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Egd / How Many Have Been Diag With Candida Besides Celiac Or Gluten Intolerance
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Rachel,

I'm soooooooooooooooo sorry that you've been going through all of this! I mean, we are all sick on here, but from what I've read, you have had the worst case senario that I can think of, or that I know of. And you're positive about everything! I need to be more like you!

So, from what I understand, you're doctor told you that yes, we all have infections, but for most of us, through staying gluten-free, time, patience and the good old elimination diet, we can heal ourselves, but for people like you, the situation is just too chaotic to handle on your own.

I know that it's really my fault for the way that I feel. I looked over my food journal and realized I've been adding WAY too many foods all at once. And of course, as soon as I started having a better day these past two weeks, I ADDED NUTS! Even though I thought they bothered me, I read somewhere that most roasted nuts are made with MSG. So I was like, RAW nuts! Yeay! And I went to town only to hate myself for it all over again. I went to the begining of my journal and yes, been there done that. I should have known. When I start feeling better for some reason I deney the fact that I can't have all of these other foods either, and eat them and then have to kick myself. Well, not anymore. It's such a vicious cycle....probably like being an alcoholic or drug addict. But I can't do it anymore, I want my life back.

So today starting at lunch time I decided, once and fod all, this is it. I need to start the elimination diet, stick to it and start living again. It's not life when you keep making yourself sick every 5 minutes! So I'm going to have pears, mangos and avocado for the weekend or until I start feeling better. I'm picking these foods because I know that the foods that you eat the least have the lowest chance of being an intolerant food for you. And I love these foods and I know they are all easy on the digestive tract. So I had pears today and it helped my stomach ease up and the back pains are subsiding. And I'm going to the diatician on Tuesday, so hopefully she will be a good coach for me and help me with what easy foods to try next.

Anyway, I'm very happy that you know you are in good hands. And thank you for all of the info. and encouragement and motivation. Look! You're helping people already and you're not even in the medical field (yet)!!! hahaa..........

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I'm soooooooooooooooo sorry that you've been going through all of this! I mean, we are all sick on here, but from what I've read, you have had the worst case senario that I can think of, or that I know of. And you're positive about everything! I need to be more like you!

:lol::lol: Believe me...I have my "moments". Just ask the people who know me! I usually just go to bed on those days and try to start fresh the next day. Its not always easy. I think all the research I do takes my mind off things and sometimes I'll be like "oh yeah...I'm still sick." When I'm at the doctors I sometimes forget I'm the patient and I'm just eager to learn so I feel more like a student. :lol: I probably annoy the hell out of him.

I'm glad you're thinking positive. Once you really commit yourself to getting your health back I've discovered theres really no limit to what you can do to help yourself get better. I used to smoke, work too hard, skip meals, stay up late, eat all fast food. I never learned how to cook and didnt eat anything that didnt come in a box or package. I dont do any of those things now and I cook all of my meals. Maybe I just went into "survival" mode. I dunno but all I can say is if *I* can do these things...anyone can do it.

Also..I have goals for myself so if I get frusterated I think about what I could lose if I just give up....that keeps me motivated. :) I dont think I'm worst case scenario cuz I see people on here that suffer from diseases they should never have gotten if they'd been properly diagnosed. So far I havent developed any diseases or serious conditions and I'm still young so I should be able to heal and get on with my life. If I had continued to be neglected by the doctors in my HMO there is no doubt in my mind I'd end up with more serious problems.

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    • Thanks for the replies so far everyone, much appreciated Great, another doctor gets it wrong, how many more times can they make a mess of this diagnosis process?! Bloating had gone down a bit in these first few days of cutting the gluten so I guess expect that to come back. It's one way to have a farewell tour of the gluten foods I guess - if a little or a lot makes no difference may as well go all-in... The doctors didn't diagnose this at all, Google did. If I trusted in the health professionals I'd be blaming the symptoms all on stress and having counselling for it whilst the fire raged on inside me due to a clinical condition they'd missed. Just glad one of doctors agreed to run the test on second time of asking to keep me quiet as much as anything. Believe me I've read that newbie thread multiple times, as well as numerous others around the web. Been doing nothing but since Tuesday when the blood test results came back and each time I go into the comments sections a little bit more of me gives up inside. Seems so many don't ever heal and so many associated complications too. The reality looks bleak apart from a lucky few it seems. In the nicest possible way the vegetarian choice is non-negotiable, it's a core part of what I believe and the thought of eating any form of animal \ fish flesh would make me physically sick (sorry meat eaters) so will have to find some way around it, how I don't know yet. Perhaps lots of this... http://www.pulsin.co.uk/pea-protein-isolate.html The cooking bit is a concern as it's something none of us do well at home, adds to the feeling of being completely lost right now. I kick myself for the decision that lead to the stress as I could've avoided all this. The only thing I can cling onto there is that I was having some pains in the side before that time which I blamed on a muscle strain... maybe that was the early stages, in which case I could feel a bit better knowing it had just come on gradually. With the biopsy and gluten from what I read the villi take a long time to heal up so they'd still see that. With the blood test result as definitive as it was surely the disease is pretty much confirmed? How can it heal enough for non eating gluten to throw a biopsy result yet on the flip side take over a year to heal (that sounds like the best case scenario time-wise from what I've read). Not suggesting anyone is wrong for one second but need to understand how that works with what's going on inside to make any sense of this situation.
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