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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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2 posts in this topic

Greetings everyone,

I have been dealing with a myriad of seemingly-unrelated health issues for a long time now, and they've come to culmination just recently. Had it not been for a chiroprator friend who has celiac disease and recognized my symptoms would I even have heard or consider that I may have celiac disease. But, I wanted to share my sufferings and see if they sound familiar, or if those of you with experience have seen a similar pattern.

1988 - Dx with Type-1 Diabetes (no family/genetic connection) placed on "constant-carbohydrate" diet

1990 - Dx with G.I. Reflux

1997 - Dx with Mitral-valve prolapse

- begin having stomach problems (diarrhea, gas, gurgling)

2002 - Dx with Irritable Bowel Syndrome

- Dx with General Anxiety Disorder/Depression

2003 - (Spring) begin having random shooting/sharp pains throughout body

- (Winter) begin having tremors in hands/forearms

2004 - tremors have worsened, now having "spells" ...all as yet undiagnosed.

- (April) have biopsy on swollen lymph node, no malignancy

After reading much of what many of you have shared with the problems such as diarrhea, bloating, gurgling, gas, etc.; plus from the information given to my by my chiropractor, and the data I've found on this site, I think celiac disease would/could explain a more-than-decade-long pattern of illness that could be partially reversed through a gluten-free diet.

I have talked with my family doctor, but he wants me to see a Gastroenterologist, and didn't seem to know about blood tests available that would at least show indicators. Should I wait before going gluten-free, or should I go ahead and make that move? If so, any diabetics out there that could give me suggestions for compensating for the loss of breads, pastas, etc. that typically make up a diabetic's diet?

Thanks for the help.

Patrick

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Hi Patrick WELCOME!!!

A Gastro doc would be the best doc to see, preferably someone with celiac disease experience. He may want to do blood work and in order for that to be accurate (as accurate as it can be) you MUST remain on gluten until testing is over.

There are 2 other options if you do not want to take the route above....

1. you can try the gluten-free diet for a couple of weeks or months to see if you show an improvement, if you do then you most likely have celiac disease or gluten sensitivity.

2. you can order a stool panel test from Enterolab which is more sensitive than blood and you DO NOT have to be eating gluten in order for the results to be accurate.

I hope you feel better soon and get some answers :D

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    • Newbie: mother to coeliac kids
      Are there any foods, like broth, that don't make your son feel sick?
    • Newbie Mom - How is my son feeling?
      I agree. As an adult its a little easier to withstand the rolling of eyes and exaggerated sighs from people who think you are over reacting and being too fussy.  My youngest has anaphylaxis to fish and seafood and people are incredibly understanding and careful - but it seems celiacs has become a "fad" due to gluten intolerant people removing credibility from true celiacs.  Adults can argue but kids are vulnerable. Socially its really isolating for them.    I totally relate to the waiting on endoscopy. For my very sick 12 year old the 8-9 weeks we waited for sheer hell and I felt I was feeding him rat poison. Now my 17 year old is waiting on his, booked for later this week.  Its a total nightmare waiting knowing you can start the healing if only you could stop feeding them gluten.  But I figure for future reference, having a solid diagnosis via biopsy is important. Good luck to you and your son.
    • Newbie Mom - How is my son feeling?
      Hugs to you and your daughter. My son and I are in the same boat, or at least,  paddling alongside your boat.  At their age being scrupulous about their diet is not only incredibly hard but socially isolating. Adults consider celiac people to be a pain so imagine what their young friends think.  Feeling so unwell and having no energy adds to their distress. And the thing is - I don't think at that age that they really understand that even the slightest bit of gluten will set them back badly.  I know my son is convinced one sweet won't matter. It really really sucks.  
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      No one in my wider family gets it, although my sister is certainly trying to understand. She gets that I will bring all food for my coeliac kids when we come for meals and is okay with that.    For other social events, I will suggest the meal is at my place so I can control the gluten.  But my biggest battle is my children's father (my ex husband) who refuses to get it, and thinks I am being stupid and trying to prevent him seeing V.  I have offered that V can visit but not eat nor stay the night.  Ex does not have the means or the brains to manage gluten free meals.    At this point it looks like I may need to go to court to get an order to prevent V from being forced to go and get glutened. I really really hope to avoid this, but its not looking good. 
    • celiac disease is psychosomatic
      I guess it's the "natural flavoring" which throws me off. It could or could not contain gluten and it's in so many products. I haven't been on a gluten-diet for as long as you...6 years. I may have bee undiagnosed and untreated for more than 25 years since i had signs that went back to chidhood. Yes, I have balance/anxiety/neuro issues. I know anxiety is connected to damage in intestines, but I don't know for sure if celiac causes balance/neuro issues. I was already tested for brain ataxia, but I didn't get too far on that. Well, there wasn't an exact test, but the neurologist noted that I was walking straight or something on those grounds so I must not have it. I know studies have shown Transglutaminase 6 antibodies indicate gluten ataxia, butthat test is not yet available to the public.  
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