Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Positive Wheat Antibodies, Not Celiac

3 posts in this topic

I have been reading this forum to try to understand if my 7-year-old son could have celiac disease. His doctor suggested that it was possible based on his symptoms and ordered blood work. As most of you know, it takes about a week for the results to come back. When you're talking about a sick child...a week is an awfully long time. Here's a summary of what happened and the doctor's interpretation of the blood test results:

1st blood draw (wheat and milk allergy tests ordered); stop consuming dairy, keep consuming wheat

symptoms improve

Results of 1st blood draw (1 week later) show positive for IGG and IGA -- indicates possible celiac

Doctor ordered 2nd blood draw for more specific wheat antibodies

Results of 2nd blood draw (another week later) show negative for TTG and endomysial iga -- indicates not celiac. But this didn't make sense to me after reading the Enterolab and Dr. Fine articles referred to throughout this forum. I was concered that my son was "glutent sensitive" but not yet celiac. From the information presented on those sites, I had the [incorrect] understanding that wheat antibodies only show up in the blood stream if one is "gluten sensitive" (keep reading for an explanation why they might be there even if one is not "gluten sensitive"). I'm not sure if I misunderstood the Enterolab information or if it is incorrect/misleading.

4 days later the results of the milk allergy (casein) finally came through -- strong positive. It took 19 days for a test that normally takes a week.

So the doctor's conclusion is that my son is allergic to casein (that means milk and anything that is made with milk). His


Share this post

Link to post
Share on other sites

Ads by Google:

That is very interesting.. I asked once before it anybody knew what other reasons there could be for an elevated IgG and IgA.. nobody could answer me. This is very frustrating b/c my 2 yr old did not have the other tests you are talking about, and everyone is telling me that she has Celiac simply on the two antigliadin antibodies being high.

She has been gluten free for almost a week and is still having stomach cramps and diarrhea. I have been *very* careful and there is no way she could have gotten any gluten. I have suspected some sort of food allergies and asked several people if they could be causing her diarrhea, but nobody will give me an answer. I can't get into the allergist until October, and the GI dr appt is not until July. My regular pediatrician doesn't seem to have any idea what he's doing, just told me to try the gluten free diet and see if it helps.

She has also been off casein as well this week. I am frustrated I can't get clear answers, and now your post makes me wonder. I am glad your son does not have Celiac. You must be so relieved.



Share this post

Link to post
Share on other sites

Here's what worked for us:

When we went to the pediatrician to discuss my son's issue, I took a detailed write-up describing my son's on-going symptoms. The doctor took me very seriously. I know it's difficult to talk to the doctor when you're trying to keep a two-year-old from touching everything in the exam room. If your child has serious, chronic problems, the doctor should help you get to the right specialist as soon as possible. It may be helpful to have another adult with you to take care of your daughter while you talk to the doctor. The doctor may not understand how serious you think the problem is. If you do your best to communicate with the doctor and you still feel like your child is not getting the prompt attention she needs, I would go to another doctor.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • I have not taken him to a dermatologist. I have dapsone, which I put on the rash, it always clears up. I have it for another family member. But then I started reading about celiac and all these dots are out there but not connected.  The next time he has the bumps, I am going to take him in. In the mean time, I am trying to find a dermatologist who understands the condition. I don't want my kid to have celiac. And I kinda feel crazy for thinking he may have a gluten issue but with it in my family and him having these other things, I want to be dilligent.   i will read up on the test you suggested. Thanks for taking the time to read and respond everyone.   
    • I tested positive to deamidated gliadin in August at a hospital. My old GI tested me using gliadin (the test listed on your result) in September and it was negative. Literally the next day, my new GI tested for deamidated gliadin again and it was positive (I was unaware the hospital scheduled an appointment with the new GI for follow up).  If you still suspect it, Google deamidated gliadin, print out the Mayo clinic lab info and circle the part where it says they have discontinued the use of gliadin in favor of the deamidated gliadin.  Has he seen a dermatologist?
    • He has a rash on his fingers from time to time. Angular Chetelis. Mouth sores. So skinny. Anxious. 
    • The blood test results are negative (and he had the complete panel).  No GI issues (per your posting).  What makes you suspect celiac disease?  
    • Hi WS, So sorry to hear your not feeling quite right just yet. I can relate! I believe in doing whatever is needed for you to be able to come to terms with the diagnosis, which it sounds like was given to you already but if you still need further evidence then do whatever is needed!  In regards to food, I am a pescatarian so I also don't eat meat but I get my protein from some seafood, eggs, beans, natural protein replacements, exct...I was vegetarian and found it extremely difficult on the gluten-free diet for my lifestyle. I found probiotics have really helped me but even now I still feel off days with my digestion and I think that just comes with having a digestive disease. I know what foods trigger it (Yes gluten-free foods!) and try to stay away. I remember the first month or so I was very sick from removing gluten, almost like withdrawal symptoms. Probably because I ate a lot of it prior so it was a shock. 3 1/2 years later, I still feel weak and light headed if I don't eat enough carbs/protein. Celiacs are known to have deficiencies already so your nutrition intake/supplements are super important! I hope your able to find peace with your health and get the answers your looking for! Let us know an update -Cristina  IG: ifitceliac
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member