If The Celiac Panel Shows You Don't Have The Antibody Does That Mean You Don't Have Celiac Disease?
Posted 21 February 2006 - 02:45 PM
I first found out I have an allegy to wheat with a IgE blood test then a nurse pract. ordered more blood tests, I think a Celiac Panel. She called me and said I don't have the antibody for celiac so I don't have the disease but now the GI doctor wants to do an endoscopy to know for sure. He told me to go off the gluten free diet, so I have. My only previous symptoms were bloating and more recently I've been experiencing muscle spasms and back pain, which did not go away even though i was on the diet for 3 weeks. I thought the endoscopy might be a good idea even if I don't have Celiac since its a camera and he might see any other problems going on? Does that make sense? Or should I be questioning whether to have this done at all?
Posted 21 February 2006 - 02:56 PM
you need to find out exactly what tests were run, you need to know that the gluten free diet, even for three weeks, will affect the results of your biopsy. So, regardless of what the biopsy finds, you should consider staying gluten free as the possibility of false negative test results are highly possible. However, if you get a positive, It's positive.
back to what tests did they run. There is a specific panel of tests that must be run at minimum, to screen for Celiac.
Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Total Serum IgA
the bare minimum they should have done is the EMA and the tTG... if they didn't at least do those two tests, and show you the results, they can't tell you that you don't have it.
Posted 21 February 2006 - 03:31 PM
I had enterolab testing and I have Gluten Sensitivity. Not full blown Celiac but I still have to follow the same diet.
Posted 21 February 2006 - 03:39 PM
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Posted 21 February 2006 - 04:48 PM
I thought and endoscopy and biopsy are kind of the same. Isn't the procedure an endoscopy and the samples they take are the biopsy ? I don't get it.
I had negative blood results, but the GI saw flattening in my small intestine during my endo. My biopsy was inconclusive.
Ty was diagnosed by blood test June 7/05
biopsy Aug 11/05, diagnosis confirmed Aug 18/05
Mom, Dad and big brother Celiac-free.
Posted 21 February 2006 - 05:28 PM
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Posted 21 February 2006 - 05:41 PM
Posted 21 February 2006 - 07:17 PM
Thanks all for the info....I'm confused though, nini, I thought you had to consume gluten before the endoscopy so it will show positive results for celiac. If I'm gluten free won't I take a risk having negative results because of the diet?
um yes, I guess I wasn't clear in my explanation... you have to be consuming gluten for the endoscope to be accurate, BUT you said you had already been gluten free for 3 weeks, SO, I was just reminding you that even if you eat a ton of gluten leading up to the endoscope, the fact that you were gluten free for 3 weeks theoretically "could" affect the test results. Realistically IF there is damage it won't go away in 3 weeks, but you never know. The human body is amazing in it's ability to heal itself and Dr.s are reluctant to dx Celiac unless they see full fledged villous atrophy.
All I was saying is if after your biopsy you are still left with inconclusive results, please consider giving the gluten free diet a good effort to see if it improves your health issues. Ultimately a positive dietary response to a gluten free diet is the best indicator.
Posted 22 February 2006 - 10:21 AM
IgA & tTg Positive
DQ2-0201 (celiac) and DQ1-0604 (gluten)
Casein IgA positive
Mom has 2 celiac genes
Both kids have a celiac gene.
Lots of celiac disease in my family, both sides.
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users