off what it doesn't need. I intially went up to 4000 mg before I hit diarrhea (big constipation problems here that the mag has also solved!). I now take 2000 - 2400 daily. I did a lot of research on the internet and talked with the yeast infection person who recommended this technique. I wanted to be sure that this amount of mag would not hurt me. There are really no known problems unless you get to 20,000mg. I feel so much better in so many ways. A lot of my symptoms were related to mag deficiency. I know that it has certainly helped with the back pain.

fritzicurls

0

Share this post


Link to post
Share on other sites

Lynne,

Thanks for the support and the concern. They have basically tried everything you have mentioned as well as lots of physio etc. I have a really good sports doctocs who've stuck with me and are continually trying to find ways of helping me heal. Normally I'm a fast healer but I'm having some trouble with this one. Most days it's okay, but now and again I have days where there is little or no feeling in my legs. I know it's like everything else though, it just takes time and I know that I'm on the upside of it.

0

Share this post


Link to post
Share on other sites

This is a question that interests me. I herniated two of my discs when I was 18 in a sports accident. After physio etc, the symptoms lessened and I had little trouble until I was heavily pregnant. again, swimming and physio improved things. then, last year, my back started playing up big time and has been getting progressively worse. Both myself and my physio think it must be more than just coincidence that the back problems worsened at exactly the same time as the full blown onset of all my other coeliac symptoms.

fritzicurls - do you take a calcium supplement as well as the magnesium?

0

Share this post


Link to post
Share on other sites

Your symptoms probably worsened during your last trimester due to the huge influx of hormones which occur. In reality, your body is physiologically about 50-70% prepared to deliver during your FIRST trimester -- from the standpoint of your birthing canal being able to expand. During the first trimester, you get a first huge influx of hormones -- some women even get early back pain due to this -- the ligaments all soften, and the mother starts with some mild (sometimes severe) sacroiliac dysfunction. During your third trimester, you get another huge influx -- to further soften the ligaments to allow the pelvic ring to expand -- it is then that, quite often, you get moms who are unable to walk, etc. because of the sacroiliac dysfunction. The key to keeping it in check is that, if you had problems during your first pregnancy, your second will be worse, third worse than that . . . . so you start out in a prenatal lumbar corset and continue to be "monitored" by a PT that specializes in women's health -- they also usually specialize in manual therapy, so they will be a "kinder, gentler" type of PT! Don't know if any of it is celiac related, but I do know that our hormones kick us in the butt! . . . . . Lynne

0

Share this post


Link to post
Share on other sites
This is a question that interests me. I herniated two of my discs when I was 18 in a sports accident. After physio etc, the symptoms lessened and I had little trouble until I was heavily pregnant. again, swimming and physio improved things. then, last year, my back started playing up big time and has been getting progressively worse. Both myself and my physio think it must be more than just coincidence that the back problems worsened at exactly the same time as the full blown onset of all my other coeliac symptoms.

fritzicurls - do you take a calcium supplement as well as the magnesium?

I have severe degenerative disc disease. It is mostly limited to my lower back at this point. I have excruicating back pain most of the time. My dr. says that alot of my discs are very much degenerated. I also have osteopenia. He has suggested surgery, but since I developed bacterial meningitis form a spinal epidural that was intended for pain management in which I almost died, I am too afraid to do anything involving my spine.

0

Share this post


Link to post
Share on other sites

I'm sure you're right Lynne, in fact that's what the physio said too. But I also think that the celiac disease has aggravated things as well. it's interesting that when my other joint pains flare up, my back pains do too. I'm not expecting miracles from going gluten-free in terms of my back, but I am interested to see whether it does effect it.

0

Share this post


Link to post
Share on other sites
I began getting really sick last July and the docs never could figure out what was wrong with me. I had the diarrhea, bloating, stomach pain, body aches, extreme fatigue, the constant pain under my left ribs and lost close to 20 pounds to mention a few. Towards the end of it all, I started having pain in my lower left back. A few weeks later, I got this horrible muscle spasm in my left leg and it has hurt off and on since then. The docs ordered an MRI and my back and it shows degenerative disc disease. The neuro says that everyone will get it eventually, but not usually until your in your sixties or so. I am 37. He said while it's not unheard of for people my age to get it, it is uncommon.

Has anyone else been diagnosed with this? Have you been told that it's related to gluten intolerence?

Kalynn,

I was diagnosed with degenerative disc disease when my daughter was 18 months old, I was 34 then. I am 43 now. My neck hurt and my back from an old car wreck injury was flaring again. It got progressively worse and then my shoulders started to hurt as well. Orthopedic said that I have bursitis and tendenits. After I stopped gluten, my neck stopped hurting and my shoulders hurt way less. I also figured out that the foods in the Night Shade family were causing me more pain. I stopped those and still have pain, but now at least Motrin will help.

My theory is that gluten and the other foods I am intolerant to cause referred pain. I might have other GI problems that make my body respond in the inflamation or it could be para-mentopause and my hormones are causing the problems. What I want to do is to find a doctor to help me find out.

The GI I was seeing didn't believe that I am Celiac since my blood test and biopsy came back normal. Thing is that was off gluten for two weeks when I had the blood test and three months when I had the biopsy. He assured me that if there was damage, they would have found it. He also agreed that my starting gluten again for 6 months would cause more issues than would solve; another biopsy could come back negative. He did say that he would do a genetic test to see if I had one of the Celiac genes. He was a bit chagrined when he told me that I do indeed have one of the genes that all Celiacs have, but he added so does one third of the general population and not all of them are Celiac. He theorized that perhaps I stopped gluten before it had a chance to cause any damage. (With this "ammo" I am pretty sure that my brother will be tested and so will his kids and my two as well.)

My troubles and symptoms of bloating, abdominal pain, brain fog, strange periods, and worsening joint pain began about 5 years ago. I began gaining weight and could not loose it. My father had recently died and I was so worried about my mother. I have been lactose intolerant for several years so I just thought it was acting up or the IBS that I had been diagnosed with right after my divorce, 8 years prior, was acting up. I now see a common factor. Stress.

My gyno did several tests, a couple of times, but ruled out any problems. Then a couple of years ago, I kept on thinking I was getting the flu. In the evenings I would be so tired and have a fever, sore throat and chills, but I would be much better in the morning. I also had a creepy feeling of irritation that seemed to be in my whole body. I stumbled upon the gluten factor by chance. (Too long to tell.) Within 3 days of being gluten free my swollen looking legs reduced their size to my normal. My abdomin pain was gone and so was the bloat. My thinking abilities grew more clear and I could talk and stay on the topic with out asking "What was I saying?". (I was a little concerned that I might have Alzheimers Disease.) I have been gluten free for 10 months and have lost needed 25 pounds. I have started writing again too. So much that had been a problem for me has cleared up or has lessed since being gluten free.

Cape

0

Share this post


Link to post
Share on other sites

I too have degenerative disc disease, herniated discs and the schmorl's nodes or osteophytes. I am only 34. I also have scoliosis and Ehler's Danlos Syndrome. I have asked if it was related to my having celiac disease and they say with everything else I have going on, how to tell? But when you think of how long we all went along without absorbing our nutrients, minerals, etc. before being diagnosed, I would think so.

Christi

0

Share this post


Link to post
Share on other sites
I also have herniated discs - mine are in my neck. I have had issues off-and-on for at least 15 years with a stiff neck and/or excrutiating pain in my neck and shoulder. Up until a couple of years ago I just lived with it. I finally couldn't take it any more and asked my doc what we could do because I was fed up with medicating it when it flared up (which didn't work that well anyway). He ordered an MRI which showed that I had 2 herniated discs in my neck, as well as issues with the 'conduit' that the nerves are in being compressed (I forget the medical terminology.....). He referred me to a neuro who asked what kind of accident I had been in. I have never been in an accident and cannot recall anything that would have caused this damage.

I am 39 by the way......and I also have TMJ. I wonder how much of this is related to celiac disease?

I have done a lot of research of leaky gut syndrome (LGS) and what I have taken away from the serveral web sites that I have read is that leaky gut could be the trigger for Celiac Disease and some other autoimmune disorders. Good for an over all introduction to LGS. By the way, wheat, barley and rye are not to be eaten when dealing with LGS because of molds that hang out on the grains. Interesting.)

http://www.afpafitness.com/articles/LEAKGUT4.HTM

I am going to start elimintaing the yeast over growth from my GI tract and I have taken all sugar out of the diet. I have stopped all sugars, wine, fruit too and some of the sweeter vegitables. I have seen a big difference in my neck pain; not much at all. I have DDD too. I am pretty certain sugar is a big key to my pain, so I am figuring that once I get rid of the yeast, the the pain will go too. (Got to take lots of suppliments and hopefully, you can add things back to your diet after getting rid of the yeast over growth.) The following web site had excellent directions for getting rid of yeast; easy to understand.

http://www.eczema-usa.com (This web site says that eczema is caused by an over growth of yeast in the gut. My eczema went away after I stopped all gluten.)

I am wondering if DDD is caused from inflamation. Get rid of the inflamation and you help yourself. Thing is that Ibuprofin and the like causes damage to the intestine, so you don't heal if you don't stop taking it. I went into Wholefoods last week and asked for ideas for an anti inflamatory. The guy did not hesitate to give me samples of Celadrin. I took it and it works better than Advil. I went back the next day to buy a bottle. Side bar... I got a different form of Advil that I had been using and my neck began hurting me a lot. It has artifical sweetener in the coating. Fine, no gluten, but it had corn starch and other starches too. I started reading all of the Ibuprofin boxes. I can't do any form of corn or potatoe, including starches. I stopped the Advil and started the Celadrin and my neck stopped hurting again. (Along with neck pain I have painful bursitis in my shoulders as well. My knees and hips hurt occassionally as well. I have been doing yard work today and feel like I could do more tomorrow. It's been a long time since I've been this pain free. I stopped all sugar the same time I started taking the Celadrin. I am hoping that I can stop the Celadrin when I'm yeast free.

I hope my experiences can help someone. I have gotten so much valuable information from this web site.

Bye, Cape

0

Share this post


Link to post
Share on other sites

Yup... I'm 34 and just got diagnosed with Celiac. I have multilevel (3) degenerative disc disease. I'm assuming it's related until someone proves to me other wise.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,880
    • Total Posts
      919,451
  • Topics

  • Posts

    • Celiac - How many symptoms can there be?
      Hi Everyone I am new here and wanted to see if anyone else is experiencing the same thing I am.  I was diagnosed positive for celiac in 2/2016 via biopsy from an endoscopy.  I was negative for blood work because I self-eliminated gluten 9 months prior; so I guess I had not antibodies register in my lab work.  Prior to 2/2016 I was having symptoms for almost an entire year.  Despite cutting out grains in general for 9 months, I would have a gluten attack at least once a month.  I have had a history of sinus, bronchial infection.  I remember as young as 17 getting sick but I always bounced back and was active in sports and working out.  But in the past year I developed the following symptoms - Sudden desire to pass out, nausea, headaches, heart palpitation, crashing exhaustion as if I was recuperating from the flu, wheezing in my chest. I was bounced around to an allergist at this and was told I was asthmatic and I had food sensitivities to dairy, nuts, corn or corn derivatives (including corn syrup) and grains.  so I cut everything out!  Despite cutting everything out I was still have episodes at least monthly, possibly cross contamination.  In April 2015 I traveled to the Carribean for 2 weeks,  I became very ill with a urinary tract infection, stomach bug and severe back pain with constant fever.  I was treated with antibiotics (Bactrim) for 10 days which did clear up the situation. I came home and dismissed everything to a coincidence.  Six weeks later the GI distress woke me up in the middle of night.  The pain was so excruciating that when I sat on the toilet thinking I had to go, I almost past out from the pain.  I lay myself down on the floor until it subsided.  The next day I contacted my primary and was immediately seen.  She referred me to a GI specialist but the appointment was not until August.  Then 2 weeks before my GI appointment they called and rescheduled for late September.  I saw him and by then I was feeling better; no epsides for almost 2 months.  So we did nothing.... boy did I talk to soon.  Immediately after the appointment I had an attack.  These were the symptoms: Nausea, crashing fatigue (as if I was hit with the flu), diarrhea, dizziness,, loss of appetite,  lower back pain, specifically in the middle; intestinal discomfort and body aches which lasted 10 days!! and abruptly disappeared, thank God.
      . I had to wait to see the GI until 1/2016.  Once I saw him he did labs which were all normal.  He checked my liver, kidney, pancreas, blood count which was all normal.  He also scheduled the endo/colonoscopy for end of 1/2016.  Speeding forward in time....since the Endo/Colonscopy procedures, I had attacks January through March which last 7-10 days each time.  I finally had a break for 2 months and today as I type this I am on day 6 of another episode.  What I wanted to see if anyone has experience the following.  For me each episode is getting worse with the following symptoms: Nausea (horrible), back pain on the left side both in the rib cage (the front and back) at times this pain also gravitates toward my left hip.  I also get diarrhea, bloating, intestinal distress, crashing fatigue and loss of appetite.  What really hits me hard is the rib cage pain that is in the front and back on my left side.  I will be seeing the GI doctor in August; but I am hoping to see him sooner Any input in reference to symptoms is appreciated.    
    • Depression / anxiety issues
      Hi all  10 weeks ago i was diganoised with celiac with blood work and a endoscopy. I have had the worst 2 years of my life that started with blood being in my stool everyday. I have always suffered with anxiety for as long as I can remember but I always just pushed trough it. I then I started having panic attacks, insomnia and major depression that I could not handle, I could not function, I lost my job because I could not leave my bed, I shaked as I lay in bed everyday uncontrollably. I met with a doctor who put me on lexapro (antidepressant) I finally gave in after 6 months and started taking them, they made me worst than I already was so I had to stop after 14 weeks. Fast forward to 15 months later and the symptoms still persists including the bloody stools, I was in and out of hospital every week and told I had all sorts of conditions, then the blood work and endoscopy Finaly discovered the celiac. I have been on the diet now for 10 weeks, the first week my anxiety went away, the horrible knot in my stomach that I have had everyday, the hot flushes, the tingling I had run trough my legs. This all left but only for a couple of days then it came back, the depression also lifted but has now came back, I have been more than strict with the diet, I check everything twice before I eat it, me and the misses have thrown away everything from our kitchen and replaced it with new things. I had my Vitiam levels checked and I'm deficient in b12, Vit D, all B vitiams. It's like one step Foward 2 steps back in tearms of healing, I know these anxiety / depression feelings are not me but I've had them for so long that I can't seem to see light at the end of the tunnel. The couple of days that they left me when incredible I felt human and alive. Just wondering if any of this has happened to anyone else with celiac or gluten intorlance. Any advice or hope In tearms of healing or am I to feel like this for the rest of my life (I'm 28) by the way. Thanks a lot   
    • So I've been glutened....
      That sounds like a plan JMG.  If things aren't working then make a change, hopefully a positive change.  It seems to me we have more noticeable symptoms sometimes after being gluten-free a while.  I made a mistake last night and ate some tuna canned in water.  It definitely wasn't boring.  I usually have more sense than to eat tuna canned in water but screwed up last night.  They canned  it in broth of some sort.  Ingredients say vegetable broth and soy.  Yuck, not good for me.  It sure tasted good though, just ouch.  I am not saying it had gluten in it, but it does have soy and some kind of unnamed veggie monsters.  So it could be soy, or carrots or some other disgusting vegetable that got me.   Not all celiacs have additional food intolerances beyond gluten, but some do.  My gut could testify to that.  Anyway, if you have bloating, cut out all carbs and sugar for starters.  And try peppermint tea or Altoids.  Over here we have something called Pepto Bismol that helps soothe gut pain and another neat thing called aspirin.  And gluten-free beer as needed.  
    • Gluten free apparently not helping entirely
      Jean, Maybe your boss can find you a job in the office for a while?  It's worth asking maybe? It's not easy being on constant travel with celiac disease but it can be done.  Your effort to find safe food is going to be harder than most but it is not impossible.  But if you can't manage it you should really think about getting a non-travel job.  Your boss may be willing to work with you on an office position, even if it's temporary.  That would give you some time to look for a local job and also eat a safer diet. It's really up to you to control your diet and make sure it is safe.  If you can't figure out how to  do that while traveling you owe it to yourself to figure a way out of the travel. Celiac disease isn't always fun and games.  Not always.   I hope you find a way to improve your circumstances.
    • Gluten Free baby food pouches?
      Anyone know of any baby food pouches that are gluten free?  We love to have them on the go for our kids (not just baby), but I have no idea which ones to get now!  We used to get Meijer brand and Plum.   Thanks!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,922
    • Most Online
      1,763

    Newest Member
    Barsch
    Joined