Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

Newly Diagnosed; Welcome Ideas To Get Running Again

6 posts in this topic

good evening forum folks -

has been over a year since i've been able to get motivated / stick to my running. now recently diagnosed with celiac's (i see a dietician thursday). i'm relieved - to know i may have an answer to why i've been so depressed, unmotivated, and chronically tired (not to mention looking like a pot belly pig with stick legs forever) . so getting ready to go for the gluten-free diet, even though this requires saying goodbye to mike's hard lime ! want to run again and start weight training. mostly have done so in the past for mental health and to feel like i've accomplished something just for me.

would love to hear from you - any similar experiences, what got / keeps you motivated, and what i might "watch out" for on this journey.

also - anyone know if wearing a medical bracelet is necessary? (right now, i guess i'm having a hard time taking this disease seriously)

thanks for your time - hope to hear from you !




Share this post

Link to post
Share on other sites

I probably don't have the suggestions you really need, but if you haven't even gone gluten-free, it will be a while yet before you can really get back into the exercise thing. You have to let your body recover and build back up some energy. At this point in your recovery, exercise isn't going to provide more energy.

Opinions about the medical bracelet differ. My personal opinion is that if gluten is your only problem, I don't see the need. If you're in such a dire medical emergency that you can't communicate, you probably want them doing everything they can to save your life, even if it involves gluten. However, it probably won't involve gluten. Injectable drugs and IVs don't have gluten.



Share this post

Link to post
Share on other sites

I agree with Richard, it took me a long time to get

to reasonable point of wanting to work-out/play soccer again.

Once you figure out what you can and cannot eat, make sure

it's balanced. I take lots of supplements because in addition

to celiac disease I have many many food allergies.

As far as the nutritionist goes, they can be helpful or not -

you'll know once you meet him/her - mine was clueless.

When you're ready to run again, take it slow. Don't be

too disappointed if you don't get back to your "groove"

right away. You will eventually.

And ...this forum is awesome for helpful hints and info -


Share this post

Link to post
Share on other sites

i know every body is different so it is really hard to say, but i will tell you that i actually have MUCH more energy now that i have adjusted to being gluten-free...i just feel healthier as a whole. one thing that helps me is trying to exercise in the morning- it gives me more energy throughout the day. also, try to make sure that you get enough protein in your diet-- it will help make it easier to get through your workouts. Listen to your body, though, b/c u will be going through lots of changes over the next few months, so it will tell you what it can and cant handle. Good luck with the new diet- and let us know if we can help you along the way! :)


Share this post

Link to post
Share on other sites

good evening all -

wanted to say thanks for the informative and prompt replies; i'm pleasantly surprised to hear so soon. my visit with the dietician was yesterday. it was apparent she was fairly versed; i am glad i had done some "homework" prior to. lots of differing opinions out there, that's for sure. so, the gluten-free diet is underway, albeit i must say i drank a coke tonight. not sure if i can "have" it - but one for the road until i find out for sure.

i think i'm going to start some exercise - very limited - really take it slow. i tend to push too hard normally. if david b is out there reading - please keep me posted about your results.

again, thanks to each of you for your time and replies - i am encouraged and don't feel so alone. lastly, i love the kitty picture - your babies are adorable! my kitty megan is my baby and my life.

kindest regards,




Share this post

Link to post
Share on other sites


first of all, coke is gluten-free-- enjoy :) good luck with the diet-- how are u feeling so far? u will probably have more energy some days than others, but i think thats generally true of anyone...

thanks about the kitties- they are SO sweet-- 1 yr old, we adopted them from a shelter. I just got back from a 4 day vacation and was so happy to see them greet me at the door...what wonderful cats! would love to see a picture of megan- get her picture up on here! :)


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • turkey
      so you can't even cook without stuffing inside turkey and not get gluten? Sorry I'm not familiar with turkey and wondering if I can have it while rest of family gets stuffing? In other words is turkey gluten free?
    • Numbness, Tingling in limbs & Joint Aches
      Hi Ender, Although you didn't get a complete thyroid panel, from what I see you are hypothyroid.  Most Dr's only care about TSH and yes yours is in the range, but when mine is that high I get terrible joint aches.  I feel best with mine around 1.  Your free T4 isn't just a tad low...most people feel best with it around 50% of the range.  I think you could benefit from some thyroid replacement medication.  You should also get a full thyroid addition to what you've had done a free T3, TPOAB and TgAb.   The last 2 are antibody tests.  Hashimotos is found fairly frequently with celiac.   Low vitamin D can also cause aches.  It would be really good to have your levels checked again.  Until you are healed you may not absorb it well enough so it's good to keep supplementing.  It took me a year and a half gluten free to get mine to an acceptable level for my Dr and he's keeping me on 2000 daily for maintenence.  For the numbness and tingling my Dr had me add magnesium as I was having horrible tingling in my feet and my B12 was good.  I have to say it has helped a lot. I hope you are able to get this figured out...I would definitely start with a complete thyroid panel and recheck of Vitamin D.  Here's a bit of reading on thyroid stuff if you have time.  Hugs!
    • Positive & Increasing TTG -- questions re: testing & history
      I'm a 31-year-old high school teacher (currently on disability) who has been dealing with 4 years of major gastrointestinal problems, which resulted in major surgery for a rectal prolapse & redundant colon last August, prior to which I had lost about 20 pounds. The source of all my gas, bloating, distention & diarrhea has remained basically unexplained though ("lets trust the surgery resolves your obstructed defecation and in turn your gas... d'oh it made both  worse"  ) , and my symptoms have only gotten significantly more severe since surgery. I'm facing a permanent ostomy. I've also, for the first time in a lonnng time, been eating a lot of gluten every day... primarily out of depression and (misguided?) attempts to gain weight and keep stool soft. I've been typically slightly underweight for 10+ years. Suffered anorexia for a period 10 years ago, and since recovering have "naturally" maintained a low weight and low-wheat lifestyle (I've always been put off by heavy wheat items like bread, sandwiches & pasta, *shrug*). As a child I had crazy severe & unexplained constipation issues. I've also had strong teeth discoloration & marked enamel defects (& two missing adult teeth(?)) since childhood. Depression & anxiety have been longterm issues. I have osteoperosis, which was perviously explained by me being anorexic from 19-22. Everything changed 4 years ago upon the onset of all my (severe) classic-IBS symptoms (gas/bloat/d+c). On a low-gluten diet, TTG bloodwork came back "low-positive" repeatedly. A biopsy showed no damage, but my gluten intake at the time was limited to 2 cookies a day, or occasionally 2 cookies and a piece of pizza. Would this have been enough tho show damage? I trialled going gluten-free for a few months, and didn't find a ton of relief... so assumed I was just FODMAP intolerant... however I was eating lots of oats and lactose that whole time, which I have subsequently identified as major triggers... not to mention just lots of gluten-free junk food. Wheat was obviously a significant gas trigger since this hit, but that seems typical for gut illness in general. Since my major surgery and the continuation and worsening of symptoms, I've connected with an internist who has again and again pushed me towards eating wheat as a method towards weight gain and healthy non-anxious eating. I also found that a high-wheat diet would provide the proper consistency (i.e. very loose diarrhea every day) to allow colorectal function (the surgery I had went very poorly and caused major obstructed defecation). I have not had success gaining weight, and have found my digestive system feeling assaulted like never before 24/7 by bloating, gas and discomfort, despite a relatively low-residue diet and constant elimination. My appetite has never ever been worse. I just had a fourth TTG test, and after this high-gluten diet I am now testing POSITIVE as opposed to BORDERLINE. Questions: 1) I suspect my first biopsy's gluten challenge wasn't quite heavy enough in terms of gluten content (couple cookies a day). Thoughts? 2) Could being underweight alone cause an elevated TTG? How about simply having colorectal surgery? "IBS" or the supposedly non-pathogenic gut bacteria blastocystis hominis which I've been diagnosed with? 3) I really don't know what to do right now. I'm 20 pounds underweight, in digestive hell, with most of my medical support still suspecting I'm merely acting anorexic. I most assuredly am not. They want to put me on a tube. I would really like to get off the gluten in order to ease my system and gain weight, as I'm clearly reacting to it and have been deluding myself for the past year trying to recover from this surgery, but I'd also *REALLY* like some diagnostic confirmation so my doctors & family all stop looking at me like I'm crazy, and that so I can act with appropriate caution/freedom in my dietary future. 4) Do my childhood experiences line up with any celiac sufferers? I've heard about enamel defects, but missing teeth or crazy constipation? Obviously osteoperosis could connect, and doesn't *really* line up with my anorexia considering I was already fully grown. 5) Is there any way to get EMA/HLA blood tests done in Canada (BC)??? It's really frustrating that my only chance for any confirmation is waiting months and months here for another biopsy, especially considering how dire the need to improve my digestion is ASAP. I imagine if I could get an EMA test & it came back positive I would just take that as my confirmation and be able to move on with confidence here. 6) Is it common for celiac sufferers to find themselves reacting to FODMAPS and/or histamines in foods while they're  still maintaining a gluten-filled diet? Gluten definitely isn't my *only* trigger right now, and that's probably a primary reason I haven't been led to eliminate it at. Sorry for all the talk & questions, but I'm in an incredibly challenging place right now, my head is just swimming and swimming, and any thoughts would be greatly appreciated!   Bloodwork Current, after six months of a heavy-gluten diet = Tissue Transglutaminase Ab IgA ---18.0 ---- <12.0 U/mL = normal
      POSITIVE -Probable celiac disease but this should be confirmed with a small bowel biopsy. [Tested by a multiplex flow immunoassay
      (BioPlex) method.] 

      6 months ago = Tissue Transglutaminase Ab IgA ---13.0 ---- <12.0 U/mL = normal
      BORDERLINE - Borderline anti-tTG. Suggest repeat if clinically indicated.Consider the possibility of celiac disease - a small bowel biopsy may be required. [Tested by a multiplex flow immunoassay
      (BioPlex) method.]

      2012, prior to negative biopsy = Tissue Transglutaminase Ab IgA ---24.0 ---- <20.0 RU/mL = normal
      Weak positive anti-TTG. Consider the possibility of celiac disease - a small bowel biopsy may be required.  
    • Just in time for Christmas  
    • Celiac and Acne
      do you perhaps have acne inversa?  i looked for pictures, didn't find decent ones.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Members