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Symptoms In Toddlers?


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19 replies to this topic

#1 prinsessa

 
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Posted 16 February 2006 - 12:53 PM

I am new to this board, but I have been lurking for about a week or so. I am getting tested for wheat intolerance because of all the stomach/intestinal problems (plus a bunch of other symptoms) I have been having. I was wondering about the symptoms for wheat intolerance/Celiac disease in toddlers. I was wondering if my son could have it too because of how small he is for his age (he is almost 2 1/2). Both DH and I are tall, but DS is under the 50% for height (between 25 and 50%) and he was only in the 5th% for weight at his last check up. I thought that he might just be a slow grower and would eventually catch up. But now that I am learning more about Celiac disease I am wondering if he could have it.

I plan on waiting to get my kids tested until I have more tests. I would rather go through the tests than have them have to do it. I probably won't get the results for the blood tests back for a couple of weeks. And if I do get them tested, how do they test kids? Is it the same as they do for adults? I really don't want them to have to get a biopsy. I would just cut wheat out of their diet and then see how they do. Thanks....I'm a little worried about having to give up all wheat products :unsure: , but I would do it in a second if I would feel better. I would also like to catch this in my kids early if they do have it.
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#2 Guest_nini_*

 
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Posted 16 February 2006 - 02:19 PM

my daughter was 3 1/2 when I was dx'ed with Celiac and subsequently determined that she had it as well... she was anemic, hypoglycemic, underweight... (very skinny with protruding belly-looked like a starving Ethiopian child) she had behavior issues, digestive issues, vomiting, diarrhea, bad rashes on her bottom and chronic yeast infections. Reccurent ear infections and sinus problems... all of which cleared up after she went gluten-free. She is now a healthy happy soon to be 6 year old.
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#3 floridanative

 
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Posted 16 February 2006 - 03:45 PM

I just figured out that my sister's daughter shows some signs that could indicate Celiac so I'm nicely trying to get her to get both her kids tested. The way I see it, the sooner the dx the better. It's easier for a 4 year old to eat differently than it is a 12 year old.

Nisla is being modest....her little girl is precious and she is the most well behaved six year old I've ever encountered!
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Dx'd with anemia - March 2005
Positive blood tests - Sept. 2005
Positive biopsy - Jan. 2006
Gluten free since 1-23-06

#4 Guest_nini_*

 
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Posted 16 February 2006 - 03:52 PM

Nisla is being modest....her little girl is precious and she is the most well behaved six year old I've ever encountered!


awwwww thank you sooooo much! Poor lil thing is sick with a virus right now... she's missed two days of school with a temp of 102.5
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#5 floridanative

 
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Posted 16 February 2006 - 06:52 PM

Oh I'm so sorry to hear that Nisla. Hope she's feeling better soon!
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Dx'd with anemia - March 2005
Positive blood tests - Sept. 2005
Positive biopsy - Jan. 2006
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#6 Guest_nini_*

 
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Posted 16 February 2006 - 06:55 PM

Oh I'm so sorry to hear that Nisla. Hope she's feeling better soon!


thanks, me too... I hate seeing her like this. she's crying because she misses being in school with her friends. I hope we are on the track to getting her better, the fever seemed to break for a while today and she actually had a bit of an appetite... she wanted a TACO of all things and then a hot dog! What a kid!
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#7 jerseyangel

 
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Posted 16 February 2006 - 06:57 PM

When they ask for a hot dog and tacos, you know they're on the road to recovery :D
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#8 VydorScope

 
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Posted 16 February 2006 - 06:58 PM

If you have it, DEFINTILY WITH OUT QUESTION test all your childern.

That being said my son (whose 2 1/2 now) started off in the 105th % (for height/wieght) and slowly fell to the 80's and who knows where he was headed. He had what we thought was sever acid reflux, spit up constantly (occasionlay BLOOD), threw up fairly regualrly, 5-7 bouts of D a day, on good days. Started to ahve the "big stomache" and his belly was of hard and he acted like it hurt if you felt around his gut. Took 18 monhts of his life to diagnose. He would wake at night and just sit and cry. Some nights I would hold him for a couple hours while he screamed in pain and there was nothing ANYONE could do. NOTHING can describe what that feels like to a parent, I wont event try. Unfrotunilty to many of you already know. :(
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#9 TCA

 
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Posted 17 February 2006 - 12:06 AM

My son had chronic diarrhea, tooth enamel defects, failure to thrive (dropped from 60th percentile to well below the carts for weight and 90th to 40th for height), irritability, horrible rashes, delayed development (walking and speech), etc. He had just turned 3 at diagnosis after over 2 years of testing.

My daughter had projectile vomiting, FTT, and blood from her stomach (through her feeding tube) until I went gluten-free while nursing. Horrible reflux still an issue.

Neither could tolerate any formula and had casien intolerances before going gluten-free (blood in stool).

good luck!
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If you're looking for info on how to get started on the gluten-free diet, check out this List for Newly Diagnosed.
Self - Pain free since going gluten-free 9/05 (suffered from unexplained joint pain entire life), asthma improving, allergies improving, mysterious rash disappeared (probably DH)
Husband - Type 1 diabetic, Negative bloodwork
Son - Elevated IgA, Very high IgG, 2 negative biopsies - HLA DQ2 and DQ8 positive, Amazing dietary response since 1/06
Daughter - Congenital Heart Defect (2 surgeries), Reflux, choking issues, eczema, egg allergy - HLA DQ2 positive, Good dietary response (via me because of nursing) since 9/05
"All things happen for good for those who love God..." Romans 8:28

#10 mommida

 
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Posted 17 February 2006 - 06:27 AM

My daughter had "classic symptoms" so I will tell you about my son.
Picture of health, except for constipation and a slight rash on his arms, sometimes on his face. Pediatricians always said that boys just seem to have more constipation problems and the rash was nothing to worry about. Damage can be happening internally and there may be no signs, but get them tested. If the tests come back negative, you can still try the diet. The book, Dangerous Grains, has made people without Celiac go gluten free.
Laura
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#11 prinsessa

 
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Posted 17 February 2006 - 10:46 AM

Thanks everyone! He was in the 25% for weight for a while, but now he has dropped down to the 5%. His doctor wanted me to come back in a couple of months (at his last appt.) to see if his weight has gone up at all. I didn't bring up the wheat intolerance because I didn't even think of it then. I thought his shortness might have something to do with his thyroid. I'm not even sure if I have gluten intolerance myself since I haven't got the results back yet. I hope not, but in a way I hope I do. It wouldn't be the end of the world to give up wheat and I would know what was causing my problems. If I'm not wheat intolerant, than I'm going to have to have more tests to find out what is wrong with me. I just want to find out the problem and start working on it.

Besides being small, my son also has tons of gas. He doesn't have any D, but his stools still don't seem normal. I know this might be TMI, but it doesn't seem like all his food is digested. He also has dark circles under his eyes and has problems going to sleep at night. If he does have any sort of intolerance, I would like to catch it now. Sorry this post got so long....it feels good to talk to people about it since most people don't know anything about Celiac.
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#12 VydorScope

 
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Posted 17 February 2006 - 11:11 AM

Thanks everyone! He was in the 25% for weight for a while, but now he has dropped down to the 5%. His doctor wanted me to come back in a couple of months (at his last appt.) to see if his weight has gone up at all. I didn't bring up the wheat intolerance because I didn't even think of it then. I thought his shortness might have something to do with his thyroid. I'm not even sure if I have gluten intolerance myself since I haven't got the results back yet. I hope not, but in a way I hope I do. It wouldn't be the end of the world to give up wheat and I would know what was causing my problems. If I'm not wheat intolerant, than I'm going to have to have more tests to find out what is wrong with me. I just want to find out the problem and start working on it.

Besides being small, my son also has tons of gas. He doesn't have any D, but his stools still don't seem normal. I know this might be TMI, but it doesn't seem like all his food is digested. He also has dark circles under his eyes and has problems going to sleep at night. If he does have any sort of intolerance, I would like to catch it now. Sorry this post got so long....it feels good to talk to people about it since most people don't know anything about Celiac.



I would call your doc today and talk to him about celiac disease. I would not wait a couple months. If it is celiac disease he needs treatment NOW (treatment being gluten-free diet) not in a few months.

Thats just my opinion.
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#13 mommida

 
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Posted 17 February 2006 - 11:33 AM

I would call the doctor today. Your ped. may not want to deal with this diagnoses at all and may refer you to a ped. gastro.
It is not TMI information about the undigested food in the stool. It is a serious symptom.
Laura
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#14 prinsessa

 
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Posted 17 February 2006 - 11:41 PM

thanks, You guys are right. I need to call his doctor soon. I asked my doctor if I should get my kids tested and he said to wait to see what my results are first. My mom said that I should just put them both on a gluten-free diet to see if it helps them at all. DD doesn't really have any symptoms besides leg cramps, but she is very addicted to wheat products. Now that I think of it she does get bloated sometimes and occasionally gets D. I would like to know for sure if they are gluten intolerant because I don't know if other people would take it serious unless they had a diagnosis (plus they might now take it serious themselves since DD is already in school and likes to share food with friends). Especially my MIL since she thought I was weird for not wanting my son to eat certain things as a baby. But I know that testing isn't 100% reliable. They might get a false negative and end up really having gluten intolerance.

I wouldn't mind them having a blood test, but would they have to have biopsies too? I'm a little worried about them having to have anesthesia (especially DS since he is so little). Do they do that for children so little?
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#15 Nic

 
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Posted 20 February 2006 - 11:30 AM

My son was diagnosed last year at 4. He was constipated, bloated, and had dark circles. He started out, before the idea of Celiac, having a sigmoidascope. Afterwards, he had the endoscopy. Still later, he had a colonoscopy. He was put to sleep for all 3 and he handled it all very well with the exception of the gas after the colonoscopy. In between all this, he had a barrium enima which he did not handle well at all because he was awake for it. I hit a point where I prefered he be put to sleep so that he did not have to feel discomfort or fear. When their little they do not fear being put to sleep. Also, speaking from experience, the younger they are the easier it is to adjust to the gluten-free diet. My son will never remember what a real donut or ring ding tastes like. He will only know gluten-free.

Nicole
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