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More Oat Questions


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22 replies to this topic

#1 chrissy

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Posted 13 February 2006 - 09:35 AM

i really would like to be able to use oats---if i can get them pure. our ped gi said oats are ok, if pure. i know alot of people are worried about reacting to them anyway. is there anyone out there that has been able to eat them occasionally without problems? i found some that are grown especially for celiacs, but i am still afraid to use them, at least not until i hear it one more time from our ped gi that they are safe.
christine
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Christine

15 year old twins with celiac, diagnosed dec. 2005
11 year old daughter with celiac diagnosed dec 2005
17 year old son with celiac gene

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#2 jenvan

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Posted 13 February 2006 - 09:43 AM

Christine--It is wise to be cautious about oats. 2 reasons why I don't: 1) the only way IMO to know if you are truly reacting to oats would be follow up testing, endoscopy, blood work etc. somtimes internal damage can be occurring without an exterior manifestations or symptoms. 2) i have not as of yet seen or been convinced of a completely gluten-free, non-contaminated brand of oats. and if i did, i would still refer back to number 1. just my thoughts until more research etc really comes out on this :)
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#3 hez

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Posted 13 February 2006 - 09:53 AM

I have not tried oats yet. I am waiting until I have been gluten-free for at least a year. Plus I would like to talk to my gi doc some more about it. I did find this website which I think is interesting. I do not know anyone or have a interest in this company http://glutenfreeoats.com/. When and if I do eat oats I will be getting it from this source. That way if I was to have a reaction I will know for sure it was the oats and not cc.

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#4 plantime

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Posted 13 February 2006 - 12:35 PM

I use McCann's Irish Oatmeal.
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#5 happygirl

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Posted 13 February 2006 - 12:51 PM

I believe it was one of the Celiac "experts" at Columbia (Dr. Green, maybe?) who said recently that pure, uncontaminated oats are safe. I think there are two brands---McCann's is one, and I can't think of the other one. I just made a dessert with it last weekend and it was great! If you do a search on this board, you should be able to find the thread about it.
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#6 mamaw

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Posted 13 February 2006 - 12:56 PM

We posted about this before but Cream hill in Canada and the previous post that mentioned the oats from Wyoming are both the purest of pure and they have been tested. I don't think either one is quite available yet . I know the one in Wyoming is trying to get them into stores and they said they would send me an e-mail when I could order directly but I haven't received it yet. I did sample the oats from Cream Hill and I loved them and I didn't have any problems with them.You can go to each website and make your own choice as to eat or not eat ......I believe they both say start out very, very slow when adding oats back into your diet.I got my sample pkg from a celiac conference.....I never thought I would miss oats....

good luck

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#7 jenvan

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Posted 13 February 2006 - 01:17 PM

My problem with brands like McCann's--a study was done on them where they were over codex standards for gluten in the batches tested--contaminated. From McCann's website below... If someone wants me to find the study, I can do that. 3 brands were tested, all had gluten contamination.

"All McCann’s oat products are processed in a dedicated oatmeal mill that handles only oatmeal. In the supply chain between farm and mill, there is a possible cross contamination with other grains, such as wheat and barley but we reckon that the level of non-oat grains to be less than 0.05%. Cleaning equipment within the milling process would remove the vast majority of these grains along with other elements such as stones, straw etc.

But we cannot guarantee that McCann’s oats are totally gluten free and we recommend that consumers use their own judgement as to whether they wish to use our oatmeal or not. Many celiacs can tolerate our oatmeal products without any adverse effect but they may not suit those who are particularly sensitive."
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#8 Rachel--24

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Posted 13 February 2006 - 03:13 PM

I got brave and started eating McCanns oatmeal and the first 2 times I got alot of rumbling in my stomach and some abdominal pain. I wasnt too worried cuz I'm never quite right anyway. The third time I ate the oats I had immediate "D"....this kind of alarmed me since I never get diarreah. I'm not someone who had alot of GI symptoms and the "D" is rare. I also got 2 sores on my face (I still have them :( ).

Anyways that pretty much scared me into not eating them again. One thing to mention is that the first 2 times I had the ones that are in the can. They look like little pellets. The third time was the kind in the box...just your regular looking instant oatmeal. They were both McCanns. Is there a possibility of one having a higher contamination than the other.

I was really dissapointed because the oatmeal was soooo good. The one in the box tasted much better to me for some reason. I was truelly in heaven until I ended up in the bathroom 3 minutes later. :angry:

Jen, I would like to see the study if you can find it. Were the results different from what McCanns claims on their website?
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#9 Guest_Viola_*

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Posted 13 February 2006 - 03:16 PM

I also tried oats and although I didn't get classic Celiac symptoms, I was queezy and uncomfortable, so have decided not to try them again. Perhaps I have become intollerant to them after so many years without them.
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#10 nettiebeads

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Posted 13 February 2006 - 05:18 PM

Even the experts are in disagreement on oats. Some say that the pure, uncross-contaminated ones would be okay. Others say that the protein in the oats is so close in stucture to the gluten protein in wheat that it triggers a response in some of those with celiac. Not enough testing, blind testing, and double blind testing has been done yet to rule one way or another. Me, I stay away. I've found that even if you don't have a classic celiac disease response to something, you can still be making yourself sick. I miss oats, but I enjoy being healthy a whole lot more!
Annette
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#11 tarnalberry

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Posted 13 February 2006 - 10:11 PM

studies done on this subject show that *pure, uncontaminated oats* are tolerated by most - but NOT ALL celiacs. a small percentage (~10%? I don't quite remember), DO get intestinal damage from the oat protein avenin. there is not currently a test to determine if you are one of the ones who will react to avenin. and then there's the issue of finding pure oats... ;-)
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#12 Guest_nini_*

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Posted 14 February 2006 - 05:01 AM

I would love to be able to eat oatmeal, but since the experts can't seem to agree, and even supposed pure uncontaminated oats pose a small risk, I will continue to avoid them.

I did find a porridge by Barkat on the Gluten Free Mall site that is delish... love it.
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#13 chrissy

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Posted 14 February 2006 - 07:39 AM

i would like to order some of the oats from the place in wyoming, but they are really pricey. i used to make a really simple homemade granola that my family loved. my daughter that needs to gain weight liked my granola. it is easy to make granola full of calories, i'm sure you can see where i'm going with this......anyway, wouldn't we be able to tell when they have blood tests again if oats were a problem? if they were reacting shouldn't their tTg levels stay high?
christine
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Christine

15 year old twins with celiac, diagnosed dec. 2005
11 year old daughter with celiac diagnosed dec 2005
17 year old son with celiac gene

#14 jenvan

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Posted 14 February 2006 - 08:54 AM

christine--i got a pdf of the test i mentioned. if anyone wants a copy, send me your e-mail address and i'll send it to you...
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#15 chrissy

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Posted 14 February 2006 - 10:49 AM

jen, my e-mil is kevheiner@msn.com
do you know anything about the oats from wyoming. i was thinking about sending the link for them to our ped gi and having him look it over and tell me what he thinks. he seems to be really informed and up to date on his info. i never would have thought that i would desperately want to be able to feed my children oats! LOL!! i am interested to see the report you are talking about. the people from wyoming say their oats have been tested and are safe---i wonder if we could get a copy of THEIR tests??
christine
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Christine

15 year old twins with celiac, diagnosed dec. 2005
11 year old daughter with celiac diagnosed dec 2005
17 year old son with celiac gene


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